DownSyn Forum

Hi there,

We live in Canada. Our son Erik has DS and is 10 years old. I guess the level of services would depend on which Canadian province you would consider moving to. We live in Alberta which is ...

Hi guys,

My advice is: be VERY patient. Yes, there are some kids with Ds who use the potty quite early but I think the majority of kids take a long time. I have never really found other parents who ...

Hi,

Yes, children with Ds are often born prematurely, although not always. My son was actually born by elective C-Section, because I had two previous C-sections. They like to do sections about a we ...

Hi there,

Our son Erik (now Cool

had heart surgery for an AVSD and wsa out of the hsopital bery quickly. It all depends on how quickly the child will recover and that will doffer from one child to an ...

Hi Heather,

Congratulations on the birth of Austin! I know things must feel difficult right now. Our son Erik is now 8 1/2 years old but he also was in the hsopital after he was born for a few week ...

Hi guys,

Welcome to this wonderful place. You have found a great place with wonderful people here who are all willing to listen and give support.

Congratulations on the birth of your little guy! ...

Dear Judy and David,

I can understand that you are worried about the surgery. I was terrified when Erik had to go for surgery. What got me through it was the thought that we would know for sure he ...

Hi Jefry,

Thanks for the update on Joey. Great to hear he is doing so well.

It is so GREAT to see positive messages from you. You really have come around and that is so wonderful.

As for the ...

Hi David and Judy,

Welcome to this wonderful site where you will get a lot of support and meet a lot of wonderful people.

My son Erik is 8 years old and has DS and Diabetes. I also have two daug ...

Hey Jennifer,

You can go ahead and try it, as I guess it has worked for some people. Although, I would like to tell you, don;t get discouraged. This may take a LONG time. Erik only got trained duri ...

Hi Jef,

So glad to hear that Joey came home and is doing better.
I guess the 'old man usptairs' was listening to all of us.

Even though Erik turned 8 last week, I do still have bad days now and ...

Hey Jenn,

I am not surprised about your decision to home school your son. You have talked to me about it before.

I have an internet friend who lives in Pennsylvania. She has nine children (one 1 ...

Hi there,

Our Erik (now Cool

was also tube fed trough an NG tube for a while, before he had heart surgery. Just keep trying with the bottle and breast, so she really develops her sucking reflex. It i ...

Hi Jef,

I am very saddened to hear that Joey had to go through so much. I know this has been bery hard for you and Shannon. I am also glad, though, to see the change in your attitude. I have prayed ...

Hi everyone,

It was Erik's 8th Birthday on Sunday and for the first time ever he really got into it. He was so excited about the presents and his cake. The same with Christmas this time. He really ...

Hi Vonda,

Nice to see you back here again after such a long time. I always wondered what had happened to you.

Congratulations on the birth of your daughter. What a pretty name!

Look forward t ...

Hey Jefry,

Sorry to hear that your little guy is having problems. You will all be in my prayers and I hope he will recover soon and be much better.

I remember how awful it is to sit in the hospi ...

Hi Pam,

It's wonderful isn't it? Way to go Zach!!!

I remember Erik's little accomplishments so well. He is now almost 8 but I do remember them all and there are still more to come. It always mak ...

Hi Cindy,

My son Erik is almost 8 now. He nursed like a little trooper when he was born. I just had to supplement him, because they were worried about weight gain for heart surgery but nursing was ...

Hi Joan,

Just write what's in your heart and tell people what you want them to know. They will react in their own way and you won't be able to change that. Emdad is right. This is YOUR Christmas le ...

Hi,

Yes, I know that some of our children get their teeth later than other kids. My son was 8 months old before he got teeth but he managed well with table foods by the time he was 9 or 10 months o ...

That depends on the testing performed. The only accurate and sure test is an amnioscenthesis.

Ingrid

Hi Cammy,

Try good old-fashioned vaseline or maybe ask you son's doctor what you should use. There might be some special creme out there which will help. Good luck.

Hi Tom

Wishes for a speedy recovery for Mikey. I know what it is like to have a kid in the hospital. It throws off your entire family routine and it is tough on the little person who's actually in ...

Herzlich Willkommen, Karin! Herzlichen Glückwunsch zur Geburt von Jessica. Dies ist eine tolle website.

My son Erik is 7 1/2 years old and has Down syndrome. He also had a heart defect and had open ...

Thank you, Tom for installing the new chat room and also thanks for keeping the old one. I guess it was worth a try.

Cool

Hi Tom,

HiCourt, Fiona and I met in the new chat room today and we all agreed that we like the old one much better. It seesm a lot warmer and fiendlier.

Just thought, I'd let you know.

Hi Pam,

I will only tell people about Erik's DS when the conversation turns into that direction. In your case, for example, when people started talking about all those babies with problems, I proba ...

Sorry, Tom, I have to agree with HiCourt. I don't know if it's just that whatever you're used to you tend to like better. Maybe we would get used to it. It just looks weird and very different from the ...

Hi Ruth,

Welcome to this site. You have found a truly wonderful site here and you will find that all the people here are very supportive and helpful. I wish I had had a resource like this when mys ...

Hi,

Yes, I think you should definitely take her with you. I understand that you're worried about it being a little like "Show and Tell" or "The Dog and Pony Show", but I honestl ...

Hi everyone,

Yes, HiCourt is right. We've met in the chat room a few times already and were also joined by a few others a couple of times. It is a great way to meet some of the other parents on thi ...

Hi there,

That is INCREDIBLY good news. Do you have any idea how lucky you are? Most kids with DS are not ready to be toilet trained until much later. My son was over 6 years old already and still ...

Hi Mhari,

It was actually just me and HiCourt who showed up and we had lots of trouble getting into the site, so didn;t have a lot of time to chat. We're meeting again on Monday night same time (9P ...

Hi Mhari,

Yes, 10 PM Central time is 9 PM Mountain time or 8 PM Pacific Time. So, depending on where you are in Idaho, that's when you log on. I am in Canada (Alberta) and we're on Mountain Time. H ...

Hi Shannon,

I really don't know what you should do, as the site recognizes you as Jefry Klein now as soon as you log onto it. Maybe send a private message to Tom and see what he suggests. He should ...

Hi Jefry,

It took me a while to decide if I should respond or not. The fact that you keep coming back here and talking to all of us lets me believe that all is not lost with you!! And that's why I ...

Hi Shannon,

Yes, our son Erik had to have the same surgery when he was 6 months old. He is now 7 1/2. It was very scary at the time but he came through it an recovered VERY quickly. If you have any ...

Hi everyone,

HiCourt and I will be meeting next Friday night (October 20) in the chat room at 10 PM Central time. Anyone who would like to join us, please feel free to do so.

Looking forward to ...

Hi Rob,

Congratulations on the arrival of Ryan Eric and welcome to this wonderful site. You will meet a lot of incredible people here who are always willing to offer support and advice.

It can a ...