DownSyn Forum

Katie Keen · Posted: September 21 2006, 1:25 PM Post subject: I'm new

I hope that I can get this to work this time. I've been trying to introduce myself for a very long time.
I have two children. My daughter Katelyn, who is eight months old, has down syndrome. I'm so in love with her. Always wanting to get new information, I am thrilled to have found this place.
I'm a bit nervous. Not only am I new to the land Katelyn brought me to, I'm also new to the computer world. Someone please help me out.

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http://www.caringbridge.org/visit/katelynkeen

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Mom to Katelyn (DS) and Taylor

Emeline's Momma · Posted: September 21 2006, 1:36 PM Post subject:

Welcome to downsyn. It looks like you got your post to work, so you definitely have figured that much out! Smile

I look forward to learning more about you and your family.

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Barbie
Bill's wife 06/2001
Emeline's momma 10/2005

"When you can't see God's hand, trust His Heart."

Katie Keen · Posted: September 21 2006, 1:56 PM Post subject:

Thank you for responding!!! You have a beautiful daughter. Has your daughter ever had a swallow test done? Katelyn will have one done at the end of October. She isn't able to eat cereal with out gagging. Even doing our oral motor stimulation she gags on her own saliva!!! She is thankfully able to nurse great but our O.T. believes she could be silently aspirating. She has never been able to successfully suck from a bottle. Do you know anything about this?

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http://www.caringbridge.org/visit/katelynkeen

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Mom to Katelyn (DS) and Taylor

mom2alex · Posted: September 21 2006, 2:27 PM Post subject:

Hi...Welcome to the board. My name is Nicol and my son is Alex and he is 14. Hope to hear more about you...

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Nicol - Mom to Alex (15)

Emeline's Momma · Posted: September 21 2006, 2:42 PM Post subject:

I'm sorry, we've never had to have the swallow test done, but I know there are others here on the boards who have. If you go to the menu at the top of the page under "Search", you can enter "swallow test," and I'm sure you'll get some posts. They will probably have any answers to any questions you have, but if not, just post a question under the question forum, and no doubt you'll get all the answers you need! Good luck! Smile

And thanks for the sweet comments on Em. Smile

We think she's pretty cute, too. Can't wait to see pictures of your baby!

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Barbie
Bill's wife 06/2001
Emeline's momma 10/2005

"When you can't see God's hand, trust His Heart."

Emdad · Posted: September 21 2006, 3:29 PM Post subject:

Welcome!
Looks like you're learning a lot of new stuff. Very Happy

We're glad you're here!
Jeff
Dad to Sam, 9, and Emma, 7

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Nature goes her own way and all that to us seems an exception is really according to order.
-Goethe

lilpayton · Posted: September 21 2006, 3:42 PM Post subject:

Hello and welcome! I'm ecstatic to finally see another Virginian on here! I live in northern VA, right outside DC and my daughter, Payton, is 8 months old as well! Can't wait to hear more about you and your family! Smile

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Bethany
Mommy to Mason (1/13/04) and Payton (DS) (1/7/06)

Website: http://www.caringbridge.org/visit/paytonbalsis
Buddy walk page: http://join.buddywalk.org/site/TR?px=1159228&pg=personal&fr_id=1400

"Life may not be the party we hoped for, but while we are here we might as well dance."

pookeymom · Posted: September 21 2006, 3:54 PM Post subject:

Welcome to DownSyn, you have found a wonderful resource for learning new things about your daughter. My boys had a swallow test done last month, it was quite interesting to watch. Both boys are aspirating liquids, one more than the other. Caleb is my boy who gags alot and has more difficulty eating certain foods, he also was aspirating more severly than Isaac was. Caleb was VERY gaggy around 8 months, he seems to be getting better every day, although somedays are still nasty. Hopefully our kids will just adapt to different textures and grow out of the gagging.

Glad you found our board and hope to hear more from you.

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Stacy
Mom to Tristin (9), Camille (5), Elijah (3), Caleb and Isaac (1)

twyceborn · Posted: September 21 2006, 5:28 PM Post subject:

Welcome to DownSyn!!! There is so much information with all these wonderful people. You will love it here.

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Kim and Justin (08/15/95)

Grandma to Olivia · Posted: September 22 2006, 4:34 PM Post subject:

Welcome! So glad that you joined us. This is a wonderful place for support and information.

I am grandmother to Olivia, who is 3 years old, and is such a joy!

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Cindy
Olivia's Grandma

Bitter are the tears of a child: Sweeten them. Deep are the thoughts of a child: Quiet them. Sharp is the grief of a child: Take it from him. Soft is the heart of a child: Do not harden it. - Pamela Glenconner

EliasMom · Posted: September 22 2006, 4:47 PM Post subject:

welcome!

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Ali, wife to Felipe, mom to Elias (Feb 21 2005)

rhonda · Posted: September 22 2006, 6:23 PM Post subject:

Hello and welcome!!! Looking forward to learning more about you and your daughter.

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Rhonda

Taylor 13, Jordan 12, Dylan 3

kayzac · Posted: September 22 2006, 8:32 PM Post subject:

Welcome!!! It took me quite some time to figure this out, Now if I can just post pictures I'd be one happy camper!!!! Can't wait to hear more about your family.

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Nancy
Mom to Zach 18 and Katie(Ds)4

Katie Keen · Posted: September 22 2006, 9:30 PM Post subject: Wow!!!

That's really great!! This is so cool. Thank you for making me feel so welcome.As if I don't already with the common bond we share. I love the pictures!!! THANKS!

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http://www.caringbridge.org/visit/katelynkeen

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Mom to Katelyn (DS) and Taylor

Carson's Mom · Posted: September 22 2006, 10:07 PM Post subject:

Welcome. I am so excited to see someone from Newport News. I lived there and in Hampton for 14 years. I loved it there and would still be there except my family is in Louisiana. I am looking forward to learning more about you and your family.

Kayla

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,
Kayla, Callan(5), Kenna (3), Carson 1 yr,

Katie Keen · Posted: September 22 2006, 10:26 PM Post subject: Great!!

That's odd. I am from down south as well. Mississippi and Texas. To be exact Vicksburg Ms. and Irving Texas. My brother is in Louisiana now but I'm not sure where. You have lovely children. I am unable to do pictures but would be so proud to show off my two kids. I look forward to getting to know you as well. We have alot og common ground.

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http://www.caringbridge.org/visit/katelynkeen

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Mom to Katelyn (DS) and Taylor

Tigger · Posted: September 23 2006, 5:34 AM Post subject:

Hi!! Welcome to downsyn. I love the name Katelyn. My second daughter, Stefanie has Kaytlyn as her middle name. My little one, Talitha, had a lot of difficulty swallowing and gagged on everything including her saliva until after her heart surgery at around 5 months. I think it was being on a respirator for 9 days and having various things shoved down her throat that stopped the hyperactive gag but she is still not good at swallowing. She was fed by nasogastric tube until a couple of weeks ago and then she got a g-tube which has been wonderful so far. She can eat small amounts and drink small amounts (from a cup) but nowhere near enough to keep her alive. We are also concerned she could be silently aspirating. I am hoping to get a swallow study approved soon.

I am glad Katelyn nurses ok. Hopefully by the time you wean her she will be able to drink from a cup. Talitha has never been able to drink from a bottle but did nurse for a little while until she became too sick to keep it going.

Hope you can get the hang of this computer stuff quickly and keep in touch. You are doing well so far Very Happy

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Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Katie Keen · Posted: September 23 2006, 10:13 AM Post subject:

Wow!! Tigger!!! That is alot to deal with. And I thought It to be difficult. I named Katelyn that because Of my name, Katie. I was always asked if my real name was Katelyn. No. But it always sounded great. My sons name is Taylor. Your daughter is so georgeous. She looks like Katelyn with the praying hands. I had a friend of mine look at her. She's really pretty. I hope to continue to stay in touch with you.Good day!!!

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http://www.caringbridge.org/visit/katelynkeen

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Mom to Katelyn (DS) and Taylor

dugarry · Posted: September 23 2006, 3:48 PM Post subject:

a big welcome to the site. i hope it proves as helpful to you as it has been for me. our beautiful little princess Kacie who has downs syndrome is now 4 months and we have a liitle hansom prince called Owen who is 2 in December

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Daz and Nic, mummy and daddy to Owen (19mths) and Kacie (DS) 3 months

Ava · Posted: September 23 2006, 8:03 PM Post subject:

Welcome!

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Ava & John
Alexandra 7/22/92, Samantha 3/05/94, Olivia 9/05/00, Daniel (Ds) 11/06/04

kellyrimmer · Posted: September 24 2006, 11:41 PM Post subject:

Hello and welcome! Cant wait to get to know you and your family

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Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06

JenBrock'sMom · Posted: September 30 2006, 11:58 PM Post subject:

Welcome Katie and Katelyn! I'm Jen mom to Brock who is 14 months. If you want more information on a subject - such as the swallow study - just go to search (see above in the options area) and then click on search and type in swallow study. You'll be amazed by how many posts there are on any given subject.

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JenBrock'sMom & wife to Jay
Brock 7/28/05

rileighsmom · Posted: October 01 2006, 12:26 AM Post subject:

HI AND WELCOME!!! I'M NEW ALSO. MY DAUGHTER RILEIGH IS @7 1/2 MONTHS. THERE ARE ALOT OF US ON THIS FORUM WITH KIDS AROUND THIS SAME AGE. KINDA COOL... LOOKING FORWARD TO GETTING TO KNOW YOU GUYS Smile

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WIFE, FOR 10 YEARS, TO JEREMY. PROUD MOM OF EMILEE (8YRS) LOGAN (6YRS) AND RILEIGH JANE (2-18-06) DS. LOVES OF MY LIFE.

huskies9798 · Posted: October 01 2006, 1:05 PM Post subject:

hello & welcome! cant wait to hear more about little ms katelyn

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chris
mommy to brooke ds 8-30-04 BOY edd 1-24-07
my precious little angel & peanut on the way!

KStrickland10 · Posted: October 07 2006, 11:18 AM Post subject:

Hey Katie-

Good to see you found this place. I found it shortly after Cameron was born, and have been coming here every day since. There are many wonderful people and kids here too. It's like a big extended family and support network.

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[url=http://www.TickerFactory.com/]

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www.caringbridge.com/visit/cameronstrickland

haftr · Posted: October 07 2006, 11:22 PM Post subject:

Hello and welcome to you and little Katelyn!!

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Take Care,
Tracy
mom to Lydia(3-21-04) and Will(11-22-05)ds

bradyzwan · Posted: October 19 2006, 5:44 PM Post subject:

Corgan had a swallow study done when she was about 18 months old. She gets a lot of lung infections and her breathing always sounds kind of rumbly. It's not too scary of a test, the worst part is that they are not allowed to eat anything for a period of time beforehand, and then they poop icky white stuff for a couple of days after wards. Corgan's actually came back normal, they say she is not aspirating, so no one seems to know why her lungs are always so rumbly, but anyway, good luck and don't be nervous!

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“Adults are always asking little kids what they want to be when they grow up because they're looking for ideas” -Paula Poundstone

Jeri · Posted: October 19 2006, 7:04 PM Post subject:

Welcome to this wonderful group of people. You will find lots of information.

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Maysonsmama · Posted: October 20 2006, 8:43 AM Post subject:

hello and welcome!! my daughter mayson is who brought me here and she just turned 8 months as well!!!

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Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS

Jamie · Posted: October 21 2006, 9:56 PM Post subject:

Welcome to downsyn! Glad you found us! Looking forward to getting to know you and more about your family!

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Mary Elizabeth Feb.16, 2005