DownSyn Forum

lespring · Posted: July 28 2012, 10:41 PM Post subject: On Buying Lottery Tickets

We drove from MN to the NDSC conference in DC. From there drove to Philadelphia where Axel was having a check up with his spine surgeon. I can't believe his surgery was a year ago in May! His check up was great, and he doesn't need to be seen again for a year. Most of his restrictions have been lifted. The only things left are hard contact sports (like football, gymnastics, and trampolines.)

I had also asked if it was possible to have Asher added to the schedule since I've been a bit uneasy about some of his X-rays recently. They were actually of his spine, not his neck. The surgeon had his c-spine (neck) X-rays done while we were there.

Asher has AAI.

I'm still a bit stunned.

Asher's measurement is at 6mm. We are holding off on an MRI at this time, and will repeat his X-rays here at home (with a different rad. tech) in 6 months, and shriners wants to see him back in one year. He is on full restrictions: no tumbling, no trampolines our bounce houses, no horseback riding, no sledding, no contact sports, roller coasters or other activities that cause jarring to the neck. No being a kid.

In typical kids, the gap usually gets smaller as they age. In kids with DS it's pretty much 50/50. Some get better with age and some get worse. Obviously we hope that Asher is in the 50% who improve!

And so, since I've managed to find two kids from Serbia with DS and AAI, I'm going to start buying lottery tickets.

_________________
~Leah~

My mom's blog
http://gardenofeagan.blogspot.com/

And don't forget to visit MINE!
http://itsmylifemom.blogspot.com/

mom to Rob 26, Noah 25, Tyler 23, Bryon 23, Angela 16 (DS), Axel 12 (DS, adopted from Serbia 12/2012, AAI w/fusion) Asher 7 (DS adopted from Serbia 12/2011, AAI non-fusion)

Tigger · Posted: July 29 2012, 7:43 AM Post subject:

Yep, you have certainly beat the odds with Axel and Asher, may as well see if you can beat the lottery odds Very Happy

Hoping with you that the gap closes for Asher and he doesn't need surgery.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Adens mummy · Posted: July 29 2012, 8:17 AM Post subject:

they wont even do an x-ray here for Aden. hoping it closes as he grows.

_________________

AliMama · Posted: July 29 2012, 1:46 PM Post subject:

Oh Leah, I can't believe it, either. How crazy.

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-2009

kris10z · Posted: July 29 2012, 10:47 PM Post subject:

Oh mercy...

_________________
Kristen: Wife to Scott, Mama Bear to Ethan
(05/25/01, DS & ALL)
Taking the Step to a Healthier Self with Juice Plus+
www.fillthegap-juiceplus.com

Karien · Posted: July 30 2012, 1:25 AM Post subject:

Oh no!! Praying that asher's gap closes and that he can be a kid!! I can't imagine how you felt to hear that news.

_________________
Karien: happily married to Neels
Mom to Ewald (19), Eduan (16), Alvin (12) and KALLEN 6

Edensmama · Posted: July 30 2012, 2:05 PM Post subject:

oh Leah! I can't believe it - that is just awful! Sad

I hope it closes!!!

_________________
Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem

logansmom · Posted: July 30 2012, 9:24 PM Post subject:

I'm sorry to hear this. Sure hope it closes!

Kim

_________________

Wife of Marvin
Mom to Logan (3/6/03, Ds) and Carson (9/6/05)

LinMac · Posted: July 31 2012, 7:32 AM Post subject:

LEAH.....I've been trying to write or say something constructive but words fail me! Even after trying to think what to say for a few days!
I'm the kind of person who tries to take something positive even from difficult situations!
But I'm afraid your post leaves me stunned and speechless!

Think of you and sending you positive vibes at this difficult time!
Man life sucks.....sometimes!

_________________
Linda & John
mom to Hannah Kate (Age 14 ), Robert (Aged 9 - DS)

First Communion Day

lespring · Posted: July 31 2012, 7:59 AM Post subject:

Thanks guys.

You know, we're not too upset about it. Stunned but not upset, if that makes sense. I just seems kind of par for the course here.

Me and my warped sense of priorities, the very first thought that came to mind was, "Good, now when we have to come back for check ups they'll pay for all of us to go!" (well all but Angela but that's ok.)

_________________
~Leah~

My mom's blog
http://gardenofeagan.blogspot.com/

And don't forget to visit MINE!
http://itsmylifemom.blogspot.com/

mom to Rob 26, Noah 25, Tyler 23, Bryon 23, Angela 16 (DS), Axel 12 (DS, adopted from Serbia 12/2012, AAI w/fusion) Asher 7 (DS adopted from Serbia 12/2011, AAI non-fusion)