DownSyn Forum

Even though Easter Seals runs the program, it's over seen by the State Department of Special Education. I would contact them right away! Which...of course...would be Wednesday! UGH!

UGH! Unfortunately no, most districts do NOT have a behavior specialist! It just really depends upon the district and the needs of the students they serve. So you ask the social worker, "Tell me ...

12 days of Christams...but don't let the beginning fool you. GREAT video!

http://www.youtube.com/watch?v=2Fe11OlMiz8

When Angela was born, we were very much in your shoes, except that she didn't have her first major surgery (nissen and gtube) until 11 months. That whole first year I kept telling myself, "If we ...

Just a suggestion...

I haven't had to deal with this the way you are, as we didn't find out till birth. But, like someone suggested, everyone will take YOUR lead. My family certainly did! The day A ...

So Lisa, did she have a blast? Can't wait to hear about it. We're going to High School Musical in April. Tickets will be in Angela's Christmas stocking.

Watching Angela very closely this morning. She's pushing the "very dehydrated" envelope. She's had about 14 ounces to drink since yesterday afternoon, but has lost at LEAST triple that!

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Watching Angela very closely this morning. She's pushing the "very dehydrated" envelope. She's had about 14 ounces to drink since yesterday afternoon, but has lost at LEAST triple that!

...

Blessings in disguise. I know that 's something that probably annoys the heck out of you right now, but I'm a firm believer in it! For many years I said I was "blessed enough to be poor" bec ...

I'm sorry you're having a tough day. We've all had them, and yes, the DO go away!!!

Something to remember. You had the only child with the only VISIBLE disability. Out of those 100 kids, chances a ...

UGH! I'm going to have to call a neighbor to make a run to the store for me. Dean is at work and not due home till around 4:00, and I have NOTHING here for a sick kid to entice rehydration. No way can ...

I LOVE your new siggy pic!! All of your gorgeous faces in one place, I love it!

Angela had hers done 11 years ago. She had some initial post op problems (swelling) but Ryan is already gtube fed so those problems won't be an issue for you. The most difficult thing about a nissen i ...

No, I think the letter was just saying they're seeing more of the special ed. kids with this crap (no pun intended) than the other kids because of the close contact. Usually the school notes are only ...

Lets just say this....If I get divorced for a 3rd time, it's TOM'S FAULT!

First, I got the strangest note from the school nurse yesterday. Those of you who have school-aged kids, you know how you get notes about chicken pox going around and stuff like that? It was a note li ...

I had Lymes, She had a couple ticks, BUT...both were deer ticks. If it lasts another day I'll have the ped run a titer on her. Thanks for reminding me of it!

No swelling at all. No redness. They don't seem tender to the touch, more achy. Maybe she's getting the flu or something? The blood work yesterday didn't indicate any viral anything, but a slightly el ...

That's what I wondered too, except for the temp, and her blood work showed a *slightly* elevated white count.

So yesterday we had the mystery belly ache. By late afternoon she was acting 100% back to normal. We even went to swimming lessons, came home ate dinner and she went to bed. Woke up this morning singi ...

Since he's getting heavier, does he have a fat pad? Could be the little guy is hiding in the fat pad.

Two nights ago Angela was up during the night complaining of a stomach ache, but was otherwise fine. She went to school yesterday without any problems. Last night she was up 1/2 the night, about every ...

My friend's son has a 2 vessel chord, (he is baby #5 for her) which can be an indicator of kidney issues. (I can't remember the name of it, and she's not home to ask her.) He is chromosomally fine, bu ...

I've been CPI certified for several years.

You go right ahead an post your thoughts. YES...we've all BEEN THERE! We've all seen various adults with DS and thought, "I hope my child will never be like that." Or "I will never let ...

Well, unfortunately a CI is an elective surgery, and it's MAJOR surgery. You will have a difficult time in court fighting it. It's worth the fight, but be prepared.

One of the things a DOCTOR will ...

HOORAY HOORAY!!!!! I'm so excited for you! I'm going to pray super hard that this baby stays where he/she is supposed to. (by the way, I think it's a girl.)

Why in the world would anyone thing you ...

How very cool! Your little girl is still growing up! I'd never heard of the YCA before today, so I looked it up and found there is one near us. I think this would be a FUN 12th birthday party for Ange ...

Leave it to my kid to continue to make an entire district change the way they do things. I just wish it had started for other reasons instead of the incident just before Thanksgiving!

So, a quick r ...

At this age I'd just bring a picture of her if you can. Angela goes to all meetings with me, but there are some I definetly wish she wasn't there to hear what we're discussing. Unfortunately I usually ...

Oh no! I'm sorry you were in the hospital, but I'm glad you're going home PAIN FREE!!!! What a crappy time of the year for pesky stuff like this to go on. I'll be praying that whatever it was...it sta ...

Here's some reading material for you:

http://www.med.umich.edu/oto/ci/childrensprogram.htm

Oh no! I'm so sorry to hear this! I'll be praying for a quick recovery so you can get back to a "normal" life. (we all know that normal is a relative term, right?) Hang in there!

There are only a few kids across the country with DS who have cochlear implants. You have to be prepared for EXTENSIVE training, as a child has to LEARN to use the implant, it doesn't just happen. But ...

A behavior specialist is usually one that is used district-wide (instead of just for one school.) We have a very large district, so there are 3 who cover the entire district, each being assigned certa ...

It's VERY EASY to pass judgment when you have no idea what was going on in THEIR world.

Years ago, when I was a 22 year old mom to 2 little boys, I took them to a matinée of a children's movie. It ...

Yes, drives me nuts. I can visit and read 3 other sites by the time this one loads. I know Tom's working on it. Sometimes I swear I hear a voice that says, "Please step away from the computer.&qu; ...

Jane, once they're having headaches they should already be having surgery done! I'm going to IM you an email address to another mom who's daughter had the surgery at age 6. Also, go to moyamoya.com Y ...

Ok...blog voting is back up!!!! There is only a week and a half left for me to collect 13,000+ votes. LOL I know this is impossible, but at the same time, I know the power of the internet and good fri ...

Hello and welcome! Well...you certainly got the shock of your lives, didn't you? There are a couple other families here who have had a late diagnosis. A couple of them I can see why...even to use who ...