DownSyn Forum

I don't get to this sight as often as I'd like the kids are a handful for my wife and I.
We have 3 ,Julia 9 with Down Syndrome our 6 yr old who has ADHD-depression and our 4 yr old with Autism.
Of ...

Far away looks...i used to call it "Julia's World" she used to just sort of shut down...actually she still does but not to the degree she did when she was a baby..
as to the fluid in your ...

One of the only things my wif and i really disagreed about with Julia was this we had Julia on Nutrivine for quite a while...and to be quite honest i did not think it was something that did her any ...

I have been coming to this site for a long time .i only post ocasionally but it is true there is a lack of fathers here..
I also go to a ton of things geared for our kids and i also see a huge lack ...

I've seen T-Ball and bowling and a few others,Julia loves those also Dancing...
A lot of the kids in our group love to dance and she loves her dance class just the general moving about to music is a ...

Someome once told me that one of the only good things about pain is you don't remember it.....they were wrong...yet...

Being 8 years away from those first weeks i can still almost taste the anguish ...

Julia is now 8 yrs old and we have been through 6 sets of tubes and each new set has shown a dramatic increase in her hearing and her general well being.
Those esr infections HURT..
She developes a ...

My daughter Julia is turning 8 in a few days so we don't qualify as "New" parents ...except for the fact that every day seems to bring with it something new....
I've been coming to this for ...

hello folks, it's been another year i last posted when Julia turned 7.it's been a very buzy year and although i dont post very often i do stop by when i can.
Along with Julia and her issues with Down ...

Over the years that we have had Julia[she's going to be 7 this year]I have heard many uncaring things from well meaning people and on some days i have more patiance than others....I use a few stock li ...

with Julia it leveled off with the Dr.s after about a year and a few months so take heart the worst is over soon.

i've had the same thing happen and after the early anger we calmed down and just called another and another until we got one....
someone here also mentioned assests and children with DS or and disab ...

Julia is a very picky eater even at 6 but the hell we went through early.... but after having spoken to the baby doc's even with our other kids if they get some milk and their vitamins the'll eat when ...

Julia was as an infant and even now as a 6 year old VERY sensetive to particular noises and the vacuum to the point that we can't use it when she is in the house..

She also has issues in movie the ...

hi folks it's been a while since ive been here what with 3 kids in diapers and work and ...you get the drift......
Some of you may know me and my daughter Julia some not....a brief introduction

Ju ...

Julia is five now and she is going to kindergarden and today was her school picture and she got to wear her "pretty" shoes which for her means she gets to wear a dress...although my daughter ...

thanks for the info........We've been real good just REAL buzy With Julia being four and her sister being 18 months and with another on the way in Oct. and a new job i haven't been able to get time ...

I have a friend who has a child with what they think is mossaic down syndrome..as my daughter ha trisomy 21 i haven't read much of mossaic...any help would be well thanked bob julia's da da

Julia rations out her kisses so when you get one it's special and she will give these chest squeezing hugs gotta love em

MY DAUGHTER JULIA WAS A FULL TERM BABY ..WHEN SHE CAME INTO THE WORLD WE HAD NO IDEA THAT SHE HAD DS. MY WIFE WENT IN FOR A ROUTINE DR VISIT AND 3 HOURS SHE WAS BORN BY WAY OF EMERGENCEY C-SECTION.... ...

How to handle "RETARTED" is going to be a life long thing,due to the fact that most people still think of kids with DS as "Retarted" Hell i did too not long ago..... i didn't mean ...

When Julia was born with DS my wife and i were thrown for quite a loop,we being older [i was 41 my wife was lets say .......... like im going to go there LOL} we had genetic testing done BEFORE Juli ...

I really don't have any good comebacks but you are right people will say the damndest things.
I always seem to get "THEY are such good natured kids" well i usually respond:"then i gues ...

Did you go to an ENT or a regular DR?? An ENT should be able to help you discover just WHY there is a hearing loss. In my daughters case it was fluid buildup.Tubes in her ears and clearing out of th ...

Once a month we take Julia to St.John of God, aplace where she gets her IE therapy and such...it's called a play group because the kids do just that play with other kids around their same age group.I ...

About a year ago Julia had tubes put in her ears she also had her adnoids taken out.She had been through a series of ear and sinues infections,Since then she has had maybe one or two infections.
The ...

Julia has been on it since about 2 months and i am the cynic of the family. a good web page is: http://www.altonweb.com/cs/downsyndrome/index.htm?page=adopt.html good luck bob julia's da da

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When Julia was born with DS and several very serious health issues my sister in law was in the hospital......let me tell a little story..My wife went into the hospital to give birth and i was called a ...

Julia got her first tooth at about 14-15 months.It was one way in the back,and from then on they started to come in at random al in her mouth.They also came in SHARP!!!!!! we called them Sharks teeth. ...

I see the video's behind him..if he is like Julia i bet you have seen them about 300 times each lol {i thinkif i see Tarzan 1 more time i might scream} but the kids love em

Thats quite a good looking young man you have there

re:Forum Ideas
Hi.Tom i was thinking a specific forum for health issues common to all of our children.such as Heart Problems,Hearing and ear problems,language issues etc.... I know i could use the g ...

For the past 2 plus years we have been trying to help Julia with her comunication skills and FINALLY!! a light at the end of the tunnel!!She walks around with her little fingers doing Itsy Bitsy Spide ...