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  Topic: toddler behaviour emerging or something more?
always_chaos

Replies: 16
Views: 319

PostForum: Questions   Posted: October 16 2006, 10:52 PM   Subject: toddler behaviour emerging or something more?
Well I am with everyone else. Sounds like toddler behavior to me.

Miss E feeds herself--and when I mean she feed herself, no one had better try to feed her. She will scream in protest and refuse to ...
  Topic: Name of the lady writing the book about Ds Pls help
always_chaos

Replies: 6
Views: 203

PostForum: Questions   Posted: October 11 2006, 5:59 AM   Subject: Name of the lady writing the book about Ds Pls help
Oh no, I don't have you confused with Jennifer. I know Jennifer--she already wrote a piece for the first volume.

I was hoping you would write something about your Aden--since you were asking about ...
  Topic: Short video of Gianna reading
always_chaos

Replies: 13
Views: 252

PostForum: Brags   Posted: October 11 2006, 12:35 AM   Subject: Short video of Gianna reading
Wonderful!!!!!!!!!!
  Topic: He's Everywhere
always_chaos

Replies: 9
Views: 189

PostForum: Brags   Posted: October 11 2006, 12:33 AM   Subject: He's Everywhere
Way to go Carson!!!!
  Topic: Name of the lady writing the book about Ds Pls help
always_chaos

Replies: 6
Views: 203

PostForum: Questions   Posted: October 11 2006, 12:31 AM   Subject: Name of the lady writing the book about Ds Pls help
Oh Aden's mummy, I hope you will consider writing for Vol. II.

Information about how to submit for Volume II can be found at: http://giftsds.segullah.org/Gifts_vol_II.htm

Thanks Stephanie for pr ...
  Topic: Koby brags....
always_chaos

Replies: 29
Views: 1108

PostForum: Brags   Posted: September 28 2006, 12:33 AM   Subject: Koby brags....
Go KOBY!!!! Miss E will be your cheerleader Smile
  Topic: Serivce Question
always_chaos

Replies: 9
Views: 341

PostForum: Questions   Posted: September 05 2006, 7:13 PM   Subject: Serivce Question
The Guidance center sent a family advocate to our house once a week--who did nothing more than visit for that time. It wasn't helpful in the least, and she did not qualify for any services through the ...
  Topic: Serivce Question
always_chaos

Replies: 9
Views: 341

PostForum: Questions   Posted: September 04 2006, 11:25 PM   Subject: Serivce Question
Oh I wish Miss E had services.... Sad

All she gets is a teacher two hours a week. She often shows up late and then leaves early. I have actually been considering dropping EI all together.

Our dev ...
  Topic: Hi Bryan's Mommy Here
always_chaos

Replies: 20
Views: 1186

PostForum: Introductions   Posted: September 02 2006, 11:29 PM   Subject: Hi Bryan's Mommy Here
Welcome my friend, I am so glad to see you here too! Smile
  Topic: scar tissue under tongue
always_chaos

Replies: 2
Views: 152

PostForum: Questions   Posted: August 31 2006, 12:00 AM   Subject: scar tissue under tongue
Elainah has this problem, our pediatric dentist said it was from chewing on her tongue.
  Topic: Tongue chewing
always_chaos

Replies: 4
Views: 210

PostForum: Questions   Posted: August 30 2006, 11:59 PM   Subject: Tongue chewing
Elainah has small scars on the bottom of her tongue from doing this. She does it when she is tired. I try to deter her, but I am not always successful.
  Topic: thickening formula
always_chaos

Replies: 9
Views: 333

PostForum: Questions   Posted: August 30 2006, 11:58 PM   Subject: thickening formula
Gerber makes a silcone nipple that you can get at Walmart that is NOT y-cut but is just a fast flow nipple.

We thickened feedings with rice cereal and thick it 2 in the beginning, then we weaned he ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 30 2006, 11:53 PM   Subject: Reflux problems ... when to increase Prevacid dosage???
Elainah had endoscopy done at just before four months old...they could tell then that she was already having damage from reflux.

The theory on being backed up on the poopy makes sense to me, but I ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 29 2006, 12:26 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Hello Rae,

What amazing new photos you have put in your siggy Smile

Can you tell us more about a ph probe? That is one of the possible things that may be done when Elainah has her triple scope.

...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 9:51 PM   Subject: Reflux problems ... when to increase Prevacid dosage???
Sending many positive sleeping vibes from our house to yours. Please update in the morning Smile

Good night sweet Payton, may you sleep blissfully and have plenty of wonderful dreams.
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 9:21 PM   Subject: Reflux problems ... when to increase Prevacid dosage???
Hi Bethany,

I also found this on the backside of the insert says the following:

equal to or less than 30kg = 15mg once daily for up to 12 weeks
equal to or greater than 30kg = 30 mg per day
...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 11:36 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Well, at first we knew because she would cough after a feed as a newborn and milk would shoot out her nose. Then she has a swallow study done that confirmed it.

She was on thickened liquids until ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 11:24 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Let us know how it works Smile I'm hoping she gets some relief.
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 11:12 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Wow this thumbnail looks huge. Ok, you can't see anything really because the room is dark. Elainah is in my arms sound asleep. She is not snoring...this is the crappy sound that she has EVERY morning ...
  Topic: Croup vs. Asthma
always_chaos

Replies: 8
Views: 353

PostForum: Questions   Posted: August 28 2006, 11:08 AM   Subject: Croup vs. Asthma
I was told that croup is simple a swelling of the upper airway that can be caused by anything. Elainah had croup with every URI and even with most colds. She too had those treatments for the upper air ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 10:53 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Oh, and I don't know what we do about Miss E and her reflux, but it is a general consensus by her ENT and pulmonary that she is not only having reflux...it is the reflux that she is aspirating while s ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 10:51 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Elainah weighs 26 lbs. 2 oz. and she is 25 months old.

Yup, that scenario you described sounds like reflux to me Bethany.

It couldn't hurt to have her ears checked, but it doesn't sound like i ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 10:48 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
Wow, that's an interesting idea. I didn't know about the differences in how Zantac and Prevacid worked either...thanks for the information Georgianna.
  Topic: Diapering/potty issues
always_chaos

Replies: 6
Views: 252

PostForum: Questions   Posted: August 28 2006, 10:46 AM   Subject: Diapering/potty issues
I have never changed poo while standing, but Miss E's is so loose that it often takes a large quantity of wipes just to get it off of her. She has never had a problem with constipation ever. Our pedia ...
  Topic: Reflux problems ... when to increase Prevacid dosage???
always_chaos

Replies: 32
Views: 986

PostForum: Questions   Posted: August 28 2006, 10:35 AM   Subject: Reflux problems ... when to increase Prevacid dosage???
From what I was told Miss E was on the max dose for her weight at one packet per day. The pulmonologist we saw last week said it's not working. Our GI appointment was rescheduled until October.

The ...
  Topic: Diapering/potty issues
always_chaos

Replies: 6
Views: 252

PostForum: Questions   Posted: August 28 2006, 10:28 AM   Subject: Diapering/potty issues
For several months Miss E was using the potty. While it was rather hit or miss, she did actually sit and go a few times a day.

Now she totally refuses to sit on the potty. I am ok with that because ...
  Topic: Elainah escaped outside-security has been stepped up
always_chaos

Replies: 16
Views: 522

PostForum: General   Posted: August 26 2006, 5:01 PM   Subject: Elainah escaped outside-security has been stepped up
Well, I have successfully nipped the cabinet and drawer action in the butt. I have also managed to successfully keep the pantry door closed, so no more cans and jars on her toes.

My dad rescheduled ...
  Topic: Elainah escaped outside-security has been stepped up
always_chaos

Replies: 16
Views: 522

PostForum: General   Posted: August 26 2006, 10:40 AM   Subject: Elainah escaped outside-security has been stepped up
Thank you for all the comments, I apologize for not replying sooner. My life has been rather chaotic preparing for school and working on the book.

I am so glad to hear that I am not the only one wh ...
  Topic: Our trip to pulmonology---fall and winter woes.
always_chaos

Replies: 7
Views: 190

PostForum: General   Posted: August 26 2006, 10:37 AM   Subject: Our trip to pulmonology---fall and winter woes.
Thank you for the comments. It is nice to know people still read my threads even though I am not around here as much as I used to be Smile

I miss you guys!!!
  Topic: Kennedy Friday Afternoon Update
always_chaos

Replies: 53
Views: 1213

PostForum: General   Posted: August 25 2006, 11:29 PM   Subject: Kennedy Friday Afternoon Update
Sending many positive thoughts and prayers from our family to Renee's. I hope Kennedy is doing better tomorrow.
  Topic: Our trip to pulmonology---fall and winter woes.
always_chaos

Replies: 7
Views: 190

PostForum: General   Posted: August 25 2006, 11:22 PM   Subject: Our trip to pulmonology---fall and winter woes.
Thanks for the suggestion, he chose Flovent and Atrovent because he felt the typical meds actually weaken her bronchial tree thereby creating a disadvantage rather than a benefit. He explained that ma ...
  Topic: Our trip to pulmonology---fall and winter woes.
always_chaos

Replies: 7
Views: 190

PostForum: General   Posted: August 25 2006, 10:55 PM   Subject: Our trip to pulmonology---fall and winter woes.
The pulmonologist switched Miss E’s medication from nebulizer treatments to pumps with spacers. She has moved from Xopenex, a medication she has been on since birth to Flovent. She is also switching f ...
  Topic: Elainah escaped outside-security has been stepped up
always_chaos

Replies: 16
Views: 522

PostForum: General   Posted: August 22 2006, 10:42 PM   Subject: Elainah escaped outside-security has been stepped up
This morning we had a frightening experience, as Miss E quietly crept out bed, down the hall, and into the living room. She managed to open the sliding door and then the screen and then gained access ...
  Topic: Nutramigen???
always_chaos

Replies: 17
Views: 618

PostForum: Questions   Posted: August 21 2006, 9:23 PM   Subject: Nutramigen???
Elainah was on Alumentim which is similar to Nutramigen. The reason it stinks is because it is predigested...now how do they accomplish that without using a digestive system?

I think that many form ...
  Topic: gotta brag on my boy. . .
always_chaos

Replies: 17
Views: 597

PostForum: Brags   Posted: August 21 2006, 9:14 PM   Subject: gotta brag on my boy. . .
Wonderful news!!!!
  Topic: Concentration Levels of our children
always_chaos

Replies: 2
Views: 178

PostForum: Questions   Posted: August 21 2006, 9:10 PM   Subject: Concentration Levels of our children
Elainah stays on the go 24/7. She often chooses not to be engaged in activities that require her to sit still or focus...although she can maintain focus on things like

-emptying out the cabinets
- ...
  Topic: tongue questions
always_chaos

Replies: 7
Views: 284

PostForum: Questions   Posted: August 21 2006, 9:05 PM   Subject: tongue questions
Wow, first I have to say, my has Larkin grown.

Now about tongues...

I have never heard of that, but it sounds very painful. I mean there are a number of very big arteries in your tongue and it ...
  Topic: Can't keep up!
always_chaos

Replies: 14
Views: 436

PostForum: General   Posted: August 21 2006, 9:01 PM   Subject: Can't keep up!
Thanks for the update...and I too am guilty of not being able to keep up. I am still missing the new posts link so that you can see the latest hits...and the new colors are just awful on my eyes, it' ...
  Topic: Pictures of Max, hope you's enjoy his smile as much as I do!
always_chaos

Replies: 15
Views: 766

PostForum: Introductions   Posted: August 21 2006, 8:59 PM   Subject: Pictures of Max, hope you's enjoy his smile as much as I do!
He is a cutie!
  Topic: I got pictures
always_chaos

Replies: 11
Views: 452

PostForum: Introductions   Posted: August 21 2006, 8:59 PM   Subject: I got pictures
She is just adorable!
 
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