DownSyn Forum

Hi everyone. It has been so long since we have been to this site and I have spent a lot of time reading posts this morning and catching up on how everyone is doing.

Today is Joey's 1st birthday! ...

I need help! Feedings are the pits with Joey. He is supposed to take 22 ounces per day and boy is it a struggle. No matter what I try, nothing seems to work. I am getting sooooooo frustrated. Her ...

Hi, this is Shannon, Joey's mom. Since Joey was hospitalized for two months this last time, he had several tests done and apnea testing was one of them. So, this is what I learned on that subject:
...

WOW, WHERE DO I START.

I guess I should start with you people. I can't begin to thank you enough for keeping the little PINTO in your prayers. There were times there where I thought for sure ...

Hi Carla. This is Shannon, Jef's wife. We found out 18 weeks into the pregnancy that Joey would have DS. It was a huge shock, but my OB was wonderful. She even went the extra mile to keep an eye o ...

Hi everyone. This is Shannon, Jef's wife. We are sorry that it has been so long since we have updated you on Joey's progress. Jef has tried to post several times, but something different must have ...

To all you special people (and I know there are quite a few of you out there), I want to personally thank you for all your prayers. After 3 weeks in the Intensive Care Unit at Riley's Children's Hosp ...

Well as you all know the surgery went well. Everything after that went to pot. Joey's right lung collasped 2 days after the surgery and he has been on a ventalator ever since. The have pricked and ...

On Friday December 22, 2000 we took Joey into the hospital due to his irregular breathing (which of course he has had since he was born on Sept 25th). Well need-less-to-say, they admitted him. On Sa ...

First of all, I am really sorry if I offended anyone and I am even more sorry if I made some of you butt heads.

Let me tell you a little bit about the man behind these words. I am 39 years olds, a ...

For those of you that don't me, I'm Jef, Joey's loud mouth dad. For those of you that do, here is your chance to turn back.

Last Friday (December 15) Joey had a medical appointment. They had to d ...

On Christmas day, Joey will be 3 months old. I thought I was over the whole DS thing until yesterday. I am a volunteer coach for 3rd and 4th graders in a basketball program called "Upward Baske ...

Hi everyone. I need some help here. I have been trying to register myself so I don't have to post under Jefry, and I haven't been very successful. I am going into "register". The other d ...

Well good morning, afternoon or evening (depending on where in the country you are). Yes this is Jefry. And understand that, that is all the pleasantry you're going to get.

So tell me people. Wh ...

This is Shannon, Jefry's wife, and I was just wondering if anyone out there has a child that has had to undergo heart surgery? My little Joey is only three weeks old now and he has the AV Canal heart ...

Hi and congratulations! My name is Shannon (I'm Jefry's wife) and we too have a son born on Sept 25, 2000. His name is Joey and we found out that he would have DS back in May. He wasn't due until N ...

For those of you who know me, this is Jef (Shannon's Husband). I can save you alot of negative feelings by telling you that the comments made in here are not very friendly. This is your one and only ...

THANK YOU, Jef

Ingrid's post snipped for brevity

[Edited by Tom on 06-30-2000 at 04:39 PM]

I'm am really sorry that everytime I seem to post a message that it's negative, but I really wish I had something positive to say. I guess for positive responses, look for Shannon. Last Friday (23 J ...