DownSyn Forum

HAPPY BIRTHDAY!!!!

When I was pregnant with John's little brother I decided not to do ANY testing. I had an ultrasound, but instead of having the standard 20 week ultrasound I asked to wait until 30 weeks. I figured t ...

An author by the name of Nikki Arana is a Chirsitan writer who has a three book series: The Winds of Sonoma, In the Shade of the Jacaranda, and The Fragrance of Roses. The first is the story of how t ...

One morning earlier this week I was sitting on the couch with my two youngest reading a book while doing John's morning nebulizer treatment. When we were done I said, "Come on guys. We have to ...

YES!!! A month or so ago I saw a billboard that said "Every baby is a blessing." I thought the baby looked like it had DS. A few days later I drove by again and noticed that it also said ...

Oh Ecki! I was really hoping to read that she had turned the corner and was feeling better. I hate, hate, hate having to guess what's wrong/what's hurting. We've been working with John for two year ...

John will be turning 5 next week (can't believe it!!!). We have his IEP meeting the day before his birthday. From previous conversations I know that they think he should be going on to kindergarten ...

Short answer: yes, reflux can make asthma symptoms worse. As far as the apple juice is concerned, I'd skip it. Most fruit juices are glorified sugar water and horrible for the teeth. We do milk at ...

Great news!!! Wonderful!!! Sometimes you gotta love your ologists.

(In Ibby's post I'm the red one on the far left. And, yes, I look exactly like a banana when I dance.)

Five surgeries in a year and a half does sound like a lot. Does the ENT think that's a lot? John's ENT said tubes should last anywhere from a few months to around 18 months. John's first set lasted ...

Five surgeries in a year and a half does sound like a lot. Does the ENT think that's a lot? John's ENT said tubes should last anywhere from a few months to around 18 months. John's first set lasted ...

HA HA HA HA HA HA HA HA HA HA!!!!!

Ughh here too!!!

I went there but cant' figure out how to see specific complaints. The only thing I can find are the complaint forms.

We had a fabulous week in Florida thanks to Make-A-Wish!!!! It was unbelievable. Give Kids the World was amazing. You don't really want to earn the right to stay there (since it means your child ha ...

John's head tilt was due to a vision problem. His was pretty much a constant tilt. He saw an ophthalmologist who diagnosed an alignment problem with his eyes. It was interesting during the exam bec ...

My son sees an orthopedist for his AAI. Otherwise we see an orthotist, but he isn't a doctor, he's just the guy who makes John's orthotics. Who wants you to see an orthopedist and for what reason?

WOO HOO!!!!!

We're going before May. In fact, we might eat turkey there.

I agree with Sarah: I love and hate your updates.

Is her MCV high? Is that what you mean when you say her red blood cells are large? Wonder what's going on. Hope it's a fluke and nothing else. ...

I'm having trouble getting on the site and getting threads to come up. Anyone else having trouble, or is it just me?!!! Hopefully this will post.

I'm just waiting for either Halle Barry or Jennifer Lopez to have a baby with DS and make it the cool thing to do!!!!!

John came home this afternoon. His sats were at 100% today (finally!!!) so they let him come home. He looked pretty pathetic when he got home because he's in the middle of his monthly pulse of stero ...

Definitely praying for Ethan.

Happy day! Glad to hear they're both home.

I think I'm in this year, for both the Christmas cards and the gift exchange! I'll PM you my address.

Also, does the list include everyone's screen names? I'll be lost without them!!!

John's still in the hospital. Not much has changed. He's still having trouble keeping his O2 up. They did another chest x-ray yesterday. It didn't show anything new, no pneumonia, so that's good. ...

I'm sorry to hear this. What a bummer. I'll be praying it's something they can control easily.

John's at the hospital again. He started having trouble breathing at bedtime last night so we hooked him up to our new pulse oximeter machine. It was alarming right away. They preset it to go off a ...

Without you, no Mikey. Without Mikey, no downsyn.

A very selfish Happy Birthday to you!!! What would we all do without you?!!!

I'm so sorry to hear this. Uggghhhh! I will continue to pray for both your little guys.

Poor kid! I watched it and knew she was coming and I still jumped! I guess he isn't big on haunted houses and scary movies, huh?!!! So sorry! I wish there was some way to undo it.

I will definitely pray for Micah. (If the family sets up a Caring Bridge page or a Care Pages page can you forward the address to me?)

I hate to hear this. I will definitely pray for Liam's family.

Poor little guy! I hate to think of him getting stuck so many times. I'm keeping my fingers crossed that he gets to go home today, and holding my breath that Caleb doesn't get any worse.

Yahoo for kisses! I'm grinning form ear to ear. Give him one from me!

How scary! I will definitely pray.

This weekend the pulmonologist who saw John commented that kids with DS generally have underdeveloped lungs with fewer air sacks. He said their lungs are very similar to a preemie's lungs. I've neve ...

Who is that tall handsome man? He looks great! Pretty soon you'll be able to hand over all the kitchen chores to Ethan!

Glad to hear about her heart. Phooey on the poop! Don't you hate it when you feel a doctor's visit is a complete waste of time and you have to start over with someone new?!!! I sure hope you get th ...