downsyn.com does not endorse any advertisers seen here
DownSyn Forum Forum Index DownSyn Forum
Extra Chromosome... Extra Family
 
shoppingShop (CAN)   Watched TopicsWatched Topics   FAQFAQ   SearchSearch   MemberlistMemberlist   CalendarCalendar  RegisterRegister 
 ProfileProfile   MapMap   Log in to check your private messagesLog in to check your private messages   Log inLog in 
Forum TourForum Tour 

Samantha is home


 
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Brags
View previous topic :: View next topic  
Author Message
Nikki710
New Member


Joined: 15 Jul 2006

Last Visit: 26 Oct 2006
Posts: 21
Location: Tioga County PA

PostPosted: August 23 2006, 11:01 AM    Post subject:
Samantha is home
Reply with quote

Hi Everyone!

I wanted to do a post before but with all the appointments and taking care of 3 kids I havent been able to get online that much, Thanks to the wonderful ladies that emailed and visited Samantha's webpage asking about her I thought ok maybe I should get over there and share the good news before I get swamped again.
I will start from where I can remember from my last post (i think LOL)

Samantha had gotten an infection in her incision and intestines where they performed the surgery and they had to go in and clean out all of the infection which was not a good thing for any of us and we thought it would set her coming home date into september once again, within days the infection was fully gone and Sammy was having a great week -health wise. They had took her off breast milk feedings and started her on Aliemtum (sp) and two types of stomach medications reglan & pepcid to control her throwing up and bowel problems and that has helped 110%. After they figured out most of her bad problems had been fixed they told me if she continued to do as good as she was they would let me take her home.

I stayed in the NICU for 5 days & nights with her making sure nothing happened, and I thought me staying there would help her stay on the healthy track, it seemed like everytime I left the hospital is when she would get sick and I couldnt handle hearing she couldnt come home again, so I stayed. It worked though, she continued to stay healthy with no major set backs at all, a few minor things that fixed themselves, She was supposed to come home on the 10h but didnt come home until Aug 12.

So anyways Sammy is home and doing great! Shes been home for about 1.5 weeks, and is 44 days old Sad I feel kinda sad that I didnt get to have that "newborn" at home because now she seems to be so much older than she really is. She is now 8.12 lbs and 18 1/2 inches, She has gained over 2 lbs but only 1/2 inch since birth, shes tiny but to me she looks bigger.

She has the softest cry, not one of those high pitched "need ear plugs" kind of cry, she barely cries for anything but when she does she doesnt want to stop crying. Sammy spends most of her days sleeping and stays up a little too long during the night, and eats a lot. I cannot believe how much she looks like my other daughter Kayla. People stare and ask is she going to be ok, like she has this horrible disease, its really annoying that people are so ignorant, i mean yes ask questions but dont ask me questions like is she going to be ok, shes doing great, she might look a little different but thats alright. I cant be any happier with Sammy, she is mine and I am hers and thats all that matters.

Im thrilled to have her home! I am however not thrilled with the doctors appointments, the nurses at this point. She still has not started head start program but the doctors want to see her weekly and there is this nurse that comes to the house and watches me take care of her which is very upsetting. Im home a few days a week but then the other doctors from the hospital need to see her once a week too which is a 2 hour drive that i shouldnt have to make when she has her PCP here. Its confusing right now, nobody knows what they are doing and its making me kinda upset that I have have to travel here and there to see doctors who arent helping me in any other way but doing weight checks. She has another follow up appointment with the pedi surgeon to make sure that everything is going smoothly inside her bowels.

I wish the headstart program would get the ball rolling here, I dont want to have to wait a long time to get Sammy started. How long did you have to wait for early head start?

I thought I would be getting a lot of help from different agencies for traveling, formula and so on, but I have yet to get approved for anything. Im having a bit of trouble getting stuff I need for Samantha and they dont care so we have to get this straightened out as soon as possible. The state is the worst and they keep giving me the run around.

well I went on for a long time now about everything so here are a few pics from the past few days.

some are from discharge day to now. I still have to upload new ones so I will post them when I get more time Smile Its very hard to get all three of them looking good in one picture lol I think they had enough already.






_________________
Mommy to Kayla 4, Danny 2, Samantha (DS) 7-10-06


http://www.babiesonline.com/babies/s/samantha0710/
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
Mom2Sean
Super Member


Joined: 03 Oct 2004


Last Visit: 31 Oct 2006
Posts: 1437
Location: Kansas

PostPosted: August 23 2006, 11:32 AM    Post subject:
Reply with quote

What a precious baby you have! Sounds like she's had a really rough start, I hope you guys can start to settle in at home. The appts do taper off, I promise!

_________________
Deborah, Momma to Aidan Riley 11-15-02 & Sean Patrick 9-4-04

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
pookeymom
Senior Member


Joined: 13 May 2006

Last Visit: 31 Oct 2006
Posts: 538
Location: DuBois, PA

PostPosted: August 23 2006, 11:37 AM    Post subject:
Reply with quote

I soooo loved the BIG Brother, BIG sister shirts, what a cute family you have. Glad to hear that Samantha is home and doing better. Where is Tioga County in PA?? I'm from DuBois PA which is Central PA. Take care and hope you get the ball rolling on Early Intervention and such.

_________________
Stacy
Mom to Tristin (9), Camille (5), Elijah (3), Caleb and Isaac (1)

Back to top
View user's profile Send private message [ Hidden ] MSN Messenger
kris10z
Senior Member


Joined: 24 Jul 2006

Last Visit: 31 Oct 2006
Posts: 735
Location: North Carolina

PostPosted: August 23 2006, 12:28 PM    Post subject:
Reply with quote

YEAH! I also love the big brother/sister shirts!

_________________
Kristen: Wife to Scott, Mommy to Ethan (5/25/01, DS & ALL)


Back to top
View user's profile Send private message   Visit poster's website Yahoo Messenger
rhonda
Super Member


Joined: 24 Jan 2003


Last Visit: 31 Oct 2006
Posts: 4516
Location: Syracuse, NY

PostPosted: August 23 2006, 12:54 PM    Post subject:
Reply with quote

Great news!! Your children are all beautiful!! Samantha looks adorable in her little outfits, so stylish!!

_________________


Rhonda

Taylor 13, Jordan 12, Dylan 3
Back to top
View user's profile Send private message [ Hidden ]
EliasMom
Senior Member


Joined: 14 Dec 2005

Last Visit: 31 Oct 2006
Posts: 972
Location: Monterrey, Mexico

PostPosted: August 23 2006, 1:12 PM    Post subject:
Reply with quote

aww she's so little and so beautiful!! she's a doll!

im so glad that she's home finally.

btw beautiful kids

_________________
Ali, wife to Felipe, mom to Elias (Feb 21 2005)

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address MSN Messenger
waith
Senior Member


Joined: 15 Apr 2004


Last Visit: 30 Oct 2006
Posts: 803
Location: Manchester, England

PostPosted: August 23 2006, 1:38 PM    Post subject:
Reply with quote

So glad Samanthas home. Things will settle down with services. You just relax, concentrate on having some fun times as a family and enjoying your time with her. Get out and about, aim to lead the same life as you did with your other children. The silly comments do tend to stop once people see you getting on with things, laughing and enjoying life just like everyone else. Once Dominics physical health improved our life's returned to pretty much the same as before. But better we laugh, play and enjoy life much more, because we make the best of each day and don't take anything for granted.

_________________
Maxine UK. Mum to Elliott 12, Dominic 2 DS.

Back to top
View user's profile Send private message [ Hidden ]
Nikki710
New Member


Joined: 15 Jul 2006

Last Visit: 26 Oct 2006
Posts: 21
Location: Tioga County PA

PostPosted: August 23 2006, 9:43 PM    Post subject:
Reply with quote

pookeymom wrote:
I soooo loved the BIG Brother, BIG sister shirts, what a cute family you have. Glad to hear that Samantha is home and doing better. Where is Tioga County in PA?? I'm from DuBois PA which is Central PA. Take care and hope you get the ball rolling on Early Intervention and such.


Tioga county is a little bit past central PA, I think Williamsport is considered Central also are you near there? Im about 40 mins from Lycoming mall if you are familar with that, or 20 minutes from corning NY
Im orginally from N.E Philly we just moved here about 2 years ago Smile

_________________
Mommy to Kayla 4, Danny 2, Samantha (DS) 7-10-06


http://www.babiesonline.com/babies/s/samantha0710/
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
Nikki710
New Member


Joined: 15 Jul 2006

Last Visit: 26 Oct 2006
Posts: 21
Location: Tioga County PA

PostPosted: August 23 2006, 9:47 PM    Post subject:
Reply with quote

waith wrote:
So glad Samanthas home. Things will settle down with services. You just relax, concentrate on having some fun times as a family and enjoying your time with her. Get out and about, aim to lead the same life as you did with your other children. The silly comments do tend to stop once people see you getting on with things, laughing and enjoying life just like everyone else. Once Dominics physical health improved our life's returned to pretty much the same as before. But better we laugh, play and enjoy life much more, because we make the best of each day and don't take anything for granted.


Wink
after having all this on me Ive realized how much I took for granted, even the simple things.
Im hoping it starts to slow down shes been home for a little over a week and Ive been to 9 appointments and have had 6 house visits Sad I thought the first week home would be easier on me so I could have some much needed bonding time with her, I still havent gotten that much one on one time with her which I would love to have its just so fast paced.

_________________
Mommy to Kayla 4, Danny 2, Samantha (DS) 7-10-06


http://www.babiesonline.com/babies/s/samantha0710/
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
keri
Senior Member


Joined: 28 Jan 2006

Last Visit: 31 Oct 2006
Posts: 672
Location: MN

PostPosted: August 24 2006, 12:18 AM    Post subject:
Reply with quote

YEAH SAMMY!!!!!
So glad you got her home. Now the fun can start.

_________________
Keri Mom to:
Sydney 9-25-01
Jack 2-10-03
Kaitlyn DS 7-30-05 Brave Heart 2-24-06
Back to top
View user's profile Send private message   Visit poster's website Yahoo Messenger
kathleen
Super Member


Joined: 06 Dec 2005

Last Visit: 28 Oct 2006
Posts: 1891
Location: Chico, CA

PostPosted: August 24 2006, 11:16 AM    Post subject:
Reply with quote

The best news I hav heard in a long time! She is a fighter....watch out! SHe is such a sweet little thing, I love her little outfits. Can't wait to see more pictures. Give her a little squeeze from us!

_________________
__________________
Kathleen - Avery's Mommy
Chico, CA


Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
McKenna
Super Member


Joined: 22 Feb 2006

Last Visit: 01 Nov 2006
Posts: 1622
Location: Texas

PostPosted: August 24 2006, 12:29 PM    Post subject:
Reply with quote

YAY!!! I'm so glad she's home and you guys can start getting a more normal life again (although it's going to be a very "new" normal!!) Darah started early intervention at a month old...we were in the NICU for 15 days...so it took about 2-3 weeks to get it going after we were discharged. Good luck, but remember to just enjoy your new baby too. I think it can be so overwhelming because there's so much to learn, but it will all come!!

_________________
McKenna
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Darah Faith 11 Aug 04 (DS and AVSD repaired)
Baby due 18 Nov 06
Darah's Website



Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
Jamie
Senior Member


Joined: 01 Nov 2005

Last Visit: 31 Oct 2006
Posts: 174
Location: GA

PostPosted: August 24 2006, 3:16 PM    Post subject:
Reply with quote

I'm glad your little one is home. It is very overwhelming at first, but the apts will slow down as earlier mentioned. Make sure you enjoy your sweet new addition. She is just beautiful!

_________________

Mary Elizabeth Feb.16, 2005
Back to top
View user's profile Send private message [ Hidden ]
JenBrock'sMom
Super Member


Joined: 28 Sep 2005


Last Visit: 31 Oct 2006
Posts: 3272
Location: Des Moines, Iowa

PostPosted: August 25 2006, 7:25 PM    Post subject:
Reply with quote

She is a beauty! Sorry you are getting the run around. You might try reaching out to your local Ds support group to see if they have ideas to help improve the state's response and to get your therapies started. Good Luck!

_________________
JenBrock'sMom & wife to Jay
Brock 7/28/05

Back to top
View user's profile Send private message [ Hidden ]
Josiesmom
Super Member


Joined: 14 Dec 2004


Last Visit: 31 Oct 2006
Posts: 1166
Location: Waterloo, Iowa -- USA

PostPosted: August 25 2006, 7:52 PM    Post subject:
Reply with quote

She is absolutely precious and it appears that she is doing wonderfully. Enjoy her!

_________________
Brigitte
Wife to Wonderful Husband -- Joe
Mommy to Josie (DS) 10/27/04
and Katie 11/30/05
"Most People Only Dream of Angels..... I Get to Hold Both of Mine!"

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
Display posts from previous:   
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Brags All times are GMT - 4 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
You cannot post calendar events in this forum


Down Syndrome: For New Parents

Google
Web www.downsyn.com

Powered by phpBB © 2001, 2006 phpBB Group :: Spelling by SpellingCow.