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  Topic: What a waste of time! Ped Opthamologist appt.
momofrussell

Replies: 11
Views: 183

PostForum: General   Posted: October 18 2006, 8:42 AM   Subject: What a waste of time! Ped Opthamologist appt.
OH man.. I read this and never had a chance to respond. This just breaks my heart that a doc was so unkind and SO assuming!!! I agree it sounds like another Ped Opth might be a better bet.

WE have ...
  Topic: Please help me understand Samantha's rights
momofrussell

Replies: 7
Views: 111

PostForum: Education   Posted: October 18 2006, 8:35 AM   Subject: Please help me understand Samantha's rights
Wow... ok..where to begin....

In my advocacy training my teacher also always said, "don't ever sign an IEP"... kinda like a buyer's remorse kinda thing. But in reality, most of us don't g ...
  Topic: Please help me understand Samantha's rights
momofrussell

Replies: 7
Views: 111

PostForum: Education   Posted: October 17 2006, 10:41 PM   Subject: Please help me understand Samantha's rights
If that was their answer "we are providing what the law is" so to speak, it sounds like they may have FAPE confused with her IDEA rights if you ask me. FAPE is the Free Appropriate part whic ...
  Topic: Need some advice on speech....
momofrussell

Replies: 16
Views: 307

PostForum: Questions   Posted: October 17 2006, 10:18 PM   Subject: Need some advice on speech....
One key thing also that your ST mentioned was Daniel's receptive language skills which, to me is paramount. We sometimes forget that we need the receptive lang skills also, not just expressive. So, if ...
  Topic: Special needs classrooms vs inclusive classrooms
momofrussell

Replies: 13
Views: 172

PostForum: General   Posted: October 17 2006, 10:08 PM   Subject: Special needs classrooms vs inclusive classrooms
Well, we are at the other end of the spectrum, way at the other end, but that's ok. We have always had a self contained class for Russell and through the years, we've kept having to actually place him ...
  Topic: Helpful IEP info
momofrussell

Replies: 1
Views: 67

PostForum: General   Posted: October 16 2006, 10:55 AM   Subject: Helpful IEP info
Our PAC president sent this out and I have seen it before, it's wonderful and I use alot of these helpful hints already with Russell's IEP's. She said I could pass it along and since there are some of ...
  Topic: Megan's IEP is today
momofrussell

Replies: 33
Views: 334

PostForum: General   Posted: October 16 2006, 10:50 AM   Subject: Megan's IEP is today
GOOD LUCK!!! And yes, it's a team decision and the team will make recommendations of "appropriate" placement but YOU do get part of this say so.. a VERY big part. And you say "for the n ...
  Topic: Happy Birthday Reece!(momofrussell)
momofrussell

Replies: 5
Views: 75

PostForum: General   Posted: October 15 2006, 9:50 AM   Subject: Happy Birthday Reece!(momofrussell)
Thanks guys!!! We had so much fun and yes, Reece had the BESTEST time at her birthday party!!! We had it at one of those Little Gym type places, it was called My Gym. Lots of kids and LOTS of fun!!! ...
  Topic: Another evaluation...I'm confused now!!! Sensory Issues???
momofrussell

Replies: 15
Views: 273

PostForum: General   Posted: October 15 2006, 9:34 AM   Subject: Another evaluation...I'm confused now!!! Sensory Issues???
Oh, let's see.. there are probably lots of relaxing things to do. Massages, rocking in a rocking chair, weighted vests, brushing...it's finding what relaxes the child, KWIM? You could probably do easy ...
  Topic: Another evaluation...I'm confused now!!! Sensory Issues???
momofrussell

Replies: 15
Views: 273

PostForum: General   Posted: October 13 2006, 9:27 PM   Subject: Another evaluation...I'm confused now!!! Sensory Issues???
Makes sense to me! Wink

And I think there are plenty of kids with and without DS that are like this, very active and seeking input. There are just some of us like that and some aren't. You might nev ...
  Topic: 10 Day old baby with 4 day constipation..Is this normal ?
momofrussell

Replies: 11
Views: 220

PostForum: Questions   Posted: October 13 2006, 6:28 PM   Subject: 10 Day old baby with 4 day constipation..Is this normal ?
It is actually common for breast fed babies to NOT poop daily. Wink If you are concerned with constipation, keep an eye on how Ben acts when pooping, like if he is in pain, and the consistancy. If the p ...
  Topic: Juice Plus Vitamins
momofrussell

Replies: 14
Views: 240

PostForum: General   Posted: October 12 2006, 6:41 PM   Subject: Juice Plus Vitamins
YES.. I do believe chocolate IS a fruit/veggie!! NO? LMAO... DARN!

A.
  Topic: Juice Plus Vitamins
momofrussell

Replies: 14
Views: 240

PostForum: General   Posted: October 12 2006, 11:55 AM   Subject: Juice Plus Vitamins
Sounds like Amante can help you out too! Wink Just let me know. Her neighbor is closer the my doc LOL.. It's up to you! I never knew about the 4 month supply but I am not up on this stuff too much. I am ...
  Topic: Finally some good news
momofrussell

Replies: 16
Views: 268

PostForum: General   Posted: October 11 2006, 6:20 PM   Subject: Finally some good news
OH that's GREAT news!!! I never posted again myself but we did finally get the screening done for Russell with his lab redo and his was neg for celiac's too!

SO YAHOO all the way around!!! Very Happy

A.
  Topic: Juice Plus Vitamins
momofrussell

Replies: 14
Views: 240

PostForum: General   Posted: October 11 2006, 5:40 PM   Subject: Juice Plus Vitamins
Do you need someone locally? Or does it matter? Our doc sells them if you need someone else to buy them from Wink I can give you the number if you want it. He is in Southern IL. Just let me know.

I w ...
  Topic: I feel like I have a big lump in my chest...
momofrussell

Replies: 26
Views: 523

PostForum: General   Posted: October 11 2006, 10:42 AM   Subject: I feel like I have a big lump in my chest...
"UNTIL NEXT YEAR" LOL.. you sound like me with Russell's bdays... Wink For some reason I have difficulty around his bdays.. lots of emotions and such... but I get through it. I have alot of go ...
  Topic: My girl's got queen!!~
momofrussell

Replies: 30
Views: 530

PostForum: General   Posted: October 11 2006, 10:00 AM   Subject: My girl's got queen!!~
CONGRATS! Your girls are very pretty!!!

A.
  Topic: WE ARE HOME!!!!
momofrussell

Replies: 41
Views: 409

PostForum: General   Posted: October 11 2006, 9:57 AM   Subject: WE ARE HOME!!!!
Oh that's great Courtney!! Glad you are all home!!!

A.
  Topic: I feel like I have a big lump in my chest...
momofrussell

Replies: 26
Views: 523

PostForum: General   Posted: October 11 2006, 8:53 AM   Subject: I feel like I have a big lump in my chest...
I remember having feelings of Russell be SO small for his size (even for DS charts) and barely walking, ect.. and wanting to keep him at home at 3, but for the most part I was thrilled for the transit ...
  Topic: Did everyone have a "drive by" evaluation?
momofrussell

Replies: 17
Views: 329

PostForum: General   Posted: October 10 2006, 8:28 PM   Subject: Did everyone have a "drive by" evaluation?
WOW... never heard of it quite like that. I agree she was persistant and I am glad you were just as persistant Wink

When Russell had EC we were in CA. Our PT did our evals and reports when needed. N ...
  Topic: What A Day!!!
momofrussell

Replies: 14
Views: 274

PostForum: General   Posted: October 09 2006, 12:01 PM   Subject: What A Day!!!
VERY NICE!!! And YAHOO for the money raised! That's neat you also got to meet Maureen!

A.
  Topic: My introduction
momofrussell

Replies: 32
Views: 738

PostForum: Introductions   Posted: October 06 2006, 5:43 PM   Subject: My introduction
** A WAVES TO LACIA***

Hi there!! Glad you are here! And yes, this place IS fast paced.. I can't even keep up!!!!

Enjoy the ride!!!

A.
  Topic: Is there anything I can be doing?
momofrussell

Replies: 5
Views: 203

PostForum: PDD, Autism, and Dual Diagnosis   Posted: October 06 2006, 5:25 PM   Subject: Is there anything I can be doing?
http://www.disabilitysolutions.org/news.htm

You may already have seen this but this is Disability Solutions link to their newsletters... Vol 3, issues 5 & 6 I think it is... if you scroll down ...
  Topic: Is there anything I can be doing?
momofrussell

Replies: 5
Views: 203

PostForum: PDD, Autism, and Dual Diagnosis   Posted: October 06 2006, 5:09 PM   Subject: Is there anything I can be doing?
First off.. MANY MANY Hugs to you... after dealing with our dual DX for 4 yrs now, I still feel I have alot to learn about Russell and what to do. And that "what to do" is constantly changin ...
  Topic: I need any information you all can give me on Adderall
momofrussell

Replies: 15
Views: 286

PostForum: Questions   Posted: October 05 2006, 10:56 AM   Subject: I need any information you all can give me on Adderall
My oldest (typical) was DX'd with ADD (and ODD by the first doc we saw) and our first thing to try was the Adderal. We started with 5mgs and we kept having to up it a bit, more and more for a while to ...
  Topic: Question about tonsil surgery
momofrussell

Replies: 7
Views: 128

PostForum: Questions   Posted: October 04 2006, 8:46 PM   Subject: Question about tonsil surgery
Russell really only had a rough time for a couple days, didn't want to eat or drink, but after that he did ok. All kids respond differently. I know alot of parents that give their child pain meds (eit ...
  Topic: One mom's experience with son's "Self-Stimming"
momofrussell

Replies: 10
Views: 348

PostForum: General   Posted: October 04 2006, 3:51 PM   Subject: One mom's experience with son's "Self-Stimming"
Wow.. that's interesting Laura!!! Just goes to show that sometimes our kids do similiar things sometimes but for different reasons. I don't know if you remember or ever saw Russell do it when we were ...
  Topic: One mom's experience with son's "Self-Stimming"
momofrussell

Replies: 10
Views: 348

PostForum: General   Posted: October 04 2006, 10:28 AM   Subject: One mom's experience with son's "Self-Stimming"
Well, this is interesting to me. Russell does stim and he also does the stiffening thing... BUT.. I have never called his stiffening episodes "stimming" by any means. So, I wouldn't have eve ...
  Topic: Adam's first month in school
momofrussell

Replies: 22
Views: 494

PostForum: General   Posted: October 04 2006, 10:19 AM   Subject: Adam's first month in school
HOW NEAT!!!! He looks so jazzed to have gotten that award! Bet Mommy and Daddy were jazzed too! Very Happy

A.
  Topic: Possible back to the OR....
momofrussell

Replies: 25
Views: 414

PostForum: General   Posted: October 03 2006, 3:41 PM   Subject: Possible back to the OR....
STRIDOR GO AWAY!!!!

There .. did that help? Wink

Sending prayers for your little one!!!

A.
  Topic: Taking a break
momofrussell

Replies: 12
Views: 438

PostForum: General   Posted: October 03 2006, 1:54 PM   Subject: Taking a break
Glad you had a wonderful day!!!! My husband suffered from acid reflux bad for a few years... he was on Nexium for years (6 yrs or so). They finally told him he should have an endoscopy done to rule ou ...
  Topic: I think were being discriminated against..need some help!
momofrussell

Replies: 28
Views: 769

PostForum: General   Posted: October 03 2006, 12:40 PM   Subject: I think were being discriminated against..need some help!
I was going to say what Vicky said..... maybe the doc wrote DS on the reason FOR the PT (or whomever requested it originally) and there is no insurance code for DS. There are insurances codes for &quo; ...
  Topic: 1:1 or shadow
momofrussell

Replies: 4
Views: 188

PostForum: Education   Posted: October 03 2006, 8:44 AM   Subject: 1:1 or shadow
Yes, sitting tight is a good idea! Give them a chance to observe her and if by chance they don't, then you can do a polite reminder letter of the events and a "how can we get this taken care of&q; ...
  Topic: 1:1 or shadow
momofrussell

Replies: 4
Views: 188

PostForum: Education   Posted: October 02 2006, 9:27 PM   Subject: 1:1 or shadow
Did you put your request in writing? All requests for any IEP changes or evals really should be put in writing, this includes requests for aides/shadows. I would highly suggest you do this if you hav ...
  Topic: WHY WON'T SHE SMILE???
momofrussell

Replies: 14
Views: 390

PostForum: General   Posted: September 29 2006, 9:27 AM   Subject: WHY WON'T SHE SMILE???
I remember when Russell was young and a baby I wondered when he was going to smile. I think it took a long time. Also, for Russell, he was legally blind at the time so it was hard for him to see other ...
  Topic: Real-Life Hope Outside My Front Door Today
momofrussell

Replies: 12
Views: 293

PostForum: Shoot the Breeze   Posted: September 28 2006, 12:40 PM   Subject: Real-Life Hope Outside My Front Door Today
Oh Barbie that is very sweet! I am glad you were blessed to have them in front of you to witness such a sweet thing!!!

A.
  Topic: Stephanie is 29 today!!!
momofrussell

Replies: 41
Views: 652

PostForum: General   Posted: September 28 2006, 10:24 AM   Subject: Stephanie is 29 today!!!
Happy Birthday Stephanie! I hope you have a great day!

A.
  Topic: Ultrasound marker
momofrussell

Replies: 14
Views: 512

PostForum: Questions   Posted: September 28 2006, 9:10 AM   Subject: Ultrasound marker
Gosh, I have no advice Sad One of Russell's markers was the thickening of the neck or nuchal fold... we did have the amnio and he has DS. You have had the amnio so it's ruled out chromosomal anomalies. ...
  Topic: Family & Friends issue
momofrussell

Replies: 24
Views: 619

PostForum: Questions   Posted: September 28 2006, 9:07 AM   Subject: Family & Friends issue
Oh Kristen.. I am sorry your family wasn't there for you. I just couldn't imagine! That just breaks my heart.

I am truly sorry Sad

A.
  Topic: Eye flickering...rapid eye movement
momofrussell

Replies: 6
Views: 158

PostForum: Questions   Posted: September 28 2006, 9:03 AM   Subject: Eye flickering...rapid eye movement
Well, if they look like they are "jiggling" back and forth, it sounds like Nystagmus. But a Ped Opth would better know if that is what it is. Russell has Nystagmus pretty bad but he has also ...
 
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