What is this and should my child be on it. I have never heard of it and I didn't know if most DS children were on this.

From a mom that is trying to do the best but doesn't know what that is since i'm still struggling after six months.

You will find arguments for and against Nutrivene depending on who you talk to. My son is on it and there are several on the board that have their children on it. If you want to hear more pm me and I would be happy to tell you my why Carson is on them. I am sure you will find someone that will tell you why they don't have their children on it.

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Callan 7, Kenna 5, Carson 2
http://www.firstgiving.com/carsonglascock

If you go on the "TNI and Piracetam" board on this website and "view all threads", you will learn more by reading those threads. Also, look on http://www.nutrivene.com and http://www.lleichtman.org/ and you will find a wealth of info.

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Bethany, Mommy to Mason (6), Payton (4, DS) and Addison (3, DS)



Family blog:
http://thebalsisfamily.blogspot.com/

Adoption blog:
http://dreamingonanangel.blogspot.com/

Take control of your health with Juice Plus
www.livelife-juiceplus.com

I am one of the moms that do not have their child on it. In RI, we have Dr. Siegfried Pueschal and he is our Ds expert. He does not promote the use of this type of therapy. Actually, maybe I should state for US....he did not feel Daniel would benefit. He believes parents should do what they feel is right....but in his opinion, they aren't neccessary. Dr. Pueschal wrote the book...Towards a Brighter Future.

That is the beauty of this board....all different moms with all different perspectives sharing their info!!

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Lisa - Mommy to Elayna 10-1-02 and Daniel (Ds) 6-7-05
Always have hope....Without rain, there can be no rainbows.

Hi there

We read a book called Vitamin Therapy in children with Down Syndrome and decided to put Dakota on to nutrivene-d about 3 months ago. It's one of those things that I think you'll never REALLY know if it's making a big difference. Dakota was getting alot of colds and since being on it she hasn't had one while the rest of us have had lots - is it the vitamins? who knows? I guess if your child is pretty healthy you don't need to worry about them as they cost around $180 for 6 months (for a child who is around 7kg and this includes postage to Australia). When you say you are struggling to do your best what exactly do you mean? it sounds like you are a very attentive mum to me? but if you want to talk please pm me

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Samantha & Darren

Zacchaeus 13/Jan/2001
Declan 26/Mar/2002
Jachan 02/Dec/2003
Dakota (ds) 12/Jul/2005

Yup, it's controversial, and I'm not saying that's bad. One should always look at both sides. My son Drake is on Nutrivene and I couldn't be more happy---in the same breath, I'm not saying I am right and others are wrong for not using it. If it is something that really is tugging at you, you have nothing to lose by giving it a shot. The way it was described to us was, essentially, kids/people with DS tend to have a much more rapid rate of cell death and the blend in this formula pretty much helps to regulate everything, metabolism and all, to function more "normally". I never started this formula thinking it would change my child. For us, it was looking at the chemistry of it all....and it made a lot of sense. There's no right or wrong answer. Do what feels right for you. I did notice changes for the better when we started but will maintain that I don't know for sure if I can absolutely credit the supplement as Drake was only 2mos. Others, however, have said they noticed great changes too, in their older children. Follow your gut---and your doctor, of course

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Kelley, Chris's wife
mom of Taylor 14, Daulton 11, Cameron 9 & Drake 6 (DS)