DownSyn Forum

MommyAngela · Posted: January 18 2010, 3:37 PM Post subject:

Oh, Nathalie, I am so dreadfully sorry. It hits home to me b/c Eden is only a few days older than Benjamin. Wow.
Seriously, this is one of my biggest fears. I feel like I am always waiting for the other shoe to drop as far as leukemia is concerned.
I will pray for you, that God will heal Eden and will comfort you as you go through this.

_________________

Angela
Wife to Matthew
Mom to three wonderful sons:
Andrew James--3/24/06
Benjamin Matthew--4/24/08 DS--VSD & ASD repaired 10/3/08, intestinal obstruction repaired 1/13/09, hypospadias & ventral hernia repaired 8/21/09
Thomas Alexander--3/25/10

www.theamicks-angela.blogspot.com

Asa's Momma · Posted: January 18 2010, 4:02 PM Post subject:

Oh Dear Lord please make sweet beautiful Eden be okay. Pleading prayers, sending hugs and strength.

_________________

"Life is What You Make it..."
www.henryfamily-lifeiswhatumakeit.blogspot.com

Jackie (33 yrs.) - wife to Brian (31 yrs.) and Momma to Asa (2.75 yrs.).

Me-Shell · Posted: January 18 2010, 5:23 PM Post subject:

I am so sorry to hear this news. My thoughts and prayers are with you and your family. Big Hugs and may God Bless your sweet little Eden
XOXOXOX

_________________

Michelle, Fiance to Wyatt, Mom to Shane (20), Aubrey (17) and Baby Cameron DS (02/06/08 )

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." After all today is the tomorrow you worried about yesterday.

JLUNARES · Posted: January 19 2010, 2:51 PM Post subject: praying

send prayers your way! i can not imagine what you ae going through and i am praying for you and your sweet precious daughter! Crying or Very sad

_________________

Jackie & Ramiro Sr. Parents to Ramiro F. Lunares (with God 99') Angelina - 9 Mia - 5 Ramiro Jr. - 1 (Ds)

Stephanie · Posted: January 19 2010, 10:37 PM Post subject:

I am so sorry to read this, Eden will remain in my prayers.

_________________

Joey 3/8/97
Megan, DS 11/8/03
Olivia 7/6/05

QuinnsMom · Posted: January 20 2010, 6:44 AM Post subject:

Oh no! Eden and your family are in my prayers.

_________________
Karyn, Quinn's Mom -
Mother of Riley (age nine), Aidan (age five) and Quinn (October, 2007 - DS, IS)
http://quinnscrusaders.blogspot.com/

ImperfectMe · Posted: January 20 2010, 3:56 PM Post subject:

I am so sorry. You are in our thoughts and prayers!!

_________________
CJ
Mom to:
B (10/96)
E (06/04: DS)
? (EDD: 11/10)

Little Miss Emmalee
The T21 Traveling Afghan Project
Don't Lick The Ferrets

waith · Posted: January 20 2010, 6:49 PM Post subject:

SAYING PRAYERS AND SENDING CYBER HUGS X

_________________
Maxine UK. Mum to Elliott 15 and Dominic 6 DS

JMMH · Posted: January 20 2010, 11:33 PM Post subject:

I'm so sorry to hear this. Eden and your family are in my prayers!

_________________
Melissa & Jason
Matthew (DS) and Zachary

Kasey · Posted: January 21 2010, 12:21 AM Post subject:

So sorry you & your baby girl have to go through this (or anyone for that matter). Keep us updated and I'll be praying for you!

_________________

Supernova · Posted: January 22 2010, 6:53 PM Post subject:

I don't know what to say to you because nothing I say will make this any easier or better....We will keep Eden in our thoughts and prayers sending her love and strength!

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sarahmsam · Posted: January 25 2010, 3:39 PM Post subject:

I am so sorry you are experiencing this~ Praying for you, and Eden

_________________
Sarah
Mommy to Our little Rock Star Braeden
Born 4-12-07

mellysmom · Posted: February 03 2010, 9:05 AM Post subject:

I just read this post. I'm so sorry you, Eden and the whole family are having to face this. Hold on to His promises. Praying for you.

Michelle

JanetG · Posted: February 03 2010, 2:56 PM Post subject:

How am I just now seeing this???? I am SOOOO sorry to hear this news... I will keep all of you in my prayers. Keep the faith... HUGS!

_________________
Janet (43) and Jeff (43)
Joshua (angel) '85
Sarah-age 21
Jaret-age 4
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

My Family's Website

Alicia · Posted: February 04 2010, 9:45 PM Post subject:

Stay strong. I can't imagine the anxiety and fear you must be feeling. I will keep you and Eden in my prayers.

_________________
Alicia
Mom to: Christopher - 22 years old
Dex - 21 years old
Lierin - 20 years old
Kayla - 9/6/05 (DS)
Braden- 9/11/07

ME's mom · Posted: February 04 2010, 11:43 PM Post subject:

Oh sweet Nathalie, I am so sorry to hear this. I will be praying for you and darlin little Eden. I will be praying that God gives you what you need in these times. I will be praying that His hand is gently wrapped around you and sweet Eden in this time. I know that He is holding you in the palm of His hand. Believe that with me sweetie! Believe that with me! My heart breaks that you have to go through this. I am so sorry. I do know this, He promised He would never leave or forsake you. My prayer for you, is that you can feel Him with you, and know that He will never leave you! Please give little Eden a hug from MaryEllen and I. Love, Di

_________________

http://idscforlife.wordpress.com/
http://hiddentreasuresthet21journey.blogspot.com/

Tigger · Posted: February 05 2010, 2:00 AM Post subject:

Continuing to pray for Eden.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Annieo · Posted: February 05 2010, 9:55 AM Post subject:

Prayers that this next round knocks out the leukemia completely. And I'm sorry about her hair. When the hair goes it makes it all seem more real somehow. You'll get used to her little bald head in no time.

Someone else has probably already asked you this, but just in case they haven't, have you looked into taking time off from work under the Family and Medical Leave Act (FMLA)? My husband was able to take time off for John's hospitalizations. The restrictions might not apply to you, but it's worth looking into.

http://www.dol.gov/dol/topic/benefits-leave/fmla.htm

_________________

"There's a release in knowing the truth no matter how anguishing it is. You come finally to the irreducible thing, and there's nothing left to do but pick it up and hold it. Then, at least, you can enter the severe mercy of acceptance." Sue Monk Kidd

"Never doubt that a small group of thoughtful people can make a difference, in fact it is the only thing that ever has." Margaret Meade

Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul and Alice

www.caringbridge.org/visit/johnbremer

Momof6 · Posted: February 05 2010, 10:08 AM Post subject:

Many, many prayers being said. Hugs, thoughts, and prayers your way.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs )
http://www.caringbridge.org/visit/austinpaquin

Adens mummy · Posted: February 05 2010, 10:14 AM Post subject:

oh no just seeing this now, am so very sorry you are going through this, will be praying and praying....
hugs

_________________
Praying for a family for Zhenya

Aden's montage

Momtoseven · Posted: February 05 2010, 10:15 AM Post subject:

I am so sorry Eden has to go through all this! We will continue to pray for her!!

_________________
Maureen - Mom to Daniel(21), Brandon(19), Jordan(13)PDD, Thomas(11), Carrie(7), Samuel(4) and Mark (almost 2 - ds)
https://www.carepages.com/carepages/MarkEdwardC32708

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much." Mother Teresa

mary c · Posted: February 05 2010, 11:03 AM Post subject:

So sorry to hear the results are not what you hoped. Know however that you are not alone. People all over the world are praying for Eden and your family. God bless you all.

_________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

Please support the Down Syndrome Research and Treatment Foundation http://i139.photobucket.com/albums/q284/maryc_010/a13-1.jpg[/img]
[img]
[IMG]

Edensmama · Posted: February 05 2010, 12:50 PM Post subject:

Thanks everyone.

Ann- yes, I think you're right about the hair making it seem more real. Before this happened whenever I would hear about kids with leukemia the first image that popped into my head was little bald children. So knowing she is about to be one of those little bald children is surreal. Particularly because her hair has been a hallmark trait of hers since birth..she's always had a ton of it and people have always commented on it. Of course, she has other hallmark traits like her sweet personality and gorgeous smile...and her hair will grow back. Smile

Thanks for mentioning FMLA. Yes, it is available to me here but it is unpaid leave which really isn't an option for us right now - particularly in light of medical bills. Thank goodness we do have excellent insurance but there are still deductibles and copays to cover. I am eligible for 4 weeks of paid vacation so I will use that time first and then if I need additional days I'll start using FMLA days. Luckily I can take them as needed rather than having to take a bunch of time at once so that helps. Plus my boss has been very understanding and has proposed I work from home more often if needed (I already worked from home once a week and now it has gone to twice per week...but I may add another day). This at least puts me closer to the hospital so that I could maybe stop by for breakfast and lunch during the day. Or I would probably work from there...they have wifi. We'll see how it goes.

_________________
Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem

EAS1971 · Posted: February 05 2010, 1:36 PM Post subject:

So sorry to hear the results aren't what you'd hoped! Praying this next round knocks out all of the leukemia cells! Continued prayers and hugs to you all.

_________________
--Beth
Mom to Oliver, 5 (DS, ADHD)
and Sebastian, 3

AMTJmom · Posted: February 05 2010, 3:51 PM Post subject:

I'm just seeing this today. So sorry. Sending lots of good thoughts and prayers to you all, and I'll be checking for updates.

_________________
Julie - wife to Allan (5-90),mom to Andrew (6-93), Madelyn (3-96), Tyler (11-98 ), & Jackson (ds 10-27-06)

-1.jpg

maziebaby · Posted: February 06 2010, 11:29 PM Post subject:

I'm so sorry to hear she will have to have another round....Our thoughts and prayers are with you.......

_________________
Lisa Wife to Glenn Mom to Johnathan 24 Allison 21 Chad 15 Greta 14 Sarah 12 Jennifer 9 and Mazie 6 (DS/ vsd repair 8/03)

JanetG · Posted: February 10 2010, 9:54 AM Post subject:

I am continuing to keep beautiful Eden (and all your family) in my prayers... Many hugs and positive thoughts for strength.

_________________
Janet (43) and Jeff (43)
Joshua (angel) '85
Sarah-age 21
Jaret-age 4
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

My Family's Website

MamaCarrie · Posted: February 10 2010, 6:38 PM Post subject:

Praying praying praying for little Eden.

_________________
Carrie
Mama to:
Bennett (9/96), Merrick (1/99), Giselle (11/04), Calder (4/07), Isaac (7/08 ) and Jotham (4/09)

http://mommypress.com/itllturnup/

elizasmom · Posted: February 11 2010, 7:22 PM Post subject:

Continueing our prayers and healing thoughts!!!!! Big hugs to you all!!!!!!!

_________________
Liz - Mom to Walker (3/24/02), Eliza (Ds) (5/6/05), Alden Jane and Noah Henry (5/2/08 )

myjackjack · Posted: March 04 2010, 3:16 PM Post subject:

wow...I have really been of the computer for awhile....all because of my son Leukemia treatment! I am soooooo sorry you are going through this, my prayers are with you! We are in the maintenence phase, Jack has ALL, a bit different. he will be in this phase for 2 years. Stay strong mama.....and know that you are not alone!!! hugs and prayer!!!!

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HannahsmomUK · Posted: March 29 2010, 8:16 PM Post subject:

so sorry to hear of Eden's journey, sending prayers your way

_________________

Please visit Hannah's webpage read all about her journey
Hannah's Video

Mary Beth · Posted: April 03 2010, 6:33 PM Post subject:

I'll be praying for Eden.
How is she handling the treatment now?
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

Edensmama · Posted: April 03 2010, 10:55 PM Post subject:

She is doing really well...she is in remission and has finished 3 of the 6 rounds of chemotherapy that are planned. She starts round 4 on Monday. Feel free to check out her caringbridge site (see address in my siggy)

_________________
Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem

earlyam · Posted: April 04 2010, 3:15 AM Post subject:

Great to hear Eden is doing so well! Continued thoughts and prayers x

_________________
Jo, Mum to Georgia 11/11/03 ( BIG High School Musical fan) and Ethan 16/12/07 (DS)

mellysmom · Posted: April 04 2010, 8:50 AM Post subject:

Adorable photo of Eden.

We'll keep her in prayer. You, too!

Michelle

Tigger · Posted: April 05 2010, 10:50 PM Post subject:

So glad to hear she is in remission. Still praying.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14