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  Topic: DS Awareness Stickers!
queenk

Replies: 2
Views: 170

PostForum: General   Posted: October 05 2007, 5:53 PM   Subject: DS Awareness Stickers!
I'm loving mine!

http://i55.photobucket.com/albums/g131/kathysoper/Vanwindow.jpg[/img]
  Topic: Utah Barnes & Noble Book Fair to support GIFTS
queenk

Replies: 1
Views: 52

PostForum: General   Posted: October 04 2007, 2:43 PM   Subject: Utah Barnes & Noble Book Fair to support GIFTS
On Saturday October 13, Barnes and Noble is hosting a book fair to benefit the GIFTS Outreach program. Barnes and Noble will give the program up to 25% of all sales accompanied by a Gifts Outreach boo ...
  Topic: DS Awareness Stickers!
queenk

Replies: 2
Views: 170

PostForum: General   Posted: October 04 2007, 10:11 AM   Subject: DS Awareness Stickers!
Hi everyone,

A friend of mine owns a vinyl lettering business (peel-and-stick decorative decals). I encouraged her to create some rear-window stickers to support Down syndrome awareness. She's now ...
  Topic: Aidan in summer issue of FamilyFun magazine
queenk

Replies: 9
Views: 405

PostForum: General   Posted: August 02 2007, 3:10 PM   Subject: Aidan in summer issue of FamilyFun magazine
Saw it at my ped's office! Excellent article, Valle. Way to go!
  Topic: GIFTS: Personal experiences
queenk

Replies: 15
Views: 1081

PostForum: The Book Club   Posted: August 02 2007, 2:59 PM   Subject: GIFTS: Personal experiences
I still cry whenever I look at the photos.

I love the diversity of the contributors. Our cause is one that crosses political and philosophical and denominational lines. GIFTS is "living" ...
  Topic: GIFTS: Writing tips and suggestions
queenk

Replies: 2
Views: 359

PostForum: The Book Club   Posted: August 02 2007, 2:47 PM   Subject: GIFTS: Writing tips and suggestions
Here are some random thoughts about writing personal essays:

Read lots of personal essays.

Think about an experience or cluster of experiences that have been very powerful for you.

Do lots of ...
  Topic: GIFTS: How did the book come together?
queenk

Replies: 2
Views: 362

PostForum: The Book Club   Posted: August 02 2007, 2:22 PM   Subject: GIFTS: How did the book come together?
The first book started "growing" just over a year ago, when I decided I wanted to do a compilation of personal essays by moms of kids with DS. Women's personal writings are my passion--I'm e ...
  Topic: GIFTS: Chapters and the book's organization
queenk

Replies: 1
Views: 330

PostForum: The Book Club   Posted: August 02 2007, 2:05 PM   Subject: GIFTS: Chapters and the book's organization
I picked those categories because they were five things Thomas had effortlessly increased in my life. From what I could tell on the DS boards, other parents were having similar experiences. I also wan ...
  Topic: GIFTS: Turning an idea into a book
queenk

Replies: 1
Views: 285

PostForum: The Book Club   Posted: August 02 2007, 11:55 AM   Subject: GIFTS: Turning an idea into a book
Short answer: Keep writing! Do your homework, and don't give up!

I didn't know anything about publishing until shortly before I started GIFTS. JenEndyB gave me some info and recommended resources. ...
  Topic: GIFTS: Finding time to write?
queenk

Replies: 17
Views: 966

PostForum: The Book Club   Posted: August 02 2007, 11:32 AM   Subject: GIFTS: Finding time to write?
I write mostly during Thomas's naptime. But when we were putting Gifts together, I worked throughout the day, with him on the floor right next to my computer chair. I felt compelled to finish the book ...
  Topic: GIFTS: Another book in the works?
queenk

Replies: 6
Views: 461

PostForum: The Book Club   Posted: August 02 2007, 11:29 AM   Subject: GIFTS: Another book in the works?
I love that idea as well! We're excited to see Gifts II come together. Family members and friends of the kids featured in vol. 1 are welcome to submit, but for this volume priority will be given to st ...
  Topic: GIFTS II
queenk

Replies: 5
Views: 468

PostForum: General   Posted: July 12 2007, 10:55 AM   Subject: GIFTS II
Submissions are now being accepted for the second volume of GIFTS. Guidelines are available on our website: http://www.giftsds.segullah.org/Gifts_vol_II.htm

You'll notice that our focus is on stori ...
  Topic: Happy tears... (GIFTS)
queenk

Replies: 13
Views: 786

PostForum: General   Posted: July 12 2007, 10:13 AM   Subject: Happy tears... (GIFTS)
I'm SO happy that you ladies are loving GIFTS. Feedback like this makes every hour spent compiling the book all worth it, a hundred times over.

There's lots more info about the book on our website ...
  Topic: YOUR VOTES ARE NEEDED!
queenk

Replies: 1
Views: 186

PostForum: General   Posted: July 06 2007, 8:53 AM   Subject: YOUR VOTES ARE NEEDED!
By now you all know about the AmEx Members Project, where $5 million in funding goes to the winning community service proposal.

Right now the NDSS's proposal for a Down syndrome awareness project ...
  Topic: GIFTS is back!
queenk

Replies: 0
Views: 288

PostForum: General   Posted: January 30 2007, 4:14 PM   Subject: GIFTS is back!
The new edition of GIFTS, published by Woodbine House, now available for pre-order. Here's the link:

http://www.woodbinehouse.com/main.asp_Q_product_id_E_978-1-890627-85-0
Although they have the ...
  Topic: EA: Use of hyperbole
queenk

Replies: 14
Views: 2297

PostForum: The Book Club   Posted: January 20 2007, 2:59 AM   Subject: EA: Use of hyperbole
No no, don't go, Suz. You didn't say "judgmental" and so I was putting words in your mouth. So I apologize for that.

You raised a great point. I had to stop and wonder what's driving me ...
  Topic: EA: Use of hyperbole
queenk

Replies: 14
Views: 2297

PostForum: The Book Club   Posted: January 19 2007, 11:16 PM   Subject: EA: Use of hyperbole
That could very well be. But I don't think it's the only thing at play in our easy criticisms. Laughing

Most of my experience with EA was before my T was born. So my deepest impressions of the book ...
  Topic: EA: Puppies and Kittens
queenk

Replies: 6
Views: 990

PostForum: The Book Club   Posted: January 19 2007, 9:51 PM   Subject: EA: Puppies and Kittens
That's an interesting point about the donkeys/mules. I agree it's important not to classify kids with DS as a different species!

Here's my thought about the puppies/kittens. If I'm remembering corr ...
  Topic: EA: Prenatal diagnosis
queenk

Replies: 6
Views: 1516

PostForum: The Book Club   Posted: January 19 2007, 11:21 AM   Subject: EA: Prenatal diagnosis
Yes, I'm realizing that I need to request a thyroid blood test for Thomas, and that my ped. apparently isn't aware that such a test is indicated for every toddler with DS.

Can we call them toddler ...
  Topic: EA: Use of hyperbole
queenk

Replies: 14
Views: 2297

PostForum: The Book Club   Posted: January 19 2007, 11:19 AM   Subject: EA: Use of hyperbole
Yes. It pushes the limits of my trust. Just yesterday, in my writer's group, a friend warned me that a little passage in a book chapter I'm writing wasn't believable. "It's too specific," sh ...
  Topic: EA: Bunraku puppeteers
queenk

Replies: 6
Views: 1112

PostForum: The Book Club   Posted: January 19 2007, 11:13 AM   Subject: EA: Bunraku puppeteers
I love Anne Lamott. And yes, I think Martha's trying to keep herself excluded from the "opiate of the masses" camp.
  Topic: EA: Grief
queenk

Replies: 6
Views: 1137

PostForum: The Book Club   Posted: January 19 2007, 11:11 AM   Subject: EA: Grief
And while the scene with John reveals a lot of his interior landscape, it's still a secondhand account...I think the bare bones of what's inside us can be just too much to spell out on paper. A versio ...
  Topic: EA: Puppies and Kittens
queenk

Replies: 6
Views: 990

PostForum: The Book Club   Posted: January 19 2007, 11:06 AM   Subject: EA: Puppies and Kittens
Yes... "they" is just as lousy a term for parents of children with DS (and families that include a member with DS) as it is for individuals with DS themselves. I sometimes lapse into it myse ...
  Topic: EA: "Mother" as a verb
queenk

Replies: 5
Views: 1074

PostForum: The Book Club   Posted: January 19 2007, 11:03 AM   Subject: EA: "Mother" as a verb
Sigh--if only quantity could comensate for quality! Laughing
  Topic: EA: Angels
queenk

Replies: 5
Views: 1132

PostForum: The Book Club   Posted: January 19 2007, 11:01 AM   Subject: EA: Angels
Yes--I agree. Here's more mormon doctrine for you: We're all literal children of god. God (the father) and God (his wife) created our spirit bodies. We're all destined to grow up to be like them. All ...
  Topic: EA: Prenatal diagnosis
queenk

Replies: 6
Views: 1516

PostForum: The Book Club   Posted: January 18 2007, 9:26 PM   Subject: EA: Prenatal diagnosis
I don't have a prenatal-diagnosis story to share, but my impression is that there's still a lot of negative pressure out there. When I was compiling _Gifts_ I heard many stories about insensitive prof ...
  Topic: EA: Use of hyperbole
queenk

Replies: 14
Views: 2297

PostForum: The Book Club   Posted: January 18 2007, 9:21 PM   Subject: EA: Use of hyperbole
This writing style really captured me at first, but it got old after several reads. It feels somewhat manipulative to me now.
  Topic: EA: Bunraku puppeteers
queenk

Replies: 6
Views: 1112

PostForum: The Book Club   Posted: January 18 2007, 9:19 PM   Subject: EA: Bunraku puppeteers
Well, she's very careful to not lapse into New Age or religious terminology. She says the books that usually discuss this kind of thing are too flaky for her taste, or something like that. I think she ...
  Topic: EA: Grief
queenk

Replies: 6
Views: 1137

PostForum: The Book Club   Posted: January 18 2007, 9:13 PM   Subject: EA: Grief
That's an interesting question. I think her pain comes out in bits and pieces throughout the pregnancy account--it fuels just about every conversation and scene. It makes sense that John's comes in a ...
  Topic: EA: Puppies and Kittens
queenk

Replies: 6
Views: 990

PostForum: The Book Club   Posted: January 18 2007, 9:06 PM   Subject: EA: Puppies and Kittens
I have thought about this a lot since T was born--about how our expectations color our experience. Do I expect Thomas to be just like any other child, just a bit slower to do things? Am I going to pus ...
  Topic: EA: "Mother" as a verb
queenk

Replies: 5
Views: 1074

PostForum: The Book Club   Posted: January 18 2007, 8:57 PM   Subject: EA: "Mother" as a verb
I like the quote she includes from Patricia Holland, about how some women bear children but never mother them, and some women never give birth yet mother their whole lives. That really makes me think. ...
  Topic: EA: Adam's importance to the story
queenk

Replies: 4
Views: 977

PostForum: The Book Club   Posted: January 18 2007, 8:53 PM   Subject: EA: Adam's importance to the story
I liked it. I thought it was fascinating to have the scenes featuring Adam him juxtaposed with the story of the pregnancy. Of course, what we all probably wish for is a whole book about Adam himself.. ...
  Topic: EA: Angels
queenk

Replies: 5
Views: 1132

PostForum: The Book Club   Posted: January 18 2007, 7:16 PM   Subject: EA: Angels
Ack! The dreaded angels question!

I don't believe in angels in the way the psychic does (mystical beings that can take on human form if they desire).

I believe Adam is a human being. (As is Tho ...
  Topic: EA: Favorite scenes
queenk

Replies: 5
Views: 1139

PostForum: The Book Club   Posted: January 18 2007, 5:34 PM   Subject: EA: Favorite scenes
The line that most changed my life is John's accusal of Martha: "Why can't you love him just because he's a little boy?"

I fell apart when I first read that. I realized how conditional my ...
  Topic: EA: Read more than once
queenk

Replies: 8
Views: 1326

PostForum: The Book Club   Posted: January 18 2007, 5:08 PM   Subject: EA: Read more than once
I read EA several times before Thomas (son with DS) was born, and once afterward. Each reading has been a different experience. The first time I read, my heart busted open. I had a very strong emotion ...
  Topic: I really want a copy....
queenk

Replies: 3
Views: 404

PostForum: General   Posted: December 14 2006, 4:29 PM   Subject: I really want a copy....
Email me at giftsds@segullah.org
  Topic: Check out this soon to be released book
queenk

Replies: 19
Views: 1583

PostForum: General   Posted: October 27 2006, 11:02 AM   Subject: Check out this soon to be released book
Gifts is now available for purchase on Amazon.com. The estimated shipping wait is 3-5 days! (Earlier this week it was 4-6 weeks).

Use the PURCHASE GIFTS link from the Gifts homepage to order your ...
  Topic: MKD: The scene at the institution
queenk

Replies: 13
Views: 2660

PostForum: The Book Club   Posted: October 21 2006, 7:25 PM   Subject: MKD: The scene at the institution
Boy, cierrasmom, I wish you had submitted that story to Gifts! Very powerful. You should write it up for Gifts II. We're trying to branch out from mom stories so we will only be including a limited nu ...
  Topic: MKD: David Henry's photography
queenk

Replies: 8
Views: 1674

PostForum: The Book Club   Posted: October 20 2006, 5:59 PM   Subject: MKD: David Henry's photography
ooh--yes!

like the ring in Tolkien.

great observation!
  Topic: MKD: Family relationships
queenk

Replies: 3
Views: 930

PostForum: The Book Club   Posted: October 20 2006, 5:01 PM   Subject: MKD: Family relationships
I related to the marriage based on nothing solid--that was my parents' marriage. Both members needy and desperate but unable (or unwilling) to connect with each other.

I related to the emotionally ...
 
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