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Mark's x-ray - final update


 
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Momtoseven
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Last Visit: 26 Sep 2010
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Location: Pennsylvania

PostPosted: January 04 2010, 1:56 PM    Post subject:
Mark's x-ray - final update
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Mark goes to Hershey Med Center tomorrow for a Meckel's imaging study to check for Meckel's diverticulum. I am requesting prayers that the procedure can be done - they will be injecting him with dye and it is very difficult to find a vein on him and also he has to be very still in order to be able to do the xray correctly(not likely to happen unless they sedate him which they don't plan to do Rolling Eyes ). I am also asking for prayers that they find something! I know it seems silly to pray to find something, but this would be fixable and would explain many of his symptoms - he has been in a lot of pain lately, he is anemic and has blood in his stool. Thanks in advance for the prayers.

2nd update - They have scheduled Mark for an endoscopy and colonoscopy for this Wednesday! I am very impressed with how quickly they got him scheduled - I am praying that they will find the source of the blood and that it will be minor and fixable! Thanks!!

Final update - Just wanted to say thank you for your prayers - Mark's endoscopy/colonoscopy showed nothing significant. The biopsies showed no infections and no celiac disease. They are giving him iron supplement to hopefully help with the anemia while we try to figure out why he is bleeding and anemic.

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Maureen - Mom to Daniel(21), Brandon(19), Jordan(13)PDD, Thomas(11), Carrie(7), Samuel(4) and Mark (2 - ds, av canal -repaired 6/10/08, pulmonary hypertension)
https://www.carepages.com/carepages/MarkEdwardC32708


Last edited by Momtoseven on January 26 2010, 7:05 PM; edited 6 times in total
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Googsmom
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PostPosted: January 04 2010, 5:05 PM    Post subject:
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{{{{{HUGS}}}}} and Prayers

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Jennifer, Momma to The Brookster 4 yrs old


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Tigger
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Location: NSW, Australia

PostPosted: January 04 2010, 7:19 PM    Post subject:
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I understand what you mean. I have had so many tests that came back negative but I still have issues and there are no answers. Will pray.

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Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
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Dorothy's Mom
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PostPosted: January 05 2010, 10:51 AM    Post subject:
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I'm praying here. Dorothy had the Meckel's diverticulum. We had gone in to have a swallow study done due to aspirating on liquids and the doc happened to notice that the flow of the barium was not right and realized that she had a malrotation of her intestines. She was scheduled for the Ladd procedure to fix the malrotation and while they were in there they found the diverticulum. So they fixed that too. She didn't appear to have any symptoms from it that I know of. Anyway, praying that you get some answers and that Mark is nice and still for the test:)

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Keely
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Finnigan 6
Dorothy 3
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Momof6
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PostPosted: January 05 2010, 10:58 AM    Post subject:
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Many many prayers being said.

I so know what you mean about..you just wish they would find something...It's so hard to see your child in pain and discomfort and the doc's keep saying they have no idea. Going through that right now with Austin.

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~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
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Tom
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PostPosted: January 05 2010, 12:09 PM    Post subject:
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Prayers and good thoughts for Mark and Austin.

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Tom

Dad to Beth (17) and Mikey (13 - Ds and PDD-NOS)
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Momtoseven
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PostPosted: January 05 2010, 1:07 PM    Post subject:
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Thank you for your prayers everyone - we are back and everything went so much better than I anticipated. They found a vein(after only 4 attempts) and they had a special weighted vest that held Mark still for the procedure. Once the scan started Mark fell asleep for the entire procedure(45 minutes!) He was such a trooper and I am very proud of him! We should get the results tomorrow. Keely, if this comes back positive I may have some questions for you. From what I have read about MD it usually does not cause symptoms, but when it does it is usually around age 2(Mark will be two in March) and it is usually the male patients that experience the pain - weird isn't it?

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Maureen - Mom to Daniel(21), Brandon(19), Jordan(13)PDD, Thomas(11), Carrie(7), Samuel(4) and Mark (2 - ds, av canal -repaired 6/10/08, pulmonary hypertension)
https://www.carepages.com/carepages/MarkEdwardC32708
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Momof6
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PostPosted: January 05 2010, 1:37 PM    Post subject:
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Awww, what a little trooper falling asleep. Brakes my heart to hear what our beautiful children have to go through at time. They are so much stronger than I would ever be. They must know that if they do good these doc will help them feel better. I just love alsl our children.

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~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin



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Momtoseven
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PostPosted: January 07 2010, 2:46 PM    Post subject:
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Results are back and Mark does not have a Meckel's diverticulum! Which I guess I have mixed emotions about, but anyway - now he will have an endoscopy and a colonoscopy hopefully next week so if you could continue to pray that would be great! I will update when I find out the date and time of the test! Thanks everyone!

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Maureen - Mom to Daniel(21), Brandon(19), Jordan(13)PDD, Thomas(11), Carrie(7), Samuel(4) and Mark (2 - ds, av canal -repaired 6/10/08, pulmonary hypertension)
https://www.carepages.com/carepages/MarkEdwardC32708
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maziebaby
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PostPosted: January 07 2010, 9:49 PM    Post subject:
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sending good thought and prayers your way!!

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Lisa Wife to Glenn Mom to Johnathan 24 Allison 21 Chad 15 Greta 14 Sarah 12 Jennifer 9 and Mazie 6 (DS/ vsd repair 8/03)



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