DownSyn Forum

woody

Hi all.
I first came here around xmas 2004.
My partner had our second daughter and when she was born (we didnt have tests), she was diagnosed with Downs Syndrome.
At the time my life fell to pieces and had all the thoughts that every other parent affected by this had.
Im only 33 and my partner is 27 btw.......all the more suprising.

Well........i think its update time.

My daughter, Kimberely, is now 18 months old and my life has never been better. I also have a daughter thats 7 and they IDOLISE each other.

I have to admit, we were lucky that Kimberely had nothing wrong with her heart or another problems but the blow was still very severe at the time.

Really i just want to say a few things about it.

1). Its a devastating thing to hear when someone tells you...BUT...life does go on and normality soon comes back.

2). I watch her EVERYDAY learning new things and being a little girl as little girls should.

3) She has just stood up for the first time and i thought i would burst with pride.

4). She says dadda. WHAT a feeling!

5). Shes into EVERYTHING ..... great!

Lastly....Thankyou so much for this forum.
Like i said, i havent been here for a year but i thought it was time to say a BIG thankyou for making things just that bit easier. I CANT THANK YOU ENOUGH!

If anyone here needs a little support or a friendly ear then please just PM me. Lifes tough but feeling isolated is sooo much tougher!!

I also though you might like to say 'hello' my little angel.

rhonda · Posted: July 20 2006, 1:23 PM Post subject:

Welcome back!! Kimberely is adorble and a big way to go on her standing!!

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Rhonda

Taylor 13, Jordan 12, Dylan 3

marlene · Posted: July 20 2006, 1:24 PM Post subject:

Wow! So great to hear your update!!!! Kimberly is absolutely gorgeous! It is really great to hear the pride in your "voice" when you talk about your daughter!!! Thanks for filling us in!

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Marlene, mommy to my precious Aleena (1/30/04)

hannah · Posted: July 20 2006, 1:51 PM Post subject:

Welcome back! Kimberly is adorable and congrats on the standing!!!

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Beth
Hannah(ds)1.19.05

vonda · Posted: July 20 2006, 1:58 PM Post subject:

Isn't it amazing how total devastation turns into complete bliss, joy and WONDERFUL. It's like God's telling us "if you can JUST hold on, make it through and don't give up on Me I promise that things will turn out perfectly". And it does. At first people can tell you till they are blue in the face that things will be okay and you just don't believe them. You have to live it for yourself. Your daughter is beautiful and such a blessing.

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Vonda, mommy to Peyton, Sophie, Noah(Ds) and Halle

naomid · Posted: July 20 2006, 2:08 PM Post subject:

Welcome back and thanks for the update. WTG Kimberely on standing, those milestones are all the sweeter because you know how much hard work has gone into getting there.

Hope you'll stick around this time and post a bit more.

_________________
Naomi
Mum to Callum (DS) 3/03 and Kieran 8/04
Read all about us
Our Photo's
Our Video's

waith · Posted: July 20 2006, 3:52 PM Post subject:

Welcome back. Kimberelys beautiful and it looks like she's doing soooo well.
Where in Uk are you?
We should all join the frapp map so we have an idea where in the UK everyone is so we can arrange a Downsyn meet up sometime in the near future.

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Maxine UK. Mum to Elliott 12, Dominic 2 DS.

Jamie · Posted: July 20 2006, 4:18 PM Post subject:

What a doll!! She is just beautiful! My daughter just turned 17 months. I agree with what you said about life eventually becoming normal again. It's overwhelming at first and then you realize "hey, I can do this." Looking forward to hearing more about your little angel; sounds like she is doing great! WTG Kimberly!

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Mary Elizabeth Feb.16, 2005

helandy.cop · Posted: July 20 2006, 5:18 PM Post subject:

Great to see you back. Kimberley looks, and sounds like she's doing fantastically. And she's adorable. So glad you've reached this point of acceptance, love and enjoyment of your little girl.

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Helen

Mum to Rachael Kinza (25/07/01), Matthew Isaac DS (14/06/03) and Hannah Cerys (14/06/05) - my gorgeous children! :p

naomid · Posted: July 20 2006, 5:53 PM Post subject:

Here's the link to the Downsyn map http://www.frappr.com/downsyn

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Naomi
Mum to Callum (DS) 3/03 and Kieran 8/04
Read all about us
Our Photo's
Our Video's

mesmom · Posted: July 20 2006, 9:39 PM Post subject:

Oh my goodness, she is absolutely adorable. I wish I could swoop her up in cyber space and hug her. Welcome back. I did the same thing, came in, watched for a while. Then I found myself enjoying the company so much, I have not left. Can't wait to hear more about your bundle of joy.

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"All the darkness of the world, can not put out the light of one small candle." Author unknown

Josiesmom · Posted: July 20 2006, 10:39 PM Post subject:

She is absolutely adorable. They do change your world don't they.. Makes you cherish everything around you that most people would take for granted. I love our babies!!!

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Brigitte
Wife to Wonderful Husband -- Joe
Mommy to Josie (DS) 10/27/04
and Katie 11/30/05
"Most People Only Dream of Angels..... I Get to Hold Both of Mine!"

kathleen · Posted: July 21 2006, 1:33 AM Post subject:

WElcome back. Kimberely is absolutely beautiful. She is doing great and it sounds like you are too! Good for you! IT is a long and tough road, but you made it. It was hard on me too, but Avery is now 22 mos and amazing!

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Kathleen - Avery's Mommy
Chico, CA

keri · Posted: July 21 2006, 1:49 AM Post subject:

Welcome back and Kimberly is just beautiful

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Keri Mom to:
Sydney 9-25-01
Jack 2-10-03
Kaitlyn DS 7-30-05 Brave Heart 2-24-06

woody · Posted: July 21 2006, 3:18 AM Post subject:

Hi all.
Thanks for all the kind words.

I'm not a God fearing fella and although i wanted you all to see Kimberely i didnt do it to show her off (although thats nice aswell).

I remember i googled and came here the night she was born.
Just that one night bought a little peace to the most turbulent day of my life and i will NEVER forget the kind words and understanding i received from people who KNEW what my world was like.

I came here to show my appreciation for that and to hopefully let others read my story who were as low as me. With any luck, they may then find what i did.

Im still not totally at peace with myself, i doubt i ever will be, but speaking to people like you guys and gals and just having a listening ear makes the world of difference.

I doubt if i will post often but i will just post milestones and pictures to help others like me.

I cant thankyou all enough. You have no idea how much you helped back then.

Daren

Tigger · Posted: July 21 2006, 7:23 AM Post subject:

Thanks for sharing. Kimberely is beautiful.

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Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

JenBrock'sMom · Posted: July 21 2006, 10:02 AM Post subject:

What a great update - and you are obviously so in love! You are right the diagnosis news is so tough - but life is so much more than that diagnosis.

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JenBrock'sMom & wife to Jay
Brock 7/28/05

LinMac · Posted: July 21 2006, 6:15 PM Post subject:

Sounds like you have a wonderful daughter Kimberly!
Thanks for the update.

You are so right in what you said. It takes time to get the 'rythm' back into your life after a DS diagnosis, even when there are no medical complications.

Well done girl!

Looking forward to hearing more about your precious daughter.

_________________
Linda & John
mom to Hannah Kate (Age Cool

, Robert (04/16/2004, DS)

owensmom · Posted: July 22 2006, 12:17 AM Post subject:

Thanks for your post! Your daughter is beautiful! I am new here, my son, Owen is just 3 weeks old. It is sometimes hard for me to believe that it gets easier. I find that I often forget about the ds, and then it hits me like a ton of bricks. This site has been wonderful to me, and has helped so much, in such little time. I look forward to hearing Kimberly's milestones and seeing more pictures!

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Tricia
mom to Jason 12/24/03 and Owen (ds) 6/29/06

jacknbellasmama · Posted: July 22 2006, 12:21 AM Post subject:

WTG Kimberly on the standing!!!! Very Happy

Thanks for the update! Your little one is adorable!

_________________

Wife to John
Mommy to Keeley 9/22/01, Bella 2/19/04, Jack Ryan 4/7/06 (DS)
http://www.carepages.com/ServeCarePage?cpn=JackRyanClark&extrefid=tlcinvite

woody · Posted: July 22 2006, 2:46 AM Post subject:

owensmom wrote:

Thanks for your post! Your daughter is beautiful! I am new here, my son, Owen is just 3 weeks old. It is sometimes hard for me to believe that it gets easier. I find that I often forget about the ds, and then it hits me like a ton of bricks. This site has been wonderful to me, and has helped so much, in such little time. I look forward to hearing Kimberly's milestones and seeing more pictures!

Isnt it strange how everyone feels like this. I know exactly what you mean.

When your busy it doesnt cross your mind and then *WHAM*, it all hits you at once.
It does get easier i promise you. Just hang on in there.

Maysonsmama · Posted: July 22 2006, 9:43 AM Post subject:

welcome back! you have beautiful little girl!

_________________
Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS

Yailet · Posted: August 01 2006, 11:55 AM Post subject:

She's beautiful, please keep posting, we would love to hear from you more often.

_________________
Wife to Carlos, mom to Daniel Brandon 6/15/04 DS
We live in Miami, Fl

kellyrimmer · Posted: August 01 2006, 10:06 PM Post subject:

Welcome back and she is a beutiful baby girl!

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Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06

pookeymom · Posted: August 01 2006, 10:11 PM Post subject:

Very precious little gal you have, she seems to be doing very well. Come back often.

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Stacy
Mom to Tristin (9), Camille (5), Elijah (3), Caleb and Isaac (1)

Grandma to Olivia · Posted: August 03 2006, 1:53 PM Post subject:

Welcome back! Kimberely sounds like she's doing just wonderful! She sure is beautiful!!

_________________
Cindy
Olivia's Grandma

Bitter are the tears of a child: Sweeten them. Deep are the thoughts of a child: Quiet them. Sharp is the grief of a child: Take it from him. Soft is the heart of a child: Do not harden it. - Pamela Glenconner

hayden's mom · Posted: August 03 2006, 9:21 PM Post subject:

Welcome Back!!! Kimberly is beautiful!!!

_________________
Mommy to:
Holden 6
Hayden 2 (ds)
Jacie 1
And the Angels Danced the day you were born

Mary Beth · Posted: August 04 2006, 10:42 AM Post subject:

Your daughter is beautiful and you have been blessed.
Mary Beth

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Mom to Rick (27), Stephanie (24), Elizabeth (22), Robby(19), Samuel (9 DS, TOF), Shane ( 8 ), Katarina (4 DS, AV Canal Defect)

EliasMom · Posted: August 04 2006, 11:06 AM Post subject:

welcome back !! Smile

kimberly is beautiful!!

my boy is soon to be 18 months

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Ali, wife to Felipe, mom to Elias (Feb 21 2005)

sarahuk2 · Posted: August 08 2006, 11:31 AM Post subject:

Hello and welcome back to the site. I know how you felt and know how you feel. I think it is not so much a problem with our children per se that is difficult to deal with - it is what DS means to us each individually which is derived from so many sources - preconceptions, snatched glimpes of people, media stories and so on. What helps me most of all is a combination of time - it gets even better as they get older, Immy is now 3 - and also seeing beyond the syndrome and looking at the child, the person.

It would be lovely to hear more about your little girl so I hope you post again and that you have a good look at the others on this site - there are some really inspirational people and children here.

Sarah

PS Which part of the UK are you from

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Mum to Charlie,9, Tom 4 and Imogen, 3!(ds)

woody · Posted: August 10 2006, 12:51 PM Post subject:

We live in South Wales but are both English.

sarahuk2 · Posted: August 10 2006, 1:04 PM Post subject:

What a lovely part of the world to live in - we have some friends who live in Llantwit Major and there are some Welsh members on another email list that I belong to - DSUK (it's very good). They have a little boy called Morgan who is around 1.

I am a quarter Welsh myself and a Devonian by birth but have ended up living in the Midlands

How did you end up in Wales?

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Mum to Charlie,9, Tom 4 and Imogen, 3!(ds)

woody · Posted: August 10 2006, 2:34 PM Post subject:

My partner is Welsh.... I just tagged along Laughing

JenBrock'sMom · Posted: August 10 2006, 3:32 PM Post subject:

Thanks for the update and for sharing a picture of your sweet girl.

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JenBrock'sMom & wife to Jay
Brock 7/28/05