DownSyn Forum

We just took Willie to a movie. We doesn't like loud noises. We took ear plugs. He put them in and munched on popcorn. He had a great time.

I just had to laugh at your post. I know it isn't a funny time, but I remember it well! Willie is seven now and that first year was rough. He was in the hospital the first six months. We also had the ...

The cardiac cath was a difficult time for us. He had a hard time after the procedure for a few hours. It tore my heart out when they took him away. I didn't expect them to just come and take him. I do ...

Has anyone heard how Joey (the Pinto) is doing. I haven't heard anything since he came out of surgery.

I don't think you are overreacting. It is always scary when your child has surgery!

Willie had the surgery when he was two. It was so blocked they had to work a bit longer than they expected. He lo ...

I will be thinking of you. Our fourth child has DS. It is quite a shock. Willie had surgery when he was 6 months old. It is a difficult time. It does get easier.

We'll be thinking of you.

I live in MN too. It seems like so long ago when we started that I just can't really remember what the school demanded. I do know that a social worker came when he was in the hospital and signed him u ...

Congratulations!

I am so impressed that you have the patience to home school. I think it is a neat thing to do with your children. I can't imagine doing it though.

My son is just turning three. ...

My son, Willie, had surgery when he was 5 months old. It is awful when they come and take your child. It is amazing what a difference it made for Willie. He has done so well since the surgery.

I ju ...

I have tried all those creams on Willie. We also tried udder cream. None of them really helped. Now he has a prescription for Hydrocortizone cream .2%. We had tried the over the counter kind. His poor ...

I couldn't pass up writing this, Boy, do I know what you mean too!

Willie was 6 months old, still on oxygen and not thriving or doing anything except struggle to breathe. His holes were pretty smal ...

My son, Willie, was born almost 3 years ago with DS. He is also my fourth child. My oldest son, Isaac, ( Cool

was in school and Willie and I were in the hospital and, of course, we were blown away when w ...

Pam,

I understand what you are saying. I love my son dearly, he is 2 1/2 years old. Sometimes it just seems like if you tell everyone about the DS you are giving people more information than they w ...

Wow, too many questions and too much to think about. I also agree with inclusion. I don't know if I want it for Willie at this time though. Our school district doesn't currently have any child needing ...

I was told that Willie "wouldn't fit in" at our local public school. They have NEVER had a DS child. Imagine that! I'm from a town with about 300 people. The closest town with preschool has ...

My son will be three in January. He had some developmental testing and was very close to the "normal" range in most areas (speech is slow). He was going to start school in January, but now t ...

My kids also go to a private school (with 12 of their cousins). My son is 30 months old now and I was talking to the principal about sending Willie. She said they try and only have kids there that are ...

Thank you for sharing! Courtney made my day. What a beautiful little girl.

Karen

My son has always had a low WBC. They never seem too concerned. He just gets sick whenever he is around someone who sneezes! We try and let people know to stay away if they aren't feeling good.

So ...

My son was on O2 all the time. I can't remember how much he needed, but I know it was very little. He had a small VSD. They didn't want to do surgery. They figured his lungs were just bad. He was in t ...

It is so nice to hear other people struggle with the same problems. My son is 2 1/2 and so very full of energy. My sister does daycare. She suggested that I was just too easy on him. She took him for ...

We use the series. We started when Willie turned 2. I think they would be great for a younger child. I took them to our speech therapist. She thought it was a great idea to play the audio tapes. You c ...

I just love reading your posts. Your son seems to be about the closest in age to Willie. He is 30 months. Jared sounds like he is doing great. It is so exciting. Congrats!!!

Karen

I hardly remember my son's first birthday. His first year was pretty hard. His health wasn't too good and it was a lot for our family to get used to.

His 2nd birthday was in January. We did have a ...

My mom used to work with the mentally challenged when I was growing up. (They scared me.) My mother-in-law had never been around anyone who wasn't "perfect." My son is now 2 1/2 years old. M ...