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  Topic: Food!!!!!
Alicia Culp

Replies: 60
Views: 823

PostForum: Shoot the Breeze   Posted: October 17 2006, 7:21 PM   Subject: Food!!!!!
We don't eat in Seattle. We just drink Starbucks coffee!!!!!!
  Topic: I've been storing up my questions -
Alicia Culp

Replies: 9
Views: 231

PostForum: Questions   Posted: October 15 2006, 10:27 PM   Subject: I've been storing up my questions -
Hi! My Kayla is just over a year now and is breastfeeding like there's no tomorrow! HA! She's also very tall (on the 96th percentile for typical kids!!) She does eat three times a day but when the ...
  Topic: 10 Day old baby with 4 day constipation..Is this normal ?
Alicia Culp

Replies: 11
Views: 223

PostForum: Questions   Posted: October 13 2006, 7:26 PM   Subject: 10 Day old baby with 4 day constipation..Is this normal ?
I just have agree with the moms that mentioned breast-fed babies don't poop as often as bottle fed babes. All three of my children would go 4 or 5 days when they were breast fed, maybe even more, i c ...
  Topic: The race
Alicia Culp

Replies: 2
Views: 142

PostForum: General   Posted: October 09 2006, 10:54 PM   Subject: The race
I had never read that. It's beautiful. Thanks for posting it.
  Topic: My big boy!!
Alicia Culp

Replies: 5
Views: 130

PostForum: Brags   Posted: October 05 2006, 12:00 AM   Subject: My big boy!!
Way to go Justin!!! I bet your heart just swelled as you watched him walk down to the bus by himself! Probably felt like one of those milestones, like kindergarten. That is great!! It's also great t ...
  Topic: Pulling to stand
Alicia Culp

Replies: 9
Views: 150

PostForum: Brags   Posted: October 04 2006, 11:55 PM   Subject: Pulling to stand
That is so great!!!!! Way to go, big guy!
  Topic: Rookie question regarding DS
Alicia Culp

Replies: 6
Views: 318

PostForum: Questions   Posted: October 04 2006, 8:25 PM   Subject: Rookie question regarding DS
Ok all you mothers who have been researching like mad, tell me why every organ and system in the body is not always affected by the extra chromosome? If there is an extra chromosome in every cell, wh ...
  Topic: Some advise about husband
Alicia Culp

Replies: 15
Views: 552

PostForum: General   Posted: September 27 2006, 12:31 PM   Subject: Some advise about husband
My husband and I are going to attend our first buddy walk in a about a week. We were all excited to meet other parents. Now, after reading some of these posts, I'm getting a little nervous. Our sit ...
  Topic: chart.. ds children to peers...
Alicia Culp

Replies: 4
Views: 278

PostForum: General   Posted: September 15 2006, 11:57 PM   Subject: chart.. ds children to peers...
Interestingly it says kids with DS average 10 months for standing and typical kids 11 months.
  Topic: Another New one...
Alicia Culp

Replies: 27
Views: 851

PostForum: Introductions   Posted: September 15 2006, 7:37 PM   Subject: Another New one...
Welcome Tracy! Your montage made me teary. It was so sweet. Your little guy is adorable!!! I love that version of "Over the Rainbow". Who is it?
  Topic: Some encouragement - How times have changed!
Alicia Culp

Replies: 17
Views: 461

PostForum: General   Posted: September 15 2006, 4:50 PM   Subject: Some encouragement - How times have changed!
Love to hear positive stories!!! He is a very handsome young man. And sounds like he's well adjusted. Good job, MOM!
  Topic: First experience feeling different
Alicia Culp

Replies: 16
Views: 459

PostForum: General   Posted: September 13 2006, 6:45 PM   Subject: First experience feeling different
You guys are great. Thank you so much for the kind words. I feel better just knowing you're out there. And Sandy, yes, let's meet sometime!!!!! I'll PM you!
  Topic: First experience feeling different
Alicia Culp

Replies: 16
Views: 459

PostForum: General   Posted: September 13 2006, 5:42 PM   Subject: First experience feeling different
I've been going along for the first year of Kayla's life pretty happily. I try not to worry about the future too much. I've gotten used to people kind of staring and it hasn't bothered me....much. ...
  Topic: Henry's Story
Alicia Culp

Replies: 7
Views: 543

PostForum: My Story   Posted: September 12 2006, 11:26 PM   Subject: Henry's Story
He is so cute! Thanks for sharing your story. It's so encouraging. I love to hear stories of how "normal" our kids are, you know?
  Topic: I pregnant with #4 YIKES I'm excited and so scared too
Alicia Culp

Replies: 21
Views: 666

PostForum: General   Posted: September 12 2006, 11:10 PM   Subject: I pregnant with #4 YIKES I'm excited and so scared too
Congratulations!!!! I'm jealous too! I keep fantasizing about a companion for Kayla but just turned 40 Crying or Very sad
  Topic: Hydrosephalus???? My friend...
Alicia Culp

Replies: 7
Views: 224

PostForum: General   Posted: September 12 2006, 12:09 AM   Subject: Hydrosephalus???? My friend...
When I was about 4 months pregnant with my son (who is now a very healthy 19 years old), he was diagnosed with hydrocephalus. I was told very bluntly that there was a 99 percent chance he would be.. ...
  Topic: What is wrong with me
Alicia Culp

Replies: 15
Views: 459

PostForum: General   Posted: September 08 2006, 12:12 AM   Subject: What is wrong with me
Amy: I love the DS island idea. That cracked me up. Here's a weird thing that just went through my head. I was watching one of those documentaries about conception through birth and it followed 3 ...
  Topic: What is wrong with me
Alicia Culp

Replies: 15
Views: 459

PostForum: General   Posted: September 07 2006, 11:32 PM   Subject: What is wrong with me
I think we can all relate to your feelings of wanting to keep your precious baby in a bubble so the world won't hurt her. I don't have much experience with DS yet. But I can tell you a little scenari ...
  Topic: I wanted to share the short story I wrote....about my angel
Alicia Culp

Replies: 14
Views: 377

PostForum: General   Posted: September 07 2006, 2:19 PM   Subject: I wanted to share the short story I wrote....about my angel
Your story is beautiful. We celebrated Kayla's first birthday yesterday so I've been kind of re-living the day of her birth again. Your story made me smile through some tears. It amazes me how alon ...
  Topic: Shot to Protect against RSV
Alicia Culp

Replies: 19
Views: 677

PostForum: Questions   Posted: September 06 2006, 1:32 AM   Subject: Shot to Protect against RSV
Kayla had the shots last season. And yes, on top of all the other immunizations, I felt like she was a pin cushion for the first 6 months of her life or more. It broke my heart. But, my pediatricia ...
  Topic: how to fit in bf and solids
Alicia Culp

Replies: 7
Views: 268

PostForum: Questions   Posted: September 05 2006, 11:50 PM   Subject: how to fit in bf and solids
Geez. Sorry. I re-read the original question and realized I offered advice for exactly the opposite problem. Did I mention Kayla is teething and I haven't slept for like weeks????
  Topic: how to fit in bf and solids
Alicia Culp

Replies: 7
Views: 268

PostForum: Questions   Posted: September 05 2006, 11:45 PM   Subject: how to fit in bf and solids
Kayla is a year tomorrow. I think breastfeeding is her favorite thing to do in the world. If she had her way, she'd probably breastfeed till she's 10. I just offer her solids three times a day. Ev ...
  Topic: Our ages?
Alicia Culp

Replies: 165
Views: 8537

PostForum: Questions   Posted: September 05 2006, 10:28 PM   Subject: Our ages?
Just turned 39
  Topic: 1st birthday - to vaccinate or not - help!
Alicia Culp

Replies: 13
Views: 438

PostForum: Questions   Posted: September 05 2006, 10:23 PM   Subject: 1st birthday - to vaccinate or not - help!
Kayla's first birthday is tomorrow so I have decide soon about the MMR vaccine. I'm just starting to get paranoid about autism. I know you all have had this debate before and I've read a lot of the ...
  Topic: Low grade fever for too long
Alicia Culp

Replies: 3
Views: 200

PostForum: Questions   Posted: September 03 2006, 10:03 PM   Subject: Low grade fever for too long
She can see her local doc, but not until Tuesday. (Monday is a holiday). I really don't want to make her sit in an ER for 3 or 4 hours.....
You would worry more about a prolonged low grade fever, r ...
  Topic: Low grade fever for too long
Alicia Culp

Replies: 3
Views: 200

PostForum: Questions   Posted: September 03 2006, 9:09 PM   Subject: Low grade fever for too long
Kayla's had a real low grade fever on and off for about 4 or 5 days now. (never over 99). She is teething but I'm reluctant to blame the fever on that for obvious reasons. She is still eating great ...
  Topic: hehehehe do ya think...NEW PICS
Alicia Culp

Replies: 27
Views: 788

PostForum: General   Posted: August 30 2006, 5:55 PM   Subject: Your gorgeous daughter
Had to respond to this one! This girl is so beautiful. She's a natural with the camera!!!!!
  Topic: pray for my family
Alicia Culp

Replies: 10
Views: 403

PostForum: Prayer Requests   Posted: August 27 2006, 11:01 PM   Subject: pray for my family
Keeping you and your family in our prayers. Stay strong! Things will get better
  Topic: Ok what did you think (20/20)
Alicia Culp

Replies: 45
Views: 1455

PostForum: General   Posted: August 27 2006, 1:20 AM   Subject: 20/20
Like all of you, my husband and I sobbed through many parts of the story. It made me more determined to find friends for Kayla that share her special needs. The more I learn, the more I realize how ...
  Topic: How many of our babies have mechanical mitral valve???
Alicia Culp

Replies: 5
Views: 231

PostForum: Questions   Posted: August 14 2006, 11:54 PM   Subject: mitral valve
My son is now 19. He had a mitral valve replacement - due to congenital defect - at the age of 3. Since he was in heart failure at the time, his heart was so enlarged that they were able to put an ...
  Topic: The dreaded "Downs babies are always so happy" cli
Alicia Culp

Replies: 9
Views: 334

PostForum: General   Posted: August 10 2006, 7:22 PM   Subject: The dreaded "Downs babies are always so happy" cli
I finally had someone actually say something to me today for the first time, rather than just staring. A cashier at Babies R Us started out saying how cute Kayla was and then asked me if she had Down ...
  Topic: Introducing Cereal
Alicia Culp

Replies: 19
Views: 698

PostForum: Questions   Posted: July 20 2006, 12:27 AM   Subject: Introducing Cereal
I was told by either Kayla's pediatrician or her speech therapist or someone... that when babies nurse, they are actually pushing their tongues forward. So when they begin to eat solids, they have to ...
  Topic: Introducing Cereal
Alicia Culp

Replies: 19
Views: 698

PostForum: Questions   Posted: July 18 2006, 1:08 PM   Subject: Introducing Cereal
I started Kayla on cereal at 6 months. She didn't seem to mind it but didn't take an instant liking to it either. In fact, we had to do some pretty ridiculous antics to get her to smile and open her ...
  Topic: extra sleepy
Alicia Culp

Replies: 13
Views: 449

PostForum: General   Posted: July 16 2006, 12:33 AM   Subject: extra sleepy
Hi! Just wanted to share my experience with you for whatever it's worth. My little Kayla, thankfully, just had a small hole in her heart that they suspect will close up. However, I have a 19 year o ...
  Topic: Does anyone live near Seattle?
Alicia Culp

Replies: 5
Views: 201

PostForum: Questions   Posted: July 14 2006, 9:15 PM   Subject: Does anyone live near Seattle?
Hi Megan! I live about 30 miles north of Seattle (in Lynnwood). Auburn is probably about an hour away from where we live, so I can't answer any of your questions. My daughter with DS is only 10 mon ...
  Topic: new kids on the block
Alicia Culp

Replies: 21
Views: 1264

PostForum: Introductions   Posted: July 12 2006, 10:18 PM   Subject: new kids on the block
Welcome Nora and Jena! I am new to this forum too and I received such a warm welcome. Sounds like you're doing a fantastic job with Jena! Look forward to hearing more from you!
  Topic: expectant mothers essay
Alicia Culp

Replies: 7
Views: 240

PostForum: General   Posted: July 12 2006, 4:03 PM   Subject: expectant mothers essay
That was so beautiful. Thanks for posting it. I've told myself from the beginning that being blessed with Kayla was the ultimate compliment on my mothering skills. Someone upstairs must have a lot ...
  Topic: Birth announcements--how did you do it?
Alicia Culp

Replies: 19
Views: 756

PostForum: General   Posted: July 11 2006, 11:56 PM   Subject: Birth announcements--how did you do it?
This is such an interesting topic to me because after ten months of not talking to any other parents who had children with DS, I've been kind of "winging it". In the beginning, my husband a ...
  Topic: Taking orders! D is for Down syndrome
Alicia Culp

Replies: 62
Views: 1962

PostForum: General   Posted: July 10 2006, 1:04 AM   Subject: Taking orders! D is for Down syndrome
Geez. This must be a hot item. Can I get in on this too?????
  Topic: Looking for input
Alicia Culp

Replies: 6
Views: 752

PostForum: TNI and Piracetam   Posted: July 08 2006, 6:02 PM   Subject: Looking for input
I too want to learn more about Nutrivene. I have read the information on their website but I'm curious to know if anyone has read any independent studies. I would be interested to read something tha ...
 
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