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marlene Super Member
Joined: 26 Jul 2004
     
Last Visit: 21 Sep 2010 Posts: 3872 Location: Quarryville,PA
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Posted: July 01 2006, 11:09 PM Post subject:
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I never started this with Aleena because of all the controversy. But, Gary and I faithfully take vitamins and supplements, why shouldn't she. We used to give her that nasty PolyViSol something or other in her bottle, but once she graduated from the bottle she would not tolerate it any more. We REALLY want to get her on something.
For those of you who DO use something, what do you use, how did you choose it and where do you get it??
_________________ Marlene, mommy to my precious Aleena (1/30/04)
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lilpayton Super Member
Joined: 08 Jan 2006
   
Last Visit: 21 Sep 2010 Posts: 6070 Location: DC Metro Area
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Posted: July 06 2006, 10:34 PM Post subject:
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We use Nutrivene-D for Payton. You can get more info on the website ... http://www.nutrivene.com
PM me if you have any questions. 
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Carson's Mom Super Member
Joined: 16 Dec 2005
   
Last Visit: 24 Sep 2008 Posts: 4978 Location: Louisiana
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Posted: July 07 2006, 12:33 AM Post subject:
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We use NutriVene D as well and are very happy with it.
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Alicia Senior Member
Joined: 07 Jul 2006
   
Last Visit: 14 Sep 2010 Posts: 538 Location: Bothell, Washington
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Posted: July 08 2006, 5:02 PM Post subject:
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I too want to learn more about Nutrivene. I have read the information on their website but I'm curious to know if anyone has read any independent studies. I would be interested to read something that hasn't been written by the manufacturers of this product. Kayla is a terrible sleeper; however, she's been getting better lately. But through kind of a process of elimination, I knew it wasn't an apnea problem, and finally came to the conclusion that she was just having a hard time with digestion. She didn't seem to be in any pain or distress, just slept restlessly. So when I read about the particular digestive enzyme that could be lacking in children with DS, I have become more interested in Nutrivene. I keep hearing about a controvery over it but I don't know what it is?? Is it just that some people claim it works and others swear it does nothing???
What sorts of differences have people noticed in their children after taking it? And what sorts of problems, if any, were children having that led their parents to begin this program??
Thanks!!!!
P.S. I'm still working on this picture thing. Bear with me. I'll figure it out.
_________________ Alicia
Mom to: Christopher - 23 years old
Dex - 21 years old
Lierin - 21 years old
Kayla - 9/6/05 (DS)
Braden- 9/11/07
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JenBrock'sMom Super Member
Joined: 28 Sep 2005
   
Last Visit: 12 Jul 2010 Posts: 5181 Location: Des Moines, Iowa
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Posted: July 08 2006, 6:02 PM Post subject:
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Brock hasn't had any additional vitamins at this point - I guess at his 12 month I'm going to talk to his doc. I remember reading something that Chris Burke's parents said about him - that they gave him regular children's vitamins.
_________________ JenBrock'sMom & wife to Jay
Brock Davis (Ds) 7/28/05
Quinn Currie 8/18/07
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elizasmom Super Member
Joined: 28 Jul 2005
    
Last Visit: 14 Sep 2010 Posts: 2559 Location: Marin County, CA
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Posted: July 08 2006, 9:58 PM Post subject:
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We give Eliza nutravene too and so far no complaints. From everything i hear it's the antioxident vitamins and zinc that are really important. And DHA and EPA (omega-3's) are really beneficial too. And we also give her tumeric. There is a research paper coming out soon from the UK regarding their study of i think 5 antioxident vitamins which all indications point to being positive. You start giving a regular vitamin and then when the study comes out, depending on what it says make adjustments.
_________________ Liz - Mom to Walker (3/24/02), Eliza (Ds) (5/6/05), Alden Jane and Noah Henry (5/2/08 )
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sunbonnetsioux Member
Joined: 11 Jun 2006
   
Last Visit: 12 Nov 2006 Posts: 71 Location: Cincinnati, OH
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Posted: July 23 2006, 9:57 PM Post subject:
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We give Kepler vitamin E as an antioxidant. We give him the contents of one pearl each day. We chose not to use the Nutrivene product, but are always on the lookout for new information.
Susan
_________________ Mom to Valerie (1/93), Joel (4/94), Eli (10/95), Anna-Jessie (11/9  and Kepler (DS 1/2/06)
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