downsyn.com does not endorse any advertisers seen here
DownSyn Forum Forum Index DownSyn Forum
Extra Chromosome... Extra Family
 
shoppingShop (CAN)   Watched TopicsWatched Topics   FAQFAQ   SearchSearch   MemberlistMemberlist   CalendarCalendar  RegisterRegister 
 ProfileProfile   MapMap   Log in to check your private messagesLog in to check your private messages   Log inLog in 
Forum TourForum Tour 

Kasen's story Part 2


 
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Introductions
View previous topic :: View next topic  
Author Message
Mindi
New Member


Joined: 27 Aug 2006

Last Visit: 18 Oct 2006
Posts: 14

PostPosted: September 08 2006, 9:55 PM    Post subject:
Kasen's story Part 2
Reply with quote

I didn't think it would take me so long to get to part 2. I have spent a lot of time on this site, but I am usually nursing and unable to type very efficiently. I have enjoyed reading all of your posts and getting to know everyone here and learn of their unique stories.

Back to Kasen's story, I think that even more upsetting to me was finding that Kasen has a Dandy Walker Cyst in his brain. He has an enlarged cisterna magna, which is an open area of the brain that we all have. I made the mistake of going online to check into it further only to find out very disturbing news. I came across a site where the family of a 6 year old girl was celebrating that she had just mastered sitting unassisted! I was not prepared for what I learned as I read further. But like DS, there is a wide range of how the DW affects people.

I was devastated, worrying if my son would ever do ANYTHING. I spent many a nights in tears thinking the DS coupled with the DW would equal a pretty grim outcome for our little Kasen. I basically turned it over to God and prayed that I would be loving and accepting of whatever abilities my dear son would have.

I must admit I was not looking forward to his arrival like I did with my other children, and that made me feel horribly guilty. To make it through my pregnancy I had to disconnect from Kasen in case he didn't make it, which I was told was a possibility.

Well all that worry was for nothing cause it was immediate big time LOVE at first sight when Kasen was born. My first words were, "HE'S BEAUTIFUL!!!!!!!!" I was so afraid I would look at him differently and that I wouldn't love him the same as my other kids; boy was I wrong! During my pregnancy the human side of me couldn't help but view him as having DS, the label society places on our dear children. I needed to hold him in my arms and see what a NORMAL baby he truly is!

I am loving my son so much and am grateful that I was chosen to be his mommy! We have been lucky to not have to endure heart surgery and have had all good reports so far on his tone, etc.

The DW issue is an unknown at this point. They need to sedate him to do a CT scan, and I am not willing to put him through that right now. The ped agreed to monitor him and watch his head size, etc., and it may be a non-issue for him and just be a variant of normal, which is what we are praying for.

Kasen is doing well with feeding and is a whopping 11 lbs at 7 weeks!!!! I was expecting a tiny baby, boy was I wrong!

I am so glad to be here and will be posting more soon, for now I am lurking here learning as much as I can from all of you. Thanks for the warm welcomes!

Mindi

_________________
Mindi, wife to Stu, mommy to:
Brittany 11
Kalia 9
Ellarie 2
Kasen (DS) born 7/21/06





Last edited by Mindi on September 10 2006, 9:01 PM; edited 1 time in total
Back to top
View user's profile Send private message  
Maysonsmama
Senior Member


Joined: 24 Apr 2006

Last Visit: 31 Oct 2006
Posts: 987
Location: Ely, Iowa

PostPosted: September 09 2006, 12:25 AM    Post subject:
Reply with quote

he is a living doll!! what a sweetie... glad he is doing so well!!

_________________
Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address MSN Messenger
NattysMommy603
Super Member


Joined: 12 Jun 2003


Last Visit: 22 Oct 2006
Posts: 1988
Location: Athens, Alabama

PostPosted: September 09 2006, 11:18 AM    Post subject:
Reply with quote

So nice to meet you. What a story you have to tell. I read part one, and then saw part 2 so I decided to say my welcomes here. Glad to meet you and your family. Kasen is just precious. Can't wait to hear more about your beautiful family!

_________________
Tracy
Proud momma of
Natalie Marie 6/8/03,
Tyler Slayton 4/15/05
Baby 3 EDD 1/3/07




Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address Yahoo Messenger
Tigger
Super Member


Joined: 28 Jan 2006

Last Visit: 31 Oct 2006
Posts: 1564
Location: NSW, Australia

PostPosted: September 10 2006, 10:41 AM    Post subject:
Reply with quote

Thank you Very Happy I have been looking forward to part 2!!

_________________
Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
Back to top
View user's profile Send private message  
kellyrimmer
Super Member


Joined: 14 Feb 2006

Last Visit: 24 Oct 2006
Posts: 2093
Location: Atwood, TN

PostPosted: September 14 2006, 5:59 PM    Post subject:
Reply with quote

Hello and your children are beautiful. Im so glad you found this site

_________________
Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06
Back to top
View user's profile Send private message [ Hidden ]
Display posts from previous:   
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Introductions All times are GMT - 4 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
You cannot post calendar events in this forum


Down Syndrome: For New Parents

Google
Web www.downsyn.com

Powered by phpBB © 2001, 2006 phpBB Group :: Spelling by SpellingCow.