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  Topic: DS Magnets?
Marg

Replies: 12
Views: 815

PostForum: General   Posted: May 21 2007, 7:47 PM   Subject: Down Street Press
The website is www.321downstreet.com
They have magnets, t shirts, note cards.
I believe the magnets are about 4$.
Marg
  Topic: Hannah's bloodtest results(stomach issues)
Marg

Replies: 30
Views: 2382

PostForum: General   Posted: September 07 2006, 4:58 PM   Subject: Hannah's bloodtest
Hi Heather, I am an infrequent poster but my son who is 9 has celiac disease.
The biopsy is the definitive test. If the gene test is negative you cannot have celiac disease. If it is positive than i ...
  Topic: Celiac
Marg

Replies: 29
Views: 6518

PostForum: Health Issues   Posted: June 02 2006, 5:35 PM   Subject: Celiac
I forgot, I never had checked into the tax deduction but I asked my brother-in-law who is an accountant. He said its questionable. There is a tax law that says that "special diets that merely rep ...
  Topic: Celiac
Marg

Replies: 29
Views: 6518

PostForum: Health Issues   Posted: June 02 2006, 5:32 PM   Subject: Celiac
Hi,
We have found the bread mixes make a nicer bread but
there isn't anywhere around here that bakes it fresh.
I bought a Cuisinart bread maker that has a gluten free setting and that makes a big d ...
  Topic: small intestine biopsy
Marg

Replies: 9
Views: 550

PostForum: Questions   Posted: May 23 2006, 5:51 AM   Subject: small intestine biopsy
Todd's blood work showed positive TTG (IGA), Positive Endomysial antibody and positive Gliadin antibody.
He was 8 when he was tested.None of the levels were
extremely high.
I'm almost certain that ...
  Topic: small intestine biopsy
Marg

Replies: 9
Views: 550

PostForum: Questions   Posted: May 19 2006, 8:39 PM   Subject: small intestine biopsy
Hi there, Celiac is an auto-immune disorder.
As I remember Todd had what looked like lesions and the
Dr. said that was indicative of the damage to the intestine
from the celiac.
The biopsy shou ...
  Topic: Important - cool new feature!
Marg

Replies: 18
Views: 1155

PostForum: General   Posted: May 15 2006, 4:55 PM   Subject: Important - cool new feature!
Well that is pretty cool.
  Topic: Celiac
Marg

Replies: 29
Views: 6518

PostForum: Health Issues   Posted: April 21 2006, 7:37 PM   Subject: Celiac
Katie,
Looks like you are off and running. You'll do fine.
Wellshire Farms has a Chicken nugget through their
"Wellshire Kids" line. I have found them in Whole Foods and occasionally in ...
  Topic: Celiac
Marg

Replies: 29
Views: 6518

PostForum: Health Issues   Posted: April 19 2006, 9:33 AM   Subject: Celiac
Todd has adjusted really well to the diet. He has "cheated" a couple of times and once you are gluten free for a while the reaction is most unpleasant. I find him healthier and easier to g ...
  Topic: Celiac
Marg

Replies: 29
Views: 6518

PostForum: Health Issues   Posted: April 19 2006, 5:34 AM   Subject: Celiac
Katie,
My son Todd (9) was diagnosed with celiac about 10 months ago.
It really isn't as bad as I thought it would be. We have adjusted well. If Matt's biopsy comes back positive and I can be of any ...
  Topic: Celiac Disease?????
Marg

Replies: 9
Views: 521

PostForum: General   Posted: April 19 2006, 5:26 AM   Subject: Celiac Disease?????
Tracy,
My son Todd has celiac disease. He did not have a lot of symptoms, just some constipation and the bloated belly. We had him tested because we know other families
with kids with DS who have c ...
  Topic: I just checked Marriott for the convention...
Marg

Replies: 5
Views: 1561

PostForum: 2006 NDSC Convention   Posted: March 10 2006, 7:28 PM   Subject: I just checked Marriott for the convention...
I called the Marriott and asked for a room with the NDSC conference and didn't have any problem. Maybe they have a certain number of rooms blocked off for conference attendees.
Good Luck
Marg
  Topic: Help me! What is this??
Marg

Replies: 30
Views: 2696

PostForum: General   Posted: December 29 2005, 7:31 PM   Subject: Help me! What is this??
Maybe Fifth's disease. It is a viral rash. Sometimes referred to as a "slapped cheek" appearance because it starts out with bright red cheeks. It doesn't cause anything serious and goes awa ...
  Topic: Please tell me this is not possible
Marg

Replies: 13
Views: 657

PostForum: General   Posted: December 21 2005, 8:52 PM   Subject: Please tell me this is not possible
Leah,
My 8 year old, Todd was diagnosed with Celiac Disease in June of this year. I thought it would be terrible, but the transition has not been bad at all. It has been a learning experience for us. ...
  Topic: Toot, toot
Marg

Replies: 46
Views: 3866

PostForum: Shoot the Breeze   Posted: November 02 2005, 7:30 PM   Subject: Toot, toot
Ditto.
Thanks Tom. I'm one of those who don't post often but stop by to check in regularly. This is a great site. I have passed it on to other parents because I enjoy it so much.
  Topic: EXTREAM Diarrhea
Marg

Replies: 7
Views: 555

PostForum: Questions   Posted: July 18 2005, 5:34 AM   Subject: EXTREAM Diarrhea
Hi,
Todd has taken captopril and lasix without those kinds of side=effects. He never took them together though. They dropped the lasix when he was about three and started captopril. He switched fr ...
  Topic: what wt./age at heart surgery???
Marg

Replies: 20
Views: 1114

PostForum: Questions   Posted: May 26 2005, 7:41 PM   Subject: what wt./age at heart surgery???
Sorry, forgot to put in weight, Just under 8 lbs. (He is 8 now by the way)
  Topic: what wt./age at heart surgery???
Marg

Replies: 20
Views: 1114

PostForum: Questions   Posted: May 26 2005, 7:40 PM   Subject: what wt./age at heart surgery???
Todd was 8 weeks old, AV Canal
  Topic: ASSESSMENTS-&-Guilt.....
Marg

Replies: 17
Views: 739

PostForum: General   Posted: April 05 2005, 8:22 PM   Subject: ASSESSMENTS-&-Guilt.....
Hi,
You brought back a funny memory for me. When Todd had one of his early assesments they gave him blocks to stack. He had no idea what to do with them. Well for the next year we stacked blocks lik ...
  Topic: Watch the Interview Video
Marg

Replies: 23
Views: 556

PostForum: General   Posted: January 04 2005, 9:59 AM   Subject: Watch the Interview Video
That was so well done.
You looked great and Sarah is just darling.
The research physician, Brian has run the siblings conferences for NDSC for several years and did the NDSS one last summer. My 15 y ...
  Topic: Where are you?
Marg

Replies: 74
Views: 4861

PostForum: General   Posted: September 08 2004, 2:53 PM   Subject: Where are you?
Greensboro, Maryland
  Topic: Update on Iziah
Marg

Replies: 16
Views: 978

PostForum: General   Posted: July 28 2004, 8:35 PM   Subject: Update on Iziah
If I remember correctly and if this is the same procedure; VCUG stands for voiding cystourethrogram and basically is checking to see if the bladder empties completely and that urine does not reflux ba ...
  Topic: The NDSS Conference:
Marg

Replies: 4
Views: 667

PostForum: General   Posted: June 18 2004, 9:05 PM   Subject: The NDSS Conference:
I'll be there. My 14 year old daughter is going to the siblings conference. Any other sibs attending? This is our first NDSS conference. We've been to NDSC several times.
Marg
  Topic: LA TIMES ARTICLE
Marg

Replies: 13
Views: 856

PostForum: General   Posted: October 31 2003, 10:26 AM   Subject: LA TIMES ARTICLE
Well said emdad. I like the way you look at things.
Our kids have a much brighter future than those born as recently as 20 years ago because of people who were willing to look for better ways to educ ...
  Topic: NDSC Conference in Philadelphia
Marg

Replies: 5
Views: 541

PostForum: General   Posted: June 29 2003, 4:42 PM   Subject: NDSC Conference in Philadelphia
My husband and I will be there as will our daughter who will be attending the siblings conference for the second year. This will be the 4th NDSC conference for us and I always find them uplifting. It ...
  Topic: Well, the time has come
Marg

Replies: 9
Views: 820

PostForum: General   Posted: June 26 2003, 12:26 PM   Subject: Well, the time has come
Just wanted to give you another perspective. Being around the other kids in daycare can be a great boost. I really believe the positive effects of daycare for Todd were tremendous. (He's 6 now, and ...
  Topic: This song reminds me of our kids!!
Marg

Replies: 3
Views: 411

PostForum: Questions   Posted: January 17 2003, 5:30 PM   Subject: This song reminds me of our kids!!
Vonda,
That is so cool. I've always thought that song was perfect for Todd. I sing it to him at bedtime. (as long as nobody
else can hear me, lol). Thanks for posting that so I know I'm not the onl ...
  Topic: Just a (controversial?) thought
Marg

Replies: 13
Views: 1621

PostForum: Shoot the Breeze   Posted: November 20 2002, 10:24 AM   Subject: Just a (controversial?) thought
Thanks for sharing that Tom. I too will now have a different opinion of Geraldo.
Marg
  Topic: Coping with opposing views with regards to Down Syndrome
Marg

Replies: 8
Views: 913

PostForum: Questions   Posted: June 05 2002, 7:58 PM   Subject: Coping with opposing views with regards to Down Syndrome
Barbara,
There was a family that posted often about two years ago who were in a similar situation. The Dad went through a terrible time from their prenatal diagnosis through their little boy's AV can ...
  Topic: coping with the news
Marg

Replies: 17
Views: 2258

PostForum: Questions   Posted: June 05 2002, 11:05 AM   Subject: coping with the news
It gets easier each day. Give yourself time. Its perfectly normal to feel the way you do now. Todd is 5, one of the older kids for this site. He brings lots of love and joy to everyone around him. He ...
  Topic: speech survey
Marg

Replies: 4
Views: 743

PostForum: General   Posted: February 01 2002, 10:21 PM   Subject: speech survey
Amy,
Dr. Kumin is a big proponent of early speech intervention.
They do a lot of oral motor therapy early on. That is one of the things I think we really missed when Todd was very young since we liv ...
  Topic: speech survey
Marg

Replies: 4
Views: 743

PostForum: General   Posted: January 31 2002, 7:42 PM   Subject: speech survey
I think I found the problem with the link. There is a period at the end of the address that should not go with the website address. Try it without http://www.loyola.edu/speechpath
It should work then ...
  Topic: speech survey
Marg

Replies: 4
Views: 743

PostForum: General   Posted: January 27 2002, 6:52 PM   Subject: speech survey
This was sent to me by our local parents advocacy agency and I thought I would pass it along:

Dr. Libby Kumin has undertaken a study of the factors that help make children's speech more understanda ...
  Topic: Hello again
Marg

Replies: 8
Views: 1394

PostForum: General   Posted: September 25 2001, 8:37 PM   Subject: Hello again
Shannon,
So good to hear from you guys. I think of you so often. Congratulations!!!!! I can't believe Joey is a year old already.
Marg
  Topic: Newly diagnosed
Marg

Replies: 7
Views: 655

PostForum: Introductions   Posted: August 18 2001, 6:06 AM   Subject: Newly diagnosed
Vicki,
First, congratulations!
Everyone feels the way you do for a while. Give yourself time to grieve. You have experienced a loss. It is perfectly normal and acceptable to feel bad about it. Now ...
  Topic: Dr. probems?
Marg

Replies: 10
Views: 1314

PostForum: Questions   Posted: April 14 2001, 7:33 AM   Subject: Dr. probems?
Hi Cammy,
I don't think you're being overprotective. I think the most important thing you need is a doctor that you can communicate with. It is hard sometimes to find a Dr. that has a lot of backgrou ...
  Topic: News
Marg

Replies: 10
Views: 1203

PostForum: General   Posted: April 04 2001, 10:26 AM   Subject: News
I am so glad to hear that everything is Ok with Joey. The suspense has been killing me too. I've been so worried. I know this is a very busy time for Jef and Shannon so thanks Emdad and Ruth for updat ...
  Topic: THE PINTO IS HOME.
Marg

Replies: 18
Views: 2457

PostForum: Introductions   Posted: January 19 2001, 10:06 PM   Subject: THE PINTO IS HOME.
Jef,
So glad to hear that Joey is home. Thanks for keeping us
up to date. Time will go so fast. Todd turned 4 this week
and it is hard to remember those first few months. His surgery seems so long ...
  Topic: HE WENT UNDER THE KNIFE
Marg

Replies: 12
Views: 1705

PostForum: Introductions   Posted: January 06 2001, 5:02 PM   Subject: HE WENT UNDER THE KNIFE
Jef,
I'm sorry Joey is having such a rough time, but it sure is good to hear you sounding a little better. We think of you and Shannon and Joey often. Thanks for keeping us informed.
Marg
  Topic: New Mom & Dad
Marg

Replies: 5
Views: 860

PostForum: Introductions   Posted: January 06 2001, 4:58 PM   Subject: New Mom & Dad
Hi Kate's Mom,
First, don't be so hard on yourself. Many of us have those feelings at the beginning. I too had a c-section and Todd was sent to another hospital because he also had A/V canal defect a ...
 
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