DownSyn Forum

Kotvas8 · Posted: September 03 2006, 5:35 PM Post subject: Good to find this site

I found your site last week, and it has been a great encouragement. We love our little Joel. He is a DEAR. I was one who as some of you did not ever expect to have nor think I would be able to handle having a child with down syndrome, or other special needs. God knew differently, and my husband's response brought me backed me back to reality. He said, Joel is who he is and we WILL love him no matter what. He helped me to realize that God has a plan for little Joel's life as well as ours, and He doesn't make mistakes. We have grown to love him as much as each of our other children. Each are special in their own ways. What treasures, and what a wonderful responsibility entrusted to us.
Joel was born 1/28/2006. He did not have any heart or thyroid problems, but his growth has been soooo slow. He just started eating this last week solids, and thus is filling out a tad, but it seems to me that he had so much fluid when he was born. His "jowls" would roll to one side or the other as you moved him. The next week or two, he lost all this, and he looked so much smaller. He only gained 200 grams a month, half a pound, I guess.
We are missionaries in Peru, and the Docs here said as long as he is gaining, not to worry. But, when he weighed 10 lbs at 6 and a half months, I was worrying. He supposedly weighed 7 at birth. I think he gained a pound in the two weeks he ate solids. Other than this, he is doing great. He has PT once every 2 weeks. We have a deaf 2 year old who we care for who was abandoned, and they get therapy together. Joel' Very Happy

s brothers and sisters love him and help a lot. Sorry for rambling.
Again, good to find the forum, and thanks for sharing your stories.
Lisa- happy wife to Joe, and mom of 8 dears
Can someone tell me how to add a pic?

_________________
God has given us children to raise for Him. He promised us to give us the wisdom we would need if we would just ask him for it. True, in ourselves we cannot, but through Him, we can.
James 1:5, Philippians 4:13 Christ makes the difference in my life. Now I know what it means to rejoice in the Lord. Thanksgiving is the key. In everything give thanks.... And I have SO much to be thankful for. One DEAR HUSBAND, Joe, and eight dear children, Joseph, 9/19/89. Julianne, 8/2/91, James, 10/23/93, Jared, 10/12/95, Judson, 12/16/97, Joy, 9/28/2000, John, 12/30/2003, Joel DS 1/28/2006.

twyceborn · Posted: September 03 2006, 5:51 PM Post subject:

Lisa, I am so glad you found this site!!! You are going to be so blessed by these parents. I will let someone else explain how to post a picture. They have much more experience. Looking forward to seeing the pictures.

_________________
Kim and Justin (08/15/95)

NattysMommy603 · Posted: September 03 2006, 7:19 PM Post subject:

So glad you found us! Your family sounds great. I'm sorry I can't be of any help in the slow growth as my Natalie, who's 3, has always grown pretty good, except for in utero. Hope to get to know more about you and your family.

_________________
Tracy
Proud momma of
Natalie Marie 6/8/03,
Tyler Slayton 4/15/05
Baby 3 EDD 1/3/07

Maysonsmama · Posted: September 04 2006, 4:36 PM Post subject:

what a beautiful family you have. joel is only 3 weeks older than our mayson!!! welcome!

_________________
Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS

LinMac · Posted: September 04 2006, 4:45 PM Post subject:

Lisa

What a wonderful family you have! And all first names start with J! That's amazing!

My boy was small for many months. He weighted in at 3lbs 13ozs at birth. Like Joel Robert had no other medical complications. I spent many months trying to fatten him up. I must admit as soon as I introduced solids he didn't look back!
Hoping Joel starts to put weight on and follow in Robert footsteps.
Looking forward to hearing all about Joel's progress
BTW....I'm Linda, Robert's mom, a big welcome to the forum.
.

_________________
Linda & John
mom to Hannah Kate (Age Cool

, Robert (04/16/2004, DS)

waith · Posted: September 04 2006, 5:14 PM Post subject:

You have a beautiful family. Welcome to Downsyn.

_________________
Maxine UK. Mum to Elliott 12, Dominic 2 DS.

rhonda · Posted: September 04 2006, 8:11 PM Post subject:

Hello and welcome!! Looking forward to learning more about you and your family.

_________________

Rhonda

Taylor 13, Jordan 12, Dylan 3

Jenna · Posted: September 04 2006, 8:39 PM Post subject:

Hello and welcome! Mom of 8... wow! Can't wait to learn more about you and your family.

By the way, a lot of my husbands family are also missionaries in Peru. Do you happen to know the Rose's?

_________________
Jenna
Proud mama to these beauts!!!

Nate 3 years old & Lana 18 months old

EliasMom · Posted: September 04 2006, 8:44 PM Post subject:

welcome!! joel is so handsome!!

we live in mexico Smile

_________________
Ali, wife to Felipe, mom to Elias (Feb 21 2005)

Grandma to Olivia · Posted: September 04 2006, 8:50 PM Post subject:

Welcome! Joel is adorable! You have a beautiful family!

_________________
Cindy
Olivia's Grandma

Bitter are the tears of a child: Sweeten them. Deep are the thoughts of a child: Quiet them. Sharp is the grief of a child: Take it from him. Soft is the heart of a child: Do not harden it. - Pamela Glenconner

Josiesmom · Posted: September 04 2006, 8:58 PM Post subject:

Welcome!! Glad to have you here! Joel is absolutely beautiful as are your other children!! Look forward to hearing more about you and your family.

_________________
Brigitte
Wife to Wonderful Husband -- Joe
Mommy to Josie (DS) 10/27/04
and Katie 11/30/05
"Most People Only Dream of Angels..... I Get to Hold Both of Mine!"

Laurieannie · Posted: September 04 2006, 10:11 PM Post subject:

Welcome to Downsyn Lisa and family! This is a great site full of wonderful people. You'll get a lot of comfort and answers here. My son Reuben is 28 months old and we haven't had any growth issues, so I can't help you there. There is another little boy in our group, born the day before Reuben and he is much smaller, (weighs less than 20 lbs) but he has a heart condition and his mom and dad are built smaller than Wayne or I Very Happy

I think Reuben just has a natural stocky build.
It sounds like Joel just needed some solid food to fatten him up!
Anyway I know he'll continue to grow and thrive with your love and support! You have a great looking family. I look forward to hearing more about you all.

_________________
Laurie- wife to Wayne
mom to Kate-22, Micah-5 and Reuben(ds)4/21/04

If you treat an individual as he is, he will stay as he is; but if you treat him as if he were what he ought to be and could be, he will become what he ought to be and could be. ~Goethe

owensmom · Posted: September 04 2006, 11:21 PM Post subject:

welcome! you have a beautiful family! i look forward to hearing more about joel.

_________________
Tricia
mom to Jason 12/24/03 and Owen (ds) 6/29/06

kellyrimmer · Posted: September 05 2006, 1:00 AM Post subject:

What a beautiful family you have. Welcome and Hello!!! I cant wait to read more about you and your family

_________________
Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06

Tigger · Posted: September 10 2006, 10:32 AM Post subject:

Welcome to downsyn. What an awesome family. I have a Joel too, he is 8 now. My little Talitha is growing very slowly too. She is now nearly 10 months old and is only 5.5kg. Glad you found us!!!
Here is a link to instructions about picture posting: http://www.downsyn.com/phpbb2/viewtopic.php?t=16676
It is at the start of the photos section if the link doesn't work.

_________________
Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

momtofourgirls · Posted: September 10 2006, 11:06 AM Post subject:

Welcome, Welcome!!! I am looking forward to hearing more about your big family. It looks like a lot of fun! Hope you find the information, support and laughter I find on this site.

_________________
Kari
Mom to..
Kiersten 12 yrs.
Madison 10 yrs.
Hannah 7 1/2 yrs.
& Sadie(DS) 2 yrs. (6/17/04)

Carson's Mom · Posted: September 10 2006, 11:56 AM Post subject:

Hello and welcome to the site! This site will be a great source of information and support for you. You have a beautiful family. I can't wait to learn more about you and your family.

Kayla

_________________
,
Kayla, Callan(5), Kenna (3), Carson 1 yr,

JenBrock'sMom · Posted: September 11 2006, 2:53 PM Post subject:

Lisa and family welcome to Down syn - Joel is gorgeous. What a life story you have to share! I'm Jen mom to Brock who is 13 months and doing great. I look forward to hearing more about Joel and the rest of our family.

_________________
JenBrock'sMom & wife to Jay
Brock 7/28/05

cymorales · Posted: September 11 2006, 11:54 PM Post subject:

Hi there and welcome!!! Your little Joel is soooo cute!!! I love that name!

My family is from Peru. Some are in Lima but origionally they are from (now Im' gonna spell this wrong) Yuanchio(?) My father came to the States when he was 19. I am scheduled to go back in Feb. I'm so excited. I love it there...and man the cooking, I miss it so much. I love the people in Peru. And thanks for doing what you're doing...If I make it down there I will have to come meet little Joel and your family!

_________________
Carmen
"The joys of parents are secret, and so are their griefs and fears: they cannot utter the one, nor will they utter the other."
(Francis Bacon)

Wife to Judah
Jayvier 4/4/96, Hailey 7/8/00, Jaemen 2/20/05(DS)
http://www.photosbyjcm.com/family
[url=http://www.TickerFactory.com/]

[/url]

Ava · Posted: September 12 2006, 1:06 PM Post subject:

Welcome to our family. What great works you are doing in Peru. I can't wait to hear more about your family.

I live in OHIO, and my son Daniel will be two this November. He is who brought me here . I thank God for him all the time. Joel is lucky to have you all.

_________________
Ava & John
Alexandra 7/22/92, Samantha 3/05/94, Olivia 9/05/00, Daniel (Ds) 11/06/04

pookeymom · Posted: September 12 2006, 1:29 PM Post subject:

Welcome to DownSyn. What a beautiful family you have. I have identical twin boys with DS and this site has been such a wonderful resource for me. Cant wait to hear more about you and your works in Peru.

_________________
Stacy
Mom to Tristin (9), Camille (5), Elijah (3), Caleb and Isaac (1)

wild angel · Posted: September 12 2006, 9:19 PM Post subject:

Welcome to the family..here you will find wonderful, helpful understanding parents and gorgious children....you couldnt have found a better site....your children are wonderful and you need a medal for 8 wow...lol...
i have rhys 5, cory 3 and Blake 8 months who is DS once again welcome and enjoy