DownSyn Forum

KStrickland10 · Posted: July 01 2006, 4:16 PM Post subject:

I am new to this forum, but not to the website. I have a 5 month old with Down Syndrome and found this website extremly knowledgeable and useful in my first days of trying to cope with the surprise. Because of the things I have read here, I started looking at my situation more optimistically. [blue][/blue]

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www.caringbridge.com/visit/cameronstrickland

fixedyang · Posted: July 01 2006, 5:21 PM Post subject:

Welcome! This is a wonderful place to be! Can't wait to see pics of your little one.

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Sherri & Chad married 12/16/00
Mom to Cooper (15), Hunter (12), Ethan (2), and our sweet baby girl Sadie born 10/3/05 (DS)

"The greatest danger for most of us is not that our aim is too high and we miss it, but that it so low and we reach it." Unknown

Koby'sMommy · Posted: July 01 2006, 5:29 PM Post subject:

YAY, so glad we were of some help!!! WElcome!-Courtney

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Courtney-Wife to Chris- Mommy to Koby (12/16/04)

"I am careful not to confuse Excellence with Perfection.Excellence I can reach for; Perfection is God's Business" -Michael J.Fox

EliasMom · Posted: July 01 2006, 6:24 PM Post subject:

welcome!! =)

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Ali, wife to Felipe, mom to Elias (Feb 21 2005)

Mary Beth · Posted: July 01 2006, 6:39 PM Post subject:

Welcome aboard Kim. There is always room for more in our big family.
Mary Beth

waith · Posted: July 01 2006, 7:02 PM Post subject:

Welcome to Downsyn Kim. Looking forwards to getting to know more about your little one. Is your baby a boy or girl and what is his/her name?

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Maxine UK. Mum to Elliott 12, Dominic 2 DS.

McKenna · Posted: July 01 2006, 9:36 PM Post subject:

Welcome! I can't wait to see pics of your son!! I have a 22 month old, Darah who has Down syndrome and we're expecting our son in November.

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McKenna
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Darah Faith 11 Aug 04 (DS and AVSD repaired)
Baby due 18 Nov 06
Darah's Website

KStrickland10 · Posted: July 02 2006, 7:25 AM Post subject:

My little guy, Cameron is 5 months. I will post a pic if I can figure it out. If anyone can tell me how, that would be great. Cameron is getting ready to have heart surgery. He has an AV defect. There is no surgeon in our area, so we will be traveling a little ways to UVA. My doc reassure me that this is fairly common, but all the same I am scared and nervous. WE don't have a specific date yet.

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Tigger · Posted: July 02 2006, 8:16 AM Post subject:

Welcome to downsyn!!!! My daughter Talitha is now 7 months old and had open heart surgery for AV canal defect when she was 4 1/2 months old. Lots of kids here have had that type of surgery and yes, it is common. It is normal to be scared and nervous with your child going in for surgery. Let us know when you get a date so we can pray. If you want any info or to see pics from hospital just let us know as I found hearing others experiences and pics helpful.

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Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

rhonda · Posted: July 02 2006, 12:08 PM Post subject:

Hello and welcome!! Looking forward to seeing Cameron!!

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Rhonda

Taylor 13, Jordan 12, Dylan 3

Carson's Mom · Posted: July 02 2006, 4:11 PM Post subject:

Welcome. I lived in Hampton for 14 years. I loved it and wish I was still there. I still try to get back at least once a year to visit. I am sure you will love the site - there is alot of information, but also alot of support. I can't wait to hear more about you and your family. We may know some of the same people there. I sent you a private message.

Kayla

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,
Kayla, Callan(5), Kenna (3), Carson 1 yr,

My Boys · Posted: July 02 2006, 5:58 PM Post subject:

welcome & congratulations.

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Michele B.

Patrick (5-16-00)
Kyle (DS) (1-13-03)
Cameron (11-5-2005)

** Hannah's mom ** UK · Posted: July 02 2006, 6:55 PM Post subject:

welcome to the site

there are a few of our kids that are in the brave hearts club on here, Hannah being one of them

let us know when you get a date and if there are any questions you want to ask please feel free

great pic btw

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Jo mummy to Hannah (DS ) who was 3 in July 05,Rebecca who was 2 in Jan 06 and Rachel born 6th April 2006

My beautiful girls

Please visit Hannah's webpage read all about her journey
Hannah's Video

NattysMommy603 · Posted: July 02 2006, 6:58 PM Post subject:

Welcome to the site. I grew up in Hampton and New Port News when I was little, (Navy Brat!). glad to meet you, hope to hear more soon.

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Tracy
Proud momma of
Natalie Marie 6/8/03,
Tyler Slayton 4/15/05
Baby 3 EDD 1/3/07

Teresa E · Posted: July 02 2006, 7:54 PM Post subject:

Welcome! My 3 month old, Lucas, has Down syndrome. I can't wait to hear more about your family!
Teresa

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Teresa, mom to
Molly 4-17-01
Max 3-17-03
Lucas 3-8-06 DS

victoria's dad · Posted: July 03 2006, 2:04 AM Post subject:

welcome, im glad u found this place, when victoria had her heart surgery we had to face it alone(together) no one even came with us to the hospital, it was so scary , but i want u to know that we will all be with u when that day comes , i hope that helps victorias mom and daddy

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victoria's dad

KStrickland10 · Posted: July 03 2006, 7:10 AM Post subject:

Thanks to everyone for their responses. Everyone here is so nice and positive. That is something you don't always get,especially in the medical world.

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www.caringbridge.com/visit/cameronstrickland

pookeymom · Posted: July 03 2006, 8:28 AM Post subject:

[biggest][blue] WELCOME!! [/blue][/biggest] Very Happy

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Stacy
Mom to Tristin (9), Camille (5), Elijah (3), Caleb and Isaac (1)

kellyrimmer · Posted: July 03 2006, 6:20 PM Post subject:

Hello and welcome!!! Cameron is just so cute!!! I cant wait to see more pics and read all about Cameron

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Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06

emma'smom · Posted: July 03 2006, 7:46 PM Post subject:

Welcome. It's great to read your introduction. The picture of Cameron is just precious.

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Cheryl

Wife to DH Kent Smile

Mom to
Justin 2/13/02
Emma 6/23/05

stawal · Posted: July 03 2006, 8:25 PM Post subject:

Welcome. Your little boy is a doll, so bright eyed! My son, Wil, had his surgery at 5 months. It was scary and hard but so worth it to see him thriving. As an aside, I have a friend whose son just had his second of three open heart surgeries at UVA this week. They have been very pleased with the care their son is receiving there.

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Stacy
Wife to James
Mom to Luke 10/02, Wil(DS) 3/31/05, Timothy 9/06

lcbrownfam · Posted: July 04 2006, 10:48 AM Post subject:

Welcome! You are right. This site is great as it is so positive. How old is your other son? We have Justin with DS who is almost 7 months and he has 5 siblings. Let us know when his surgary is scheduled so we can pray.

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Carol
Blessed Mom to Kaitlyn 6/92, Andrew 4/95, Aimee 2/98, Hannah 3/01, Stephen 2/03 and Justin(DS) 12/05

KStrickland10 · Posted: July 04 2006, 2:32 PM Post subject:

Our older son is Alek, he is 7. He wasn't so fond of Cameron at first, but has now taken over as big brother. He is very protective and keeps a watchful eye over him. He knows Cameron has DS but doesn't really understand all these appts. and therapy and such. I sometimes feel guilty because Cameron requires so much more care than Alek, I feel I am neglecting him. I try to take special time for just the two of us together, but it's hard enough to just find time for yourself.

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www.caringbridge.com/visit/cameronstrickland

Grandma to Olivia · Posted: July 04 2006, 6:43 PM Post subject:

Welcome! Both your boys are very cute! My granddaughter, Olivia, is almost 3 years old and is my reason for joining this great forum.

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Cindy
Olivia's Grandma

Bitter are the tears of a child: Sweeten them. Deep are the thoughts of a child: Quiet them. Sharp is the grief of a child: Take it from him. Soft is the heart of a child: Do not harden it. - Pamela Glenconner

jayne · Posted: July 06 2006, 5:16 PM Post subject:

Hi and welcome to the forum your boys look so sweet together a little bit of sibbling rivalry is quite healthy. As you say he's adjusting to the very important position of big bruv! Wink

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Colin and Miranda parents of Bryan (DS) 29/01/03 and Kayla 14/3/05.

"Only the most sensitive fish discover the wetness of water."

http://makebelievers.blogspot.com/

Maysonsmama · Posted: July 07 2006, 12:02 AM Post subject:

Hello and welcome! Glad to have you here! Our little Mayson is just 20 weeks old now so I think her and Cameron are prety close in age. I am sorry you have to go through the heart surgery. so far, Mayson has no health issues. Please keep us posted on your little one!!

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Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS

hayden's mom · Posted: July 07 2006, 1:07 AM Post subject:

Hello and welcome. Both your boys are very handsome.

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Mommy to:
Holden 6
Hayden 2 (ds)
Jacie 1
And the Angels Danced the day you were born

jmrcmama · Posted: July 07 2006, 1:40 AM Post subject:

Welcome! Glad your here my Maggie had her AVSD surgery when she was 4 1/2, which will be 7 years ago next week, she is doing wonderfully she only goes for a check up every two years now! YEA! I know that your Cameron will do great he is such a cutie! As well is Alek! I will be praying for you and your family! Lisa

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Lisa, mama to Jacob 12-3-91, Maggie Jo 9-22-95 DS, Rusty 9-19-96, Cameron 11-12-2003

JenBrock'sMom · Posted: July 07 2006, 8:33 AM Post subject:

Welcome to Down syn, I'm Jen mom to Brock who is 11 months. We live in Des Moines, IA. Brock is our first and his diagnosis of Ds was also a huge surprise. Quite honestly - Down syn was also my saving grace in the beginning, and still is.

Alek and Cameron are such cuties. I'm glad that Alex has taken over as big brother! We are excited for Brock to have siblings some day.

I truly think all people with Ds have so many opportunities today, and that their ability to live independent lives will only continue to improve in the years ahead.

Take care and post often!

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JenBrock'sMom & wife to Jay
Brock 7/28/05

ajbest · Posted: July 12 2006, 8:44 AM Post subject:

welcome to you! does Cameron have a surgery date yet? AV Canal repair IS quite common and i know Cameron will do great. we will be praying for him and all of you. glad you found this wonderful site. we've gained 2 Cameron's this month so far (Cameron - Rae&Cameron). again, welcome! aj

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Momma to Janna (AVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

KStrickland10 · Posted: July 13 2006, 6:55 AM Post subject:

The surgery has been scheduled for July 27th. Keep us in your prayers.

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www.caringbridge.com/visit/cameronstrickland

Ruby's Mum · Posted: July 15 2006, 7:35 AM Post subject:

Welcome! We are also fairly new to this site and have found it most helpful. I am Ruby's mum - Mel and she is 8.5 months. We actually call Ruby our surprise package!!! We were devastated to say the least when we learned our precious gem had DS and a heart defect at birth. This site has lots of wonderful information and caring people to assist you and your family with the 'adjustment'. Our outlook on DS is very different today to what it was and partly because of this site.
Welcome!

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Melanie - Mum to Jakson 03/12/2002 & Ruby (DS) 06/11/2005