DownSyn Forum

Hi Marcy - Congratulations on the expected new addition to your family! I'm Judi, mom to Sam and Patrick, 9 year old identical twins w/DS. I used to post here at downsyn a long time ago, and for som ...

Hi - I haven't been on this board in such a long time!

I have identical twin boys w/DS. They were born w/congenital hypothryoidism. It was detected in their newborn screen and have been on synt ...

Congratulations on the new addition to your family!!!

Hi - I'm Judi, mom to Sam and Patrick, 6 year old identical twin boys w/DS (yep, both of 'em!).

Sam and Patrick were born 14 weeks early and ...

Tom - Michel, you and your family are in my thoughts and prayers for a full and speedy recovery!
Hang in there!

Hi John - congratulations on the birth of Hank and Libby!

I'm Judi, mom to Sam and Patrick, 6 year old identical twin boys with DS (yep, both of 'em!). Sam and Patrick were 26 weeker preemies w/a ...

I'm Judi, Mom to Sam and Patrick, soon to be 6 year old identical twins (yep, both of 'em!) with DS. We live in the Dallas area, so we're "kinda" neighbors!

I wanted to let you know abou ...

Hi - My boys (I have identical twins w/down syndrome) have had 3 sets of tubes in their ears (Yikes!). The surgeries were done in the hospital, but out-patient. We went in early in the morning and w ...

My boys Sam and Patrick ADORE the wiggles!! We have 5 tapes now and they can dance along (and try to sing) to every single song!!!

The wiggles were recently on tour in the US and they came to DALLA ...

Alan - you left me a personal message. I've been trying to reply but there's a problem. Please send me your email addy so I can reply (judig2@yahoo.com).

Thanks!!

Some very inspirational young adults:

Karen from the UK - she goes to college!

http://disabilities-us.com/slaterfamily/karen.htm

This guy is simply amazing:

http://members.tripod.com/~suj_ ...

Happy First Birthday Joey!!! Wow - I can hardly believe a year has gone by!

Congratulations on the news of an impending addition to the family - that's terrific!!

I think of you often and am so ...

estate planning, especially estate planning for children/persons w/special needs.
We did this when our twins were about 1 year old. You need to not have any bank accounts in this child's name, and e ...

Find out who the show's sponsers are. Write letters to them telling them that you won't buy their products/services, etc. cc: the station manager/program manager, etc. Say in your letter that you are ...

I received two heart-felt reply's from the on-air talent and the program manager! Apologies from both with a promise to not use the term again! So far, they've kept their promise.

I had a somewhat similar experience with a radio station personality here in Dallas who used the term "retarded" indiscriminately. In addition to emailing the on-air talent, I emailed the s ...

Hi Kyle, I'm Judi, mom to Sam & Patrick. They are identical twins w/DS and they were 26 weeker preemies (about 13.5 weeks early). I can so relate to the preemie/ds thing. It's like a "doub ...

Hi! I have identical twin boys - they both have DS. There is a list serve at yahoogroups for multiples w/ds where one or more have DS. There are lots of families out there with twins where one has D ...

because we didn't find out about the DS until the boys were 1 month old (I have identical twin boys, born prematurely at 26.4 weeks).

I was 37 when I got pregnant. I had numerous long conversation ...

Hi Cammy - Do you have access to a Down Syndrome Clinic in your area? Most major cities with a Children's hospital have them. They are the best resource for getting referrals for the different tests ...

When Sam & Patrick were in ECI, they asked consent to bill our private insurance and I declined. Let me tell you why: My insurance (Blue Cross PPO) has a "maximum lifetime benefit" pay ...

When they are children, there is the underweight issue. As they become adults, the overweight issue can kick in. I myself have had a weight problem (over) my whole life, so I don't want to pass my b ...

Jefry: Glad to hear Joey is home and doing better. You've all been in my thoughts and prayers!
We all have our good and bad days. You'll see (if you haven't already) that the "good" will ...

I understood perfectly Jeff!!
Also, I think that we as parents seek out the "understanding" or acceptance of other parents too. I know when I see older children or adults w/DS and their fa ...

I've always wondered if the reason for my boys extreme prematurity (they were 14 weeks early) was some sort of "late or delayed" miscarriage.
I know a large percentage of babies w/DS are bo ...

You are such a kind neighbor, we should all have people like you living next door!
Just to reiterate what everybody else has already told you, congratulations are in order, comment on how beautiful t ...

Hey Thanks Jen, thanks too, to all of you who voted!!! I completely didn't even think of posting here for y'all to see and vote!!!

Tom has graciously allowed me to post a "classified ad" here, so here goes ----
Every year the Down Syndrome Guild of Dallas produces a fund raising calendar called "Field of Dreams&qu; ...

Wow, WTG Bene!!! She sounds like she's doing great! Keep up the good work.

Awww, what a lil dumplin'!!! How old is he?
Thanks for sharing your picture with us!

Hi Karen: Is Noah in Early Intervention? When the boys were in EI and people asked me what to get them for Christmas or birthdays, I'd usually talk to my OT or PT and ask what kinds of toys would be ...

Hi! I found the person I was referring to in my previous reply to you. She posts at another bb I lurk at and here's her reply to me:

Paige and I give a presentation each year to the medical studen ...

Gosh, I'm wracking my brain trying to remember what DS bb I read this on but there is a mom out there who does these talks and takes her daughter with her! She takes her to a Medical School and gives ...

Or these eyes. They fill my heart with more love and joy than I ever thought possible!
http://www.acds.org/pics/samschool.jpg

[Edited by Tom on 10-28-2000 at 03:27 PM]

Sure, when I first got my boys diagnosis of down syndrome, I cried. Did I cry forever? No, I got over it. My babies needed me.
Do I cry today? NO WAY.
Jef, take a good look into these eyes. Do y ...

Nice to hear from you again Tina! Anderson's webpage is beautiful, a wonderful testament to him! Thanks so much for sharing it with us.

Dear Fiona: I'm so sorry to hear of the passing of your precious Hazel. Please know that you and your family will be in my thoughts and prayers.

I have to agree with you all. It really depends on the situation, my mood, the setting, etc. as to whether I want to talk about DS or not. Sometimes, if I really am not up for the DS discussion, I j ...

What a cutie-patootie!!! Glad to see a picture of such a happy boy. Thanks for sharing!

My boys were on the vent for quite a while, but never needed a trach. I subscribe to lots of preemie lists as well as DS lists and got this from one of them. It's a pretty interesting website, fille ...

The nurse at our local DS clinic gave me a tip for constipation when it was a problem for the boys....add a 1/4 tsp (gradually adjust as necessary) of milk of magnesia to their bottles. Works well, p ...