I'm a member of another (Norwegian) board for parents of kids with various disabilities.
One of the mothers on that board just lost her 3 year old daughter this morning. This little girl had no known cause for her condition. She struggled with catastrophical epilepsy (even tried that vagus thing with no effect...) and severe mental retardation as well as a number of other medical issues. She has fought death for 3 years and suffered more during that time than most people do in a lifetime.
She passed silently in the arms of her mommy and daddy and leaves behind a brother and two sisters.

For those of you who pray, please say a prayer for this family tonight, as they struggle to face life without their little girl - and to adapt to every day life after everything that they have been through.
For those of you who don't - please send a thought, a vibe or just light a candle for this family tonight.

I know Renee says Cancer Sucks.
Well, epilepsy Sucks too....

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Mom to:
Jesper 07/23/95 (stepson)
Hanne Torill 06/06/98 (daughter)
Benedikte 04/14/00 DS (daughter)
Mads & Emil 07/05/00 (stepsons)
Svein Atle 05/13/03 (son)

Solveig

Thats so sad! I will pray for them.
I am deeply sorry for their loss.
May she rest in peace.....

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Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)


First day at school

It is so hard to loose a child. Praying that the Lord comforts this family.

Mary Beth

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Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

Solveig:

I am so sorry to hear about this other family's daughter. It sounds like she may have suffered from static epilepsy. I will keep them in my prayers.

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Jolie: Wife to Dale, mom to Alora-3/94, Elyssa-5/97, Teagan-2/02 and Murphy-8/06 (DS-ToF and AV Canal repair-8-25-06 & 10-17-06)

What a nightmare. Praying for them

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Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14