downsyn.com does not endorse any advertisers seen here
DownSyn Forum Forum Index DownSyn Forum
Extra Chromosome... Extra Family
 
shoppingShop (CAN)   Watched TopicsWatched Topics   FAQFAQ   SearchSearch   MemberlistMemberlist   CalendarCalendar  RegisterRegister 
 ProfileProfile   MapMap   Log in to check your private messagesLog in to check your private messages   Log inLog in 
Forum TourForum Tour 

new kids on the block


 
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Introductions
View previous topic :: View next topic  
Author Message
nora rhoades
New Member


Joined: 10 Jul 2006

Last Visit: 31 Dec 1969
Posts: 1
Location: California

PostPosted: July 12 2006, 1:03 AM    Post subject:
Reply with quote

HI, MY NAME IS NORA AND I HAVE A 4 YEAR OLD DAUGHTER WITH DOWNSYNDROM. JENA IS MY EVERTHING. I WOULDNT BE WHO I AM TODAY WITHOUT HER. JENA WAS BORN 3-8-04 DIAGNOSED WITH HER DISABILITY AND CONJENITAL HEART DISEASE. AFTER 3 MO OF NIC AND PIC U'S I BROUGHT JENA TO MY EMPTY HOME ABOARD CAMP PENDELTON (MY TROOP WAS SERVING HIS FIRST TERM IN IRAQ)AND STATRED TO LIVE A VERY DIFFRENT LIFE STYLE. SHE HAD AN N-G TUBE (FUN) THAT SHE ALWAYS SEEMED TO PULL OUT UNTIL ONE DAY I DECIDED SHE WOULD EAT OR STARVE AND SHE ATE. BETTER INFACT WITHOUT IT.WE WENT TO DIFFRENT TYPES OF THERAPY STARTING AT 6MO OF AGE AND CONTINUING TO THE PRESENT. JENA HAD OPEN HEART SERGERY TO CORRECT AN AV CANAL DEFECT AT FIVE MONTHS,AND WE HAVE BEEN HAVING THE MOST FUN EVER SINCE. TODAY SHE IS 4 SOON TO BE 5 IN MARCH, SHE ATTENDS PRESCHOOL AT THE LOCAL ELEMENTRY SCHOOL IN TOWN WE NOW LIVE IN HEMET. JENA'S FATHER IS NOT IN THE PICTURE SO WE ARE ON OUR OWN AND LOOKING FOR SOME NEW FRIENDS. HOPE WE CAN MAKE SOME. THANKS FOR HEARING OUR STORY AND LOOK FORWARD TO TALKING WITH YOU.
NORA AND JENA SUE

_________________
NORA RHOADES
cacwgrl75@yahoo.com
proud mom of Wyatt, Dana, Jena (Ds), and Lauren
Back to top
View user's profile Send private message [ Hidden ] AIM Address Yahoo Messenger
momtofourgirls
Senior Member


Joined: 04 May 2006

Last Visit: 31 Oct 2006
Posts: 941
Location: Southern California

PostPosted: July 12 2006, 1:11 AM    Post subject:
Reply with quote

Welcome Nora and Jena. I'm so glad you found us here. This site is wonderful and full of information, laughs, encouragement and shoulders to cry on. Looking forward to getting to know you better. By the way... we live in Orange County, not far from you and dh spends a lot of time in San Diego (he's there right now!)

_________________
Kari
Mom to..
Kiersten 12 yrs.
Madison 10 yrs.
Hannah 7 1/2 yrs.
& Sadie(DS) 2 yrs. (6/17/04)
Back to top
View user's profile Send private message [ Hidden ]
CAmommy2KJ
Super Moderator


Joined: 09 Jan 2005


Last Visit: 31 Oct 2006
Posts: 4041
Location: Clarksville, Tennessee

PostPosted: July 12 2006, 1:37 AM    Post subject:
Reply with quote

*Ahem* And Nora forgot to mention as she so lovingly says "We were trailer trash together". LOL
Nora and I grew up in the same neighborhood and I was good friends with her sister Jill from the time we were REALLY little. When I sent Jill pictures of Kennedy not long after she was born Jill KNEW without me even telling her and said "You have to call Nora!!" So we got back in touch and have been talking about old times and sweet babies Very Happy. Just WAIT till you guys see Jena's picture, she's amazing!!!
Welcome to the board my friend Smile.. now don't go around telling the skeletons in my closet Wink.

_________________
~Renee~
Mommy to:
Kassidy (11.4.99)
(My soccer playin drama queen)
Kameron (11.3.01)
(My soccer playin cookie monster)
Kennedy (5.16.04)(ds)
(Lookin cute in her designer genes)
Baby K (EDD:5.17.07)
(Whatever will we name him/her?)


D is for Down syndrome
Kennedy's caringbridge page
Our family website
Down syndrome awareness products!
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address Yahoo Messenger
ajbest
Super Member


Joined: 13 Apr 2005


Last Visit: 31 Oct 2006
Posts: 3237
Location: NC

PostPosted: July 12 2006, 8:39 AM    Post subject:
Reply with quote

welcome Nora and Jena - so glad you found this wonderful site. look forward to hearing more about sweet Jena, aj

_________________
Momma to Janna (AVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)



"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi
Back to top
View user's profile Send private message   Visit poster's website
kellyrimmer
Super Member


Joined: 14 Feb 2006

Last Visit: 24 Oct 2006
Posts: 2093
Location: Atwood, TN

PostPosted: July 12 2006, 5:28 PM    Post subject:
Reply with quote

WELOCOME!!! I cant wait to see pics of Jena and read all about her! We
welcome again!!!!!

_________________
Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06
Back to top
View user's profile Send private message [ Hidden ]
Koby'sMommy
Super Member


Joined: 04 Feb 2005


Last Visit: 31 Oct 2006
Posts: 2366
Location: South Carolina

PostPosted: July 12 2006, 9:23 PM    Post subject:
Reply with quote

Nora- SO glad to have you here!!! Any friend of Renee's is a friend of ours, and even if you weren't we would love you too!!!! Can't wait to see pictures of Jenna!!!!I bet she is adorable!!! I hope you learn to love it here as much as we all do!!! Sorry to hear about your rough start to life, but I am pleased to hear you are getting along better and things are going well!!!! Keep on posting...just JUMP right in!!!! Hugs-COurtney
PS: Feel free to empty renee's old closets at will-LOL!!!!jk

_________________
Courtney-Wife to Chris- Mommy to Koby (12/16/04)

"I am careful not to confuse Excellence with Perfection.Excellence I can reach for; Perfection is God's Business" -Michael J.Fox
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address Yahoo Messenger
Mary Beth
Super Member


Joined: 30 May 2005


Last Visit: 31 Oct 2006
Posts: 3869
Location: Ohio

PostPosted: July 12 2006, 9:49 PM    Post subject:
Reply with quote

Welcome aboard, Nora and Jena. I also have a four year old, Katarina (DS 1-31-02) She also had AV canal defect and she is now my energizer bunny. I'm looking forward to hearing more about you and Jena. By the way I also have 6 other children, 4 that are adults and three under the age of 10. Sam (DS 02-04-97) Shane (07-01-9Cool and Katarina.
Mary Beth

_________________

Mom to Rick (27), Stephanie (24), Elizabeth (22), Robby(19), Samuel (9 DS, TOF), Shane ( 8 ), Katarina (4 DS, AV Canal Defect)
Back to top
View user's profile Send private message  
Alicia Culp
Member


Joined: 07 Jul 2006

Last Visit: 31 Oct 2006
Posts: 78
Location: Lynnwood, Washington

PostPosted: July 12 2006, 10:18 PM    Post subject:
Reply with quote

Welcome Nora and Jena! I am new to this forum too and I received such a warm welcome. Sounds like you're doing a fantastic job with Jena! Look forward to hearing more from you!

_________________
Alicia
Mom to: Christopher - 19 years old
Lierin - 17 years old
Kayla - 9/6/05 (DS)
Back to top
View user's profile Send private message [ Hidden ]
hannah
Senior Member


Joined: 05 Jun 2005


Last Visit: 30 Oct 2006
Posts: 957
Location: Tennessee

PostPosted: July 14 2006, 2:30 PM    Post subject:
Reply with quote

Welcome Nora and Jena! Can't wait to see some pictures! You'll love it here!

_________________
Beth
Hannah(ds)1.19.05

Back to top
View user's profile Send private message  
naomid
Super Member


Joined: 21 Apr 2003


Last Visit: 30 Oct 2006
Posts: 3731
Location: Santa Monica, CA

PostPosted: July 14 2006, 2:50 PM    Post subject:
Reply with quote

Welcome Smile can't wait to see pictures.

Please feel free to dig out all those skeletones from Renee's closet, we wont tell anyone - promise! Wink

_________________
Naomi
Mum to Callum (DS) 3/03 and Kieran 8/04
Read all about us
Our Photo's
Our Video's

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
jayne
Senior Member


Joined: 05 May 2006

Last Visit: 20 Oct 2006
Posts: 212
Location: Kent, UK.

PostPosted: July 14 2006, 7:41 PM    Post subject:
Reply with quote

Hello Nora and Jena, Welcome to Downsyn Laughing

_________________
Colin and Miranda parents of Bryan (DS) 29/01/03 and Kayla 14/3/05.

"Only the most sensitive fish discover the wetness of water."


http://makebelievers.blogspot.com/
Back to top
View user's profile Send private message [ Hidden ]
Tigger
Super Member


Joined: 28 Jan 2006

Last Visit: 31 Oct 2006
Posts: 1564
Location: NSW, Australia

PostPosted: July 15 2006, 4:58 AM    Post subject:
Reply with quote

Welcome Nora and Jena!!! It is great that you have joined us. As it says in this new format - extra chromosome - extra family. Now you are part of our family and I can't wait to see pics!!

_________________
Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
Back to top
View user's profile Send private message  
Ruby's Mum
Member


Joined: 06 May 2006

Last Visit: 23 Oct 2006
Posts: 37
Location: Australia

PostPosted: July 15 2006, 7:26 AM    Post subject:
Reply with quote

Welcome Nora & Jena. We are fairly new to this site and I have found it more than helpful. I am sure you will make lots of new friends and find it just as helpful as I have.

I look forward to hearing more about you and seeing some pictures.

_________________
Melanie - Mum to Jakson 03/12/2002 & Ruby (DS) 06/11/2005

Back to top
View user's profile Send private message [ Hidden ]
McKenna
Super Member


Joined: 22 Feb 2006

Last Visit: 01 Nov 2006
Posts: 1609
Location: Texas

PostPosted: July 15 2006, 10:49 AM    Post subject:
Reply with quote

Welcome! I can't wait to see pics of your girl!

_________________
McKenna
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Darah Faith 11 Aug 04 (DS and AVSD repaired)
Baby due 18 Nov 06
Darah's Website



Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
NattysMommy603
Super Member


Joined: 12 Jun 2003


Last Visit: 22 Oct 2006
Posts: 1988
Location: Athens, Alabama

PostPosted: July 16 2006, 9:35 PM    Post subject:
Reply with quote

Welcome Nora and Jena! Happy to have you here! Can't wait to see pictures.

_________________
Tracy
Proud momma of
Natalie Marie 6/8/03,
Tyler Slayton 4/15/05
Baby 3 EDD 1/3/07




Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address Yahoo Messenger
emma'smom
Senior Member


Joined: 09 Sep 2005


Last Visit: 20 Oct 2006
Posts: 471
Location: Coeur d'Alene, Idaho

PostPosted: July 17 2006, 11:06 AM    Post subject:
Reply with quote

Welcome Nora. I look forward to hearing more about you and your kids.

You said you live in Hemet? That's southern California isn't it?? My sister and her husband just moved to Loma Linda in June. He will be going to medical school at LLU.

_________________
Cheryl

Wife to DH Kent Smile

Mom to
Justin 2/13/02
Emma 6/23/05


Back to top
View user's profile Send private message [ Hidden ] AIM Address
mesmom
Senior Member


Joined: 12 Oct 2005


Last Visit: 26 Oct 2006
Posts: 542

PostPosted: July 18 2006, 8:13 AM    Post subject:
Reply with quote

Welcome!! I can not wait to see pics of your little darlings.

_________________
"All the darkness of the world, can not put out the light of one small candle." Author unknown
Back to top
View user's profile Send private message  
Grandma to Olivia
Senior Member


Joined: 24 Sep 2004


Last Visit: 31 Oct 2006
Posts: 755

PostPosted: July 18 2006, 3:27 PM    Post subject:
Reply with quote

Welcome! So glad you joined us! Your daughter sounds wonderful, can't wait to hear more! My granddaughter Olivia will be 3 next month, and she is such a joy to our family!

_________________
Cindy
Olivia's Grandma

Bitter are the tears of a child: Sweeten them. Deep are the thoughts of a child: Quiet them. Sharp is the grief of a child: Take it from him. Soft is the heart of a child: Do not harden it. - Pamela Glenconner
Back to top
View user's profile Send private message  
victoria'smom
Senior Member


Joined: 16 Jul 2006

Last Visit: 25 Oct 2006
Posts: 103
Location: IDAHO USA

PostPosted: July 18 2006, 8:55 PM    Post subject:
Reply with quote

we are new here too welcome you din just gain a new friend u got a whole new family Very Happy Very Happy Very Happy

_________________
Back to top
View user's profile Send private message  
JenBrock'sMom
Super Member


Joined: 28 Sep 2005


Last Visit: 31 Oct 2006
Posts: 3272
Location: Des Moines, Iowa

PostPosted: July 19 2006, 3:50 PM    Post subject:
Reply with quote

Nora and Jena welcome to Down syn. You are hear and you have made new friends already! What a great summary of Jena's first 4 years. It is great to read how well she is doing. Post photos soon!

_________________
JenBrock'sMom & wife to Jay
Brock 7/28/05

Back to top
View user's profile Send private message [ Hidden ]
jacknbellasmama
Senior Member


Joined: 19 Apr 2006

Last Visit: 31 Oct 2006
Posts: 362
Location: Huntington Beach, CA

PostPosted: July 22 2006, 1:40 PM    Post subject:
Reply with quote

welcome!! we live in orange county..huntington beach. i go by hemet all the time on my way to visit my grandma in palm springs!

_________________


Wife to John
Mommy to Keeley 9/22/01, Bella 2/19/04, Jack Ryan 4/7/06 (DS)
http://www.carepages.com/ServeCarePage?cpn=JackRyanClark&extrefid=tlcinvite
Back to top
View user's profile Send private message [ Hidden ]
Josiesmom
Super Member


Joined: 14 Dec 2004


Last Visit: 31 Oct 2006
Posts: 1166
Location: Waterloo, Iowa -- USA

PostPosted: July 22 2006, 3:02 PM    Post subject:
Reply with quote

Welcome Nora!! Glad to have you and Jena here!!! Looking forward to getting to know you and seeing pictures of your sweet girl!

_________________
Brigitte
Wife to Wonderful Husband -- Joe
Mommy to Josie (DS) 10/27/04
and Katie 11/30/05
"Most People Only Dream of Angels..... I Get to Hold Both of Mine!"

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
Display posts from previous:   
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Introductions All times are GMT - 4 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
You cannot post calendar events in this forum


Down Syndrome: For New Parents

Google
Web www.downsyn.com

Powered by phpBB © 2001, 2006 phpBB Group :: Spelling by SpellingCow.