DownSyn Forum

mom4life · Posted: August 11 2010, 8:22 PM Post subject: Diaper Help

My son is 5 and he holds his bladder for hours, but he usually will not relieve himself unless he has a diaper on. We are having major trouble finding diapers or pull ups that will work for him. We use Goodnights with liners and plastic pants at night and he wets through them every night. We use size 7 pampers during they day and they work well, but we are looking for something we can get through medical supply, so medicaid will cover it.

He weighs nearly 40 lbs, so regular diapers are very snug on him. He doesn't drink more than 4 oz. of liquid after 4:30 pm, so it's not that he is drinking too close to bedtime.

I would really appreciate any advice on night time diaper help. I'd also welcome any advice on other diapers or pull ups we could use during the day.
Thanks!

_________________
Lisa

For You created my inmost being; You knit me together in my mother's womb.
I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well.
Psalm 139:13 & 14

mellysmom · Posted: August 11 2010, 9:49 PM Post subject:

Boy, I don't know. We use the Goodnights for Melissa day and night. Perhaps you could try the next size up in The Goodnights. Perhaps the bigger size will hold more.

Michelle

mellysmom · Posted: August 11 2010, 9:52 PM Post subject:

We can get the name brand diapers with Melissa's state insurance.

Can your insurance provider make any suggestions? Would they have a list of what is covered and what is not?

Michelle

mom4life · Posted: August 12 2010, 5:55 AM Post subject:

If we use the bigger size Goodnights, they gap and leak more. Sad

Our medical supply co. has given us samples of diapers and pull ups in Michael's size and we haven't found one yet that will work for him. One is a huge white diaper that is lined both inside and out with a plastic that makes him break out, plus it doesn't have multiple gathers around the legs, so if they gap when he sits or lies down, it's not pretty. Shocked

The pull up is not lined with plastic, but it's very loose fitting and gaps around the legs as well. I feel bad for parents who know diapers are going to be in their future long term. This has been very frustrating.

They will not cover brand name diapers.

_________________
Lisa

For You created my inmost being; You knit me together in my mother's womb.
I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well.
Psalm 139:13 & 14

mellysmom · Posted: August 12 2010, 7:30 AM Post subject:

See what you think of these.

www.medexsupply.com They are called Prevail AllNites. They are made for older children, but the weight (size) starts at 40 lbs.

Michelle

JanetG · Posted: August 12 2010, 7:45 AM Post subject:

Not medical supply, but have you tried the Underjams?? They seemed to work WAY better than the goodnites.....

_________________
Janet (45) and Jeff (45)
Joshua (angel) '85 (1 day old)
Sarah-age 23
Jaret-age 6
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

mom4life · Posted: August 12 2010, 7:51 AM Post subject:

Underjams actually didn't work as well as Goodnights for Michael. Wouldn't it be nice if there was one sure thing that worked well for everyone?? Very Happy

I will check out the All Nites. Thanks for the suggestions.

_________________
Lisa

For You created my inmost being; You knit me together in my mother's womb.
I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well.
Psalm 139:13 & 14

burnsun · Posted: August 12 2010, 1:46 PM Post subject:

Does your states medicaid cover using Edge park? They have a few there and the good nights....which is what I get sent through Medicaid for Colin at night and Devon during the day!

Second...... I have to use a bladder pad (I get the generic extra heavy (think super period pad) taped into Devon's diapers at night........) He pees all at onece twice a day...... afternoon we have him some what trained to go near a toilet if he, I the stars and all thing bright and wonderful are working in our behalf!

it keeps me from doing sheet every day ....just when he now decides to play with himself and falls asleep with his hand in the pants..... then I get sheets....stuffed animals and occasionally the wall!

And there are months of my life from last fall referred to the great diaper debacle of October 09....... in certain circles of my family!

I really hate trying to find diaper that fit and keep workingf and jumping through hoops and all that!

_________________
Jane
mom to
Colin Miguel (11/19/00) DS & type 1 diabetes, ASD
Devon Richard(4/13/01) DS & Autism & Partial Complex, Seizures terology of Fallot
& Retinal detachment w partial blindness at this time
Melea Isabelle(2/13/02) DS
Adrian Elliott (7/04/03) ADD
Eliza Marisol (5/15/04) DS , ASD, pulmonary hypertension, ADHD, ODD, Autism Spectrum Disorder,
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy & Stero Typical Movement Disorder & AV Canal
Jordan Alexander(3/17/2007)ADHD
Emerson James (1/08/2009) 33 week preemie
Sarah Emmaline "Emma" Grace (2/15/2011) 35week little one with a variety of issues inc: cp & fragile x & Seizures & severe birth trauma & G-J tube, Severe reflux, and recurent pnumonia and tracheosomy and vent chugging princess since 8/24/2012!

wife to the best & greatest guy Eric

http://princessgrumpy.blogspot.com/
read about the daily adventures of Princess grumpy and her special siblings and their daily adventures

http://thegrumpyfamily.blogspot.com/
the family blog of our unique & special family

ajbest · Posted: September 01 2010, 12:06 PM Post subject:

Huggies Overnights size 6 work the best for our night time floods Smile

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

SherryinWI · Posted: September 02 2010, 1:09 AM Post subject:

Is he ready for potty training? He sure sounds like it. It would solve your issue.

_________________
Sherry
Evan 12, Olivia 11, and Nate 8*

Hosted on Fotki

ajbest · Posted: September 02 2010, 8:57 AM Post subject:

SherryinWI wrote:

Is he ready for potty training? He sure sounds like it. It would solve your issue.

wish that potty training was the answer for us! Janna is potty trained during the day but cannot make it thru the night. she will go @ midnight if we wake her up and sometimes be dry at 6am, sometimes not.

any suggestions? should we NOT get her up in hopes that her bladder will one day hold it all night or should we get her up half way thru the night?

we fear that her bladder may never be able to make it thru the night if we wake her up at midnight to go - plus we hate to interrupt her sleep especially since school started.

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

burnsun · Posted: September 02 2010, 9:32 AM Post subject:

Melea is ok most nights (5 or 6 a week)...... but we still put on the overnight diapers....... casue I hate doing laundry! Cause she never pees on days I am doing her bedding

Colin is also ok about 1/2 the time...... but he just potty trained last JAN.....

_________________
Jane
mom to
Colin Miguel (11/19/00) DS & type 1 diabetes, ASD
Devon Richard(4/13/01) DS & Autism & Partial Complex, Seizures terology of Fallot
& Retinal detachment w partial blindness at this time
Melea Isabelle(2/13/02) DS
Adrian Elliott (7/04/03) ADD
Eliza Marisol (5/15/04) DS , ASD, pulmonary hypertension, ADHD, ODD, Autism Spectrum Disorder,
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy & Stero Typical Movement Disorder & AV Canal
Jordan Alexander(3/17/2007)ADHD
Emerson James (1/08/2009) 33 week preemie
Sarah Emmaline "Emma" Grace (2/15/2011) 35week little one with a variety of issues inc: cp & fragile x & Seizures & severe birth trauma & G-J tube, Severe reflux, and recurent pnumonia and tracheosomy and vent chugging princess since 8/24/2012!

wife to the best & greatest guy Eric

http://princessgrumpy.blogspot.com/
read about the daily adventures of Princess grumpy and her special siblings and their daily adventures

http://thegrumpyfamily.blogspot.com/
the family blog of our unique & special family