DownSyn Forum

kctahoe · Last edited by kctahoe on December 09 2009, 9:46 PM; edited 2 times in total

Just got news that our dear friends had some hard news at their regular scheduled ultrasound. Their baby is missing a kidney, the other has cysts on it, and the head appears misshapen. They are obviously devistated and scared. Please pray for them. They are so dear to us.

_________________
Kim. Wife to Ray, Mommy to Charlie (DS) 1/2006 & Calvin 3/2008
http://charlies47.blogspot.com/

There is more than one way to have a good life!

~Ben'smum~ · Posted: November 24 2009, 4:31 PM Post subject:

Oh no! Praying

_________________
Karen- Mum to the world's cutest baby!! Very Happy

Ben

Googsmom · Posted: November 24 2009, 4:56 PM Post subject:

{{{{HUGS}}}} and Prayers

_________________
Jennifer, Momma to The Brookster 4 yrs old

www.specialneedsinmolalla.blogspot.com
www.foundalongthejourneythroughholland.blogspot.com

AliMama · Posted: November 24 2009, 6:22 PM Post subject:

Praying here. My cousin and her husband recently lost a similar pregnancy. It was very rough.

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-09

hayden's mom · Posted: November 24 2009, 11:26 PM Post subject:

Many Prayers for your friends.

_________________
Mommy to:
Holden 10
Hayden 6 (ds)
Jacie 5
Jordyn
And the Angels Danced the day you were born

sarahmsam · Posted: November 25 2009, 3:40 PM Post subject:

Will be praying for your friend~

_________________
Sarah
Mommy to Our little Rock Star Braeden
Born 4-12-07

Tigger · Posted: November 25 2009, 9:49 PM Post subject:

Praying for them and the baby.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

kctahoe · Posted: November 26 2009, 11:53 PM Post subject:

Thank you for your prayers. I have not heard anything from our friends since we heard the news. I continue to pray for them. Especially for peace.

_________________
Kim. Wife to Ray, Mommy to Charlie (DS) 1/2006 & Calvin 3/2008
http://charlies47.blogspot.com/

There is more than one way to have a good life!

Joel's Mom · Posted: November 27 2009, 1:00 AM Post subject:

Praying for your friends and their unborn baby.

_________________
Kimberly
Wife to Steve
Mommy to Joel 5/11/06

JanetG · Posted: November 28 2009, 10:34 AM Post subject:

Sending prayers for your friends and their little one....

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

kctahoe · Posted: December 01 2009, 6:15 PM Post subject:

I know a little more, but it is not good. The little one has Potter's Disease, or Potters Sequence. The likelihood of the baby living much past birth (or even to birth) are very small. Please pray for peace for my friends. They are very committed Christians surrounded by people of faith, but this is so, so hard.

_________________
Kim. Wife to Ray, Mommy to Charlie (DS) 1/2006 & Calvin 3/2008
http://charlies47.blogspot.com/

There is more than one way to have a good life!

JanetG · Posted: December 02 2009, 9:16 AM Post subject:

Continued prayers for your friends....

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

hayden's mom · Posted: December 08 2009, 11:39 PM Post subject:

I am still saying many prayers for your friends and the baby.

_________________
Mommy to:
Holden 10
Hayden 6 (ds)
Jacie 5
Jordyn
And the Angels Danced the day you were born

Momof6 · Posted: December 09 2009, 8:46 AM Post subject:

Many prayers continued.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin

kctahoe · Posted: December 09 2009, 9:46 PM Post subject:

Last update here. We talked with our friends. The baby is gone. It had zero viability, no kidney function at all, malformed head and brain, malformed heart, and other stuff. The doctors told them the baby was near death at the time of the ultrasound, and now it is gone. They are simply devistated. It is yet unclear whether the condition was genetic or just a random, horrible thing. Pray that it was not genetic. Pray that our dear friends will heal fully and gain understanding and greater faith. Thank all for your prayers.
K

_________________
Kim. Wife to Ray, Mommy to Charlie (DS) 1/2006 & Calvin 3/2008
http://charlies47.blogspot.com/

There is more than one way to have a good life!

pookeymom · Posted: December 11 2009, 3:12 PM Post subject:

So Sorry

_________________

Stacy, Mom to Tristin 12, Camille 8, Elijah 6, Caleb and Isaac 4

~Ben'smum~ · Posted: December 11 2009, 5:07 PM Post subject:

So sad.

Praying they will get though this.

_________________
Karen- Mum to the world's cutest baby!! Very Happy

Ben

Momof6 · Posted: December 11 2009, 5:12 PM Post subject:

Thoughts and prayers with them.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin

mom2marty3 · Posted: December 11 2009, 9:46 PM Post subject: wow.

praying

_________________
wife to martin II

mom to marty III (8/6/09, T21)

"I praise you because I am fearfully and wonderfully made." (Psalm 139:14)

Tigger · Posted: December 12 2009, 8:05 AM Post subject:

That sucks. Praying for them. Sad

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Mary Beth · Posted: December 12 2009, 9:44 PM Post subject:

I'm so sorry about your friend's loss. Praying that what ever was wrong with the baby is not genetic and that they are able to try again.
Mary Beth

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Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

maziebaby · Posted: January 07 2010, 9:53 PM Post subject:

sending prayers your way

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Lisa Wife to Glenn Mom to Johnathan 24 Allison 21 Chad 15 Greta 14 Sarah 12 Jennifer 9 and Mazie 6 (DS/ vsd repair 8/03)