DownSyn Forum

Just thought you'd like to know there is an adult woman on the NADS web site with Mosaic Down Syndrome. She calls herself "Yuvette" although that is not her real name (she posted her real na ...

I would suggest genetic counseling. They can tell you what your risk is given your age and history. There is one type of Down syndrome which can be inherited (Transloction Down syndrome) and they can ...

I have to reply to this...I don't mean to upset anybody. I hope they do all they can to help people with mental retardation function better in every way. Of course, IQ is not what makes people valuabl ...

Good question. I haven't found an answer yet, but look around this site for some good info http://www.ds-health.com/

. [Edited by Vicky on 03-18-2002 at 05:56 PM]

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[Edited by Vicky on 03-18-2002 at 05:56 PM]

We understand "hectic." Thank you for this site. Good lick with the job search.

I saw this post on another DS Web site and thought it was worth passing along:

I ran across this in the doctor's office yesterday, and thought I would share some excepts.

"...I don't learn ...

You sound upset...I did not mean to offend. I just cannot believe that in the USA someone (legal adult) would be required to take a medical test against their will. My doctor offered me both tests wit ...

"required?"

I thought this was sore of an interesting side note to what started this whole thing...A couple of Sunday's ago when I was picking up my son (no DS) from Sunday School the balloon they had given him p ...

In my opinion Nicjoe is an extrodinary person in the way she handled finding out that her child has DS. Many people like me find the news to be shocking and hard to accept. Some people in our lives di ...

We are trying very hard not to let other people's opinions about how we should treat our daughter push us into doing something that we would not have considered for our other child (no DS). I would no ...

I don't know if this helped, and with all the conflicting advice we get sometimes, I wouldn't be surprised if I heard that it was the wrong thing to do, but...

Recently we got Emma one of those to ...

Sounds like Anna is at about the same stage as Emma. Sometimes when she gets up and going, she gets really excited and tries to go too fast, then, plop, down on her bottom (hopefully) she goes. But sh ...

Sorry, I can't be of much help. Our Emma had some breathing problems and was not strong enough to breastfeed. We were told that I could have pumped every 2-3 hours until she could handle getting breas ...

Thank you all for your responses. I know that letting it go is the thing to do...he probably hasn't given it a second thought, while I agonize over it every Sunday. I just wish I could clear the air s ...

Here's something that been on my mind for a while...A few weeks ago I overheard a man at our church say "I felt so retarded," and "I felt like such a the r-word" in a conversation wit ...

The two things I have heard of are squeezing the juice into their mouths like Rita suggested and getting a little liquid (your kid's favorite) into the end of a straw (by holding the other end with yo ...

OK, you surprised me! Thank you dear Jeffrey. I love you very much.

Emma has had two hearing tests. Both of them were done while she was asleep or sedated. They attached electrodes to her head, played different frequency sounds into one ear at a time and recorded her ...

Emma first got started holding the little 2 ounce size bottles they used in the hospital nursery, they came pre-filled with formula. We were given a couple cases and saved the empty ones. They are ver ...

Summer's Dad... nothing is wrong with discussion, but you implied that I was pushing my child to the point of tears, and that's not true and is upsetting to me. I felt that getting a taste of what it ...

Gee, I didn't mean to start such a controversy. My daughter had fun in her chair...seeing the world from a different perspective, using her hands, banging toys on the table. It's not like we strapped ...

I found a web site that has the kind of chair that Emma used (the "regular" corner chair). We found it very helpful until she was able to sit well on her own. The corner design allowed her t ...

I think my husband mentioned this somewhere on the site before, but anyway... When our daughter was 6-7 months old, her "infant developement specialist" loaned us a "corner chair". ...

My son (4 1/2, no DS, potty trained) plays with himself every chance he gets. I try not to make too big a deal out of it, except to say that there is a time and a place for such things. I'm sure it's ...

My heart did a back-flip when I read the subject of you post. So glad that Joey is home. I know now that no matter how sad I get sometimes because of Emma's DS, I would be sad beyond measure without h ...

I am so sorry to hear that Joey is having such a hard time. My prayers are with you and your family.

I'm not quite sure what to say, but my experience (emotionally) and change of attitude sound muc ...

What a sweetheart! I recognize that smile and expression of pure joy from my own baby girl, Emma.

Jef,

In my opinion Brenda is being a little too hard on you. You've been through quite a shock. You didn't sign up for this and it takes time to adjust. Just because you are finding it difficult to ...

I am so sorry to hear that your son needs surgery. We were "lucky" (I still have trouble using that word, if you know what I mean), we are told Emma's small hole will not need an operation. ...

I don't know if this applies in your area, but here in San Diego we have something called the Regional Center that helps poeple find and pay for services. We were told that if our insurance comes to a ...

First, remember that all babies are different. That said, here is what my 16 month daughter did and when. When she was around 6-7 months, she could roll from her back to her tummy and back again; also ...

Well, I'm glad to hear that Mikey is OK now, even though it is a bit of a bummer for him to get the stomach flu just when he got home from the hospital. (It's always something!)

I hope Mikey stays ...

This may be off the subject a bit, but yes, most of the Down Syndrome babies are BORN to women under 35. However, this has nothing to do with any given women's chance of conceiving a child with an ext ...

Jef,

First of all, I want to thank you for your honesty. I think that many other people shared many of your feelings when they first learned the news of their child's DS. I know I did. Please belie ...

I don't have much to add to what's already been said. When my daughter was born, I wasn't sure I'd ever be able to she her as "just a baby" and not "my little Down Syndrome." I tho ...

Welcome to you and your family. I'm sure you will find this site as helpful as I have over the past year or so. Keep us posted on your baby's surgery. Meanwhile, our prayers are with you.

That's so cool! It must be so exciting to have that kind of communication beginning to happen. Let us know what sign she learns next.

My Miss Emma (14 months) sat up all by herself today! I put her down on the family room floor and went to get her a bottle in the kitchen, when I came back around the corner, I saw her sitting up! I ...