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Alicia Culp Member
Joined: 07 Jul 2006
Last Visit: 31 Oct 2006 Posts: 78 Location: Lynnwood, Washington
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Posted: July 07 2006, 10:58 PM Post subject:
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Hi everyone. I just kind of stumbled upon this forum and I'm so glad I did. The only support on-line I found so far was the DS listserv. It seemed adequate for medical related stuff, but not with matters of the heart. I have a son that just graduated from high school, a daugther who will graduate next year and a ten-month old daughter with DS. So I'm doing graduating and teething at the same time!!! I have a million questions. I don't even know where to start. I'm so excited I found such a friendly place. I want to figure out how to post pictures; I'll get to that next.
Alicia and and daughter Kayla
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momtofourgirls Senior Member
Joined: 04 May 2006
Last Visit: 31 Oct 2006 Posts: 941 Location: Southern California
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marlene Super Member
Joined: 26 Jul 2004
Last Visit: 31 Oct 2006 Posts: 1726 Location: Quarryville,PA
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Posted: July 07 2006, 11:05 PM Post subject:
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Welcome Alicia and Kayla!! Glad you joined us! We're probably about the same age - Aleena is my first and only, though - she's 2 1/2. Looking forward to hearing more from you and seeing pictures!
_________________ Marlene, mommy to my precious Aleena (1/30/04)
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Alicia Culp Member
Joined: 07 Jul 2006
Last Visit: 31 Oct 2006 Posts: 78 Location: Lynnwood, Washington
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Posted: July 07 2006, 11:18 PM Post subject:
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Oh my gosh. I want to cry already. Thank you for the warm welcome. We have a really great birth to three program here in our area for children with disabilities and I thought I'd meet a lot of other parents with children that had DS, but so far, none. You know they're out there somewhere, but I just haven't found the contact. I seem to know more about DS in the last 10 months than our pediatrician does. Just reinforces the idea that you have to be in charge of your own healthcare. I really want to know about Nutrivene. What is the big controversy? Or is there one? I know nothing about it.
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Carson's Mom Super Member
Joined: 16 Dec 2005
Last Visit: 31 Oct 2006 Posts: 1892 Location: Bossier City, LA
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Posted: July 07 2006, 11:45 PM Post subject:
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Welcome! I love your daughter's name. My son is 9 months old. You will find that this board will give you a wealth of information, but also a ton of support and caring. My son is on Nutrivene D. If you have any questions about it, you can PM and I will answer as best as I can. There is a section you can post questions about it on and see other discussions as well.
Kayla
_________________ ,
Kayla, Callan(5), Kenna (3), Carson 1 yr,
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gloria&sammy; Senior Member
Joined: 06 Mar 2006
Last Visit: 31 Dec 1969 Posts: 238 Location: El Monte, CA
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Posted: July 08 2006, 12:50 AM Post subject:
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Welcome Alicia and Kayla. You are going to love it here. It has helped me alot with my 9 month old Sammy. Cant wait to see pictures of your family.
_________________
[red]Samantha Victoria*10/11/2005 (DS)[/red]
[url=http://www.TickerFactory.com/]
[/url]
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Tmjones Super Member
Joined: 28 Jun 2005
Last Visit: 31 Oct 2006 Posts: 1615 Location: Coeur D'Alene,Idaho
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Posted: July 08 2006, 1:12 AM Post subject:
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Hi Alicia-
Welcome......Where in Wahington are you? I am right outside of Spokane....
As far as the Nutrivene I am still thinking and learning...Just wanted to say hi and welcome to this amazing family!
_________________
Mommy to...
Kyle 1/28/00
Krystin 12/08/02
Matthew 6/12/05
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Alicia Culp Member
Joined: 07 Jul 2006
Last Visit: 31 Oct 2006 Posts: 78 Location: Lynnwood, Washington
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Posted: July 08 2006, 1:14 AM Post subject:
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Hi Tara! Thanks for the welcome. We're in Lynnwood, just about 30 miles north of Seattle. Your children are absolutely beautiful.
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Nicola Super Member
Joined: 13 Feb 2003
Last Visit: 31 Oct 2006 Posts: 1302 Location: NSW, Australia
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Posted: July 08 2006, 2:27 AM Post subject:
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Welcome Alicia and Kayla!
I'm so glad you found us- this is by far THE best resource on the web that enables contact between families who have young children with DS. I'm sure you'll love it here!
_________________
Mum to Brendan 12, Chiara 10, Kiernan 9, Aidan 7, Lachlan 5, Gianna 22 Jan 03 (DS) and Sienna 18 Jan 05
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jayne Senior Member
Joined: 05 May 2006
Last Visit: 20 Oct 2006 Posts: 212 Location: Kent, UK.
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Posted: July 08 2006, 2:59 PM Post subject:
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[white][big]Hello Alicia welcome to the wonderful world of Downsyn, Kaylas a darling and you have come to the right place 'for matters of the heart' there's lot's of tears and laughter here[/big].[/white]
_________________ Colin and Miranda parents of Bryan (DS) 29/01/03 and Kayla 14/3/05.
"Only the most sensitive fish discover the wetness of water."
http://makebelievers.blogspot.com/
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huskies9798 Super Member
Joined: 26 Oct 2004
Last Visit: 30 Oct 2006 Posts: 1829 Location: cincinnati ohio
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Posted: July 08 2006, 3:46 PM Post subject:
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hello & welcome to the family! you will indeed love it here brooke will be 2 next month, oh how time flies! cant wait to hear more about ms kayla
_________________ chris
mommy to brooke ds 8-30-04 BOY edd 1-24-07
my precious little angel & peanut on the way!
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hannah Senior Member
Joined: 05 Jun 2005
Last Visit: 30 Oct 2006 Posts: 957 Location: Tennessee
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Posted: July 08 2006, 3:50 PM Post subject:
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Welcome Alicia and Kayla! Glad you found Downsyn! It's a great place! Kayla is adorable.
_________________ Beth
Hannah(ds)1.19.05
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mom2nicole Member
Joined: 02 Jan 2006
Last Visit: 30 Oct 2006 Posts: 94 Location: Union, Missouri
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Posted: July 08 2006, 4:11 PM Post subject:
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Welcome!! I can't imagine the stress of having your two older children getting ready to graduate and then having a little one!!!! My daughter Nicole will be 6 in two months and I have a hard time imagining starting over!!! Glad you found this place, it is the best!!!!!!!
_________________ Michelle
My Angel Nicole (9-12-2000)DS
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My Boys Super Member
Joined: 19 Mar 2003
Last Visit: 31 Oct 2006 Posts: 2515 Location: South Plainfield, NJ
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Posted: July 08 2006, 4:15 PM Post subject:
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Hello & welcome.
_________________ Michele B.
Patrick (5-16-00)
Kyle (DS) (1-13-03)
Cameron (11-5-2005)
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mary c Super Member
Joined: 07 Jan 2005
Last Visit: 31 Oct 2006 Posts: 1354 Location: Westchester County, New York
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Posted: July 08 2006, 4:41 PM Post subject:
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Hi Alicia and Kayla, welcome aboard. I have one child starting high school this fall and one child starting pre-school so I have an inkling how you feel. I feel way too old to be hanging with the young moms these days!
_________________ Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03
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Tigger Super Member
Joined: 28 Jan 2006
Last Visit: 31 Oct 2006 Posts: 1564 Location: NSW, Australia
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Posted: July 09 2006, 6:09 AM Post subject:
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Hi!! I am so glad you have found us. This place is great and the people are wonderful. It has helped me so much.
My little Talitha is 7 1/2 months old now and I have 3 others - 8, 9 and nearly 17.
Can't wait to see pics.
_________________ Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06
"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
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Maysonsmama Senior Member
Joined: 24 Apr 2006
Last Visit: 31 Oct 2006 Posts: 987 Location: Ely, Iowa
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Posted: July 09 2006, 11:26 PM Post subject:
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Hi and welcome!! I am so glad you found this place as you will love it!! your little one looks like a sweetie. cant wait to see more pictures! again, welcome!
_________________ Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS
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JenBrock'sMom Super Member
Joined: 28 Sep 2005
Last Visit: 31 Oct 2006 Posts: 3272 Location: Des Moines, Iowa
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Posted: July 10 2006, 3:27 PM Post subject:
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Alicia, Kayla and family - welcome to Down syn. You've stumbled upon a great place. I look forward to getting to know your family.
_________________ JenBrock'sMom & wife to Jay
Brock 7/28/05
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mommartin Senior Member
Joined: 02 Jun 2005
Last Visit: 24 Oct 2006 Posts: 679 Location: California
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Posted: July 10 2006, 4:43 PM Post subject:
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[green]Hi and welcome![/green]Glad you found us and looking forward to learning more about your family.
_________________ Katie
Jerry 1/02,Bethany 8/03(cp)Faith 5/05 (ds)
http://katies.stayinhomeandlovinit.com
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Grandma to Olivia Senior Member
Joined: 24 Sep 2004
Last Visit: 31 Oct 2006 Posts: 755
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Posted: July 11 2006, 12:18 PM Post subject:
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Welcome! So glad you found this place! It's a great place to come for information and support! My granddaughter, Olivia, is almost 3. She is my reason for coming here.
_________________ Cindy
Olivia's Grandma
Bitter are the tears of a child: Sweeten them. Deep are the thoughts of a child: Quiet them. Sharp is the grief of a child: Take it from him. Soft is the heart of a child: Do not harden it. - Pamela Glenconner
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Mary Beth Super Member
Joined: 30 May 2005
Last Visit: 31 Oct 2006 Posts: 3869 Location: Ohio
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Posted: July 11 2006, 1:07 PM Post subject:
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Welcome to the family. I have four older children that have graduated from high school and some from college too plus three younger children. Sam (DS-9), Shane ( and Katarina (DS-4) I know all about starting over while dealing with the older children too.
You're going to like it here.
Mary Beth
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waith Senior Member
Joined: 15 Apr 2004
Last Visit: 30 Oct 2006 Posts: 803 Location: Manchester, England
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Posted: July 11 2006, 4:59 PM Post subject:
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Welcome to Downsyn its a lovely place to come and share .
_________________ Maxine UK. Mum to Elliott 12, Dominic 2 DS.
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LinMac Super Member
Joined: 27 Oct 2005
Last Visit: 31 Oct 2006 Posts: 1385 Location: Dublin, Ireland
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Posted: July 11 2006, 5:52 PM Post subject:
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Welcome Alicia and Kayla
You have stumbled across a wonderful online support group.
I am so pleased to meet you and look forward to hearing all about Kayla.
_________________ Linda & John
mom to Hannah Kate (Age , Robert (04/16/2004, DS)
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ajbest Super Member
Joined: 13 Apr 2005
Last Visit: 31 Oct 2006 Posts: 3237 Location: NC
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Posted: July 12 2006, 8:40 AM Post subject:
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an Official welcome to you and your beauty, Kayla! glad that you found this wonderful site. aj
_________________ Momma to Janna (AVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)
"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi
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