DownSyn Forum

what a wonderful list!

p.s. thanks Mary for mentioning this for me. Smile

oh McKenna, I'm so sorry that I am just seeing this message now.

I am doing fine, just not quite ready to be online.

Thank you for asking about me.

I didn't even know you read my blog. lol. ...

Thank you Leah for adding to the mix. Unfortunately, I have been very stubborn about assessments. I don't have any idea about where she is in terms of cognition or age approximations. I simply refused ...

Carmen, I do believe Elainah and Jaemen would be wonderful friends! Thank you so much for sharing. I'm off to work in just a bit, but I will be pm'ing you later today.

Helen, I am glad to read I am ...

Oliver's mommy, glad to hear I am not alone!!!

Cathy, yes E is in preschool. She is at a developmental preschool 12.5 hours per week. She gets speech and OT for her sensory issues.

Here is abou ...

Whoops....two people responded while I was typing.

I will be back in just a bit to respond.

Christina:

As the parent of an almost adult son with ADHD, I don't believe that this is my E's issue. In fact, most case studies show that girls are more likely to be ADD not ADHD. Either way, I do ...

I don't know about food additives...she doesn't eat much at all. She doesn't drink juice she refuses, she was drinking Pediasure, but she won't do that anymore either. I have switched her to lactaid b ...

My three year old is having some major behavioral issues and I was hoping to get input, suggestions, advice, or tips on how to curb these behaviors. I have talked with her pediatrician and I am waitin ...

Nope. No luck here. She is now running off to hide when she has a bm, I try to get her on the potty, but she proceeds to have a mini meltdown.

I know she knows when she is going. She tells us as s ...

Your most welcome Diane. I knew Tom would have lots of wonderful tips and advice, I'm glad you posted this.

hugs.

Actually her health isn't much better. But her coping mechanisms to being sick are. She actually has a fever during this little photo shoot.

She has one more often than not. We have been without M ...

How wonderful!!!

http://farm2.static.flickr.com/1229/1425063429_952759eb96_m.jpg
Miss E is very strong, especially in her upper body. She is a climber, oh does she climb. She loves the outdoors. One of her new favori ...

Fabulous news!!! Thank you.

Diane...here are some threads that show other people who have had the same problem as you are.

oedemera.com is the blog spammer that has highjacked your old blog and address.

http://groups.googl ...

They were being stored on my flickr account. I deleted them hours ago...and they are still showing.

I have emailed flickr about how long after something is deleted on their server it disappears en ...

Elainah was on thickened liquids for almost the first two years of her life. We used Thick It II. It goes through the bottle so much easier.

We bought silicone nipples and created a little larger ...

She is adorable!!!

I have an Elainah. Very close in spelling. Congrats on your new baby girl.

So....I deleted the photos on flickr for the header and background, but they are still there. I wonder why that is as well.

Tom, is there anyone we can try to report this to, or will this blog cont ...

Diane took her blog down and moved it to another address. The old blog address then became available. Someone used her template, well portions of her template and her old address and added some of tha ...

Wonderful photos! It looks like she had a fabulous time.

FABULOUS NEWS!!!!

He is adorable. Congrats!

So glad to hear you managed your big event so wonderfully!

Great work Avery!!!

Look whose beautiful face I saw in the IDSF common bonds newsletter today:

http://farm2.static.flickr.com/1212/1398998942_bc5a8bf272_o.jpg

Thanks so much, but I probably should have updated to add we were all set now. I do appreciate it though.

The HADSA group located in the Cedar Rapids/ Iowa City area has started their own little forum. Being born in raised in Iowa, and knowing many people in this group from the birth of Miss E, of course ...

Congrats!!! He's beautiful.

What a huge relief. Big sigh.

Wow. what a day. I am so glad you were able to get the test done. I hope the answers are positive.

I know the SSI is good no matter where we are as long as in income meets the criteria. I'm asking if there is an additional payment, called a state supplement, provided by the State of Indiana. There ...

I was wondering if anyone from Indiana knew if the State pays an SSI supplement payment (meaning additional money above and beyond what one would receive from the Federal payment).

In Michigan Miss ...

I sometimes feel like I have cheated Miss E by not getting her better services, but I fought all the way to the State level and they insisted she didn't qualify for PT or OT based on her Batelle and o ...

We can't not brush her teeth...it would only get worse if we didn't do it. As it is we only brush once a day now. I know this is pretty common with kids who have sensory issues...and I know it really ...

That link goes to the diapers thread. opps.

Well...I'm so very glad your directing me. I have been swamped with work and not much time to read the boards...so I didn't search either time.

Thanks.

Does anyone have any tips for sensory children who absolutely despise having their teeth brushed? In order to brush Miss E's teeth, I must wrap her body in a sheet, to keep her arms and hands out of t ...