DownSyn Forum

Boy, I signed on to this site and can't believe it's been 2 yrs. since I've visited!
Anyway, My son was 20 months when my son with Down Syndrome was born. Lucas (now 71/2) was carted to the speech ...

check out the website oromotorsp.com. It's very useful for oral motor therapy in kids with ds. We started my son with oral motor therapy very early. This doesn't ensure that you're child will talk ...

One thing you'll discover on this new journey is that when you finally get a little discouraged and impatient for some milestone to happen, and you almost feel like it never will, is just when it does ...

Desales,
I cannot believe how insensitive, ignorant and closed-minded that doctor is. It sickens me. Certainly many children conceived with Down syndrome are miscarried early in pregnancy. However ...

I got my son Paul to drink from a straw. We had him off the bottle by 1 yr and he's never had a sippy cup because it's not recommended. A child puts his tongue under a nipple or a sipply cup, which ...

Peggy,
It has been many moons since I've been on this sight, but I came today to post the question you asked. My son Paul is 3 and wakes up usually 2x per night, gets up, walks into our bedroom, and ...

My son with DS was my second child, 20 months behind my first. I´ve still managed to spend a lot of time with him, but I think one of the most beneficial things is his relationship with his brother. ...

Rest assured, ghanima, that as long as there are no unexpected complications the experience should be like the birth of a typical child. My son Paul was my 2nd, and he came so fast that neither my do ...

I think it's great you're thinking about this now. We haven't opened any accounts directly in our son's name, and I think the risk in doing that is reduction of, or denial of benefits when he is an a ...

I know exactily how you're feeling! My son Paul turned 2 July 19, and is just starting to take steps while holding our hands, just did the walker for the first time by himself last week. I was so pr ...

Congratulations on your baby! First, my son with DS slept A LOT. I really noticed that he slept noticeably more than my first son. I kinda felt it had something to do with the Down syndrome. Anyw ...

I know who my child is, the person he is, and I also know that he has some degree of mental retardation. That is not who he is, OF COURSE! But I know that he will not be a doctor one day. I have th ...

Abigail's mom,
My son Paul will be 2 July 19! When is your Abigail's birthday? Happy birthday!!

By the way, Paul had his first tubes at 13 months, then they were dislodged and re-done in Februa ...

Tammy,
I don't know anyone personally who has had duodenal atresia, but I did some research on it during my pregnancy b/c I was convinced my son would have it b/c I thought I was getting too big (an ...

Those Heinz cups are great! It takes a lot of patience and perseverance, but know that it does wonders for tongue retraction! Once they learn to drink from a straw, that's excellent because it not o ...

The pink thing was called a toothette! You can order all of the above stuff (nuks, toothettes, chewy tubes, flexi-cut cups, from Mealtimes at 1-800-606-3665 ext. 10, or e-mail at mealtime@new-vis.com ...

We used the Nuk massager too, just for exercise, (actually, we ended up using one of those pink sponge-looking things on a stick-I forget what they're called, and we trimmed it to be a bit smaller) ha ...

Before Paul turned 1 (last July!), I became extremely emotional. Every time I thought of his birthday approaching, I started to cry (tears are welling up now thinking about it). I'm sure it was beca ...

We'd pondered the risk/benefit issue with Nutrivene-D, and decided against it. It occured to me a few weeks ago while I was driving in my car that I was really glad we didn't do it. The reason? Pau ...

Ikarr,
Congratulations on your pregnancy. I know what you're going through. I knew of Paul's DS during my pregnancy, and it was difficult. I coped by immersing myself in information, support group ...

Dear Cindy,

Congratulations! I know it´s an emotional time. I too found out during my pregnancy and was concerned about breast feeding. My son, who is now 17 months, did great--better than his o ...

Fiona,
I'm holding back tears right now. I'm so sorry for your loss, and I know little Hazel is already with God. I know how strong a place in my heart my baby has filled, and I hope with prayers a ...

First, congratulations on your first baby! I found out that my baby had Down Syndrome during my pregnancy. We had an abnormal AFP, then an amnio. DON'T GET TOO WORRIED YET from just the nuchal fold ...

Hi Cammy, I have a 1 year old with down syndrome, and I feel speech/oral-motor therapy is the most critical intervention my baby has received. Oral-motor skills, tongue strength, & habits are dev ...

Can anyone share with me at what age your babies started crawling? Paul is 13 months and nowhere close. The therapists and doctors always said he had pretty good tone for a low-tone child, so I kind ...

mm-
How you described it sounds exactly how I do it. From midline outward, knuckle facing down, 4 times on each side (1 side, then the other, then 1st side, then the other, etc., everything symmetri ...

I'm so glad the site was so helpful to you! I had misplaced their catalogue which had the website address, so it took me a little long to respond.

I recommend that you request the catalogue from ...

MM, You asked me for more info. on palatal massage. From Paul's birth (11 days old), we did it before every feeding. Now, we do it about 3 times per day, until he gets teeth. The palate hardens aro ...

Hi,
I just returned from my son's 1 yr. check, and we talked about Prevnar. Paul is scheduled for tubes August 8 due to fluid and a series of ear infections (all started at around 6 mo, but we weren ...

When Paul was about 3-4 months he started having the same sort of constipation problem. We saw a Gastroenterologist about it, and since then we've had him on an excellent regimen. The first thing we ...

Jefry,
I'm really sorry about the heart situation. My son didn't have that problem, but I know there are many out there who did who you can talk to. It seems like after all of the struggle and diff ...

I would contact a geneticist. My understanding is that your chances jump to 1 and 100 if you carry the child to term. I believe that ONE of the reasons for this is that women who deliver babies with ...

Hi,
We have the Love and Learning tapes. The program consists of 3 parts--tapes, books which are really flashcards of letters, and the video tapes. It's a pretty good program. We really only use t ...

The Speech Therapist we see every 3 months (in addition to our weekly EI Speech Ther.), who does lectures, etc., has us on the following program: 1) facial massage, outward to midline 2) palatal m ...