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| HiCourt | My daughter with DS didn't have any problems with this because she stayed on her belly the majority of the time. But my second child did he was born with scoliosis and the curvature caused him to want his head to the right side all of the time so the right side of his head was pretty bad looking. We just kept turning his head to the other side and positioning him on his left side and belly. You won't see immediate results. It took almost a year before it evened out. Good Luck. | | MM in Canada | Thanks so much for your reply, Anne. I'm certainly have a VERY tough time with this one. It's odd how, with all the potential issues that could arise for Jordan, this one is taking up so much of my headspace lately....
I, like you, really wonder about whether this is worth it or not. We will not get to see the specialist until Sept 1, so I get to sit and fret until then.
I'm curious whether you had to do anything special to correct the problem (ie: positioning differently or PT). Did your PED ever take measurements or xrays to determine the severity of the problem?
I'd still really appreciate any other replies: at our provincial children's hospital they are really noticing many children, and even more with DS, with this problem (called plagiocephaly).
| | Anne | Dear MM,
My son, too, had a misshapen head. It also was flat on the rear corner. I too was concerned and talked with the pediatrician about it. He asked me if I really wanted to put my son thru the discomfort of wearing an apparatus on his head, 22 hours a day. No I didn't. I know it is very noticable on a baby's bald head, but once that hair comes in, nobody can see the flat spot. And actually, as my son has grown, (he's 11 months old now) the flat spot has corrected itself for the most part. So between his hair growth and mother nature, he looks just fine. I suggest you don't be too quick to try and correct something that really, in the long run, doesn't matter. How would you feel wearing some contraption on your head for 22 hours a day, just because someone didn't think it was round enough. I know I'd be CRANKY! I know my son would have been CRANKY! Is it worth it? Not to me or my kid!
Anne | | MM in Canada | Have any of you had to have a child treated for a misshapen head? Jordan has ended up with a flat spot on one side, despite our attempts to adjust it by propping, etc. (I guess the 3 weeks flat on her back in nICU didn't help!)
The doctor has referred us to a specialist who will be considering her for one of those "head bands". I'd be interested in hearing from anyone about how the baby responded, how long it took, etc.
Thanks, in advance. |
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