DownSyn Forum Forum Index DownSyn Forum
Extra Chromosome... Extra Family
 
shoppingShop   Watched TopicsWatched Topics   FAQFAQ   SearchSearch   MemberlistMemberlist   CalendarCalendar  RegisterRegister 
 ProfileProfile   MapMap   Log in to check your private messagesLog in to check your private messages   Log inLog in 
Forum TourForum Tour 

Eden has leukemia - *update 2/4/10*

Goto page Previous  1, 2
 
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Prayer Requests
View previous topic :: View next topic  
Author Message
MommyAngela
Senior Member


Joined: 28 Apr 2008


Last Visit: 23 Sep 2010
Posts: 478

PostPosted: January 18 2010, 3:37 PM    Post subject:
Reply with quote

Oh, Nathalie, I am so dreadfully sorry. It hits home to me b/c Eden is only a few days older than Benjamin. Wow.
Seriously, this is one of my biggest fears. I feel like I am always waiting for the other shoe to drop as far as leukemia is concerned.
I will pray for you, that God will heal Eden and will comfort you as you go through this.

_________________




Angela
Wife to Matthew
Mom to three wonderful sons:
Andrew James--3/24/06
Benjamin Matthew--4/24/08 DS--VSD & ASD repaired 10/3/08, intestinal obstruction repaired 1/13/09, hypospadias & ventral hernia repaired 8/21/09
Thomas Alexander--3/25/10

www.theamicks-angela.blogspot.com
Back to top
View user's profile Send private message   Visit poster's blog
Asa's Momma
Senior Member


Joined: 29 Oct 2008


Last Visit: 24 Sep 2010
Posts: 362
Location: Upper Valley, NH

PostPosted: January 18 2010, 4:02 PM    Post subject:
Reply with quote

Oh Dear Lord please make sweet beautiful Eden be okay. Pleading prayers, sending hugs and strength.

_________________






"Life is What You Make it..."
www.henryfamily-lifeiswhatumakeit.blogspot.com

Jackie (34 yrs.) - wife to Brian (31 yrs.) and Momma to Asa (3 yrs.).
Back to top
View user's profile Send private message   Visit poster's blog
Me-Shell
Senior Member


Joined: 24 Sep 2007


Last Visit: 27 Sep 2010
Posts: 726
Location: Davie, FL

PostPosted: January 18 2010, 5:23 PM    Post subject:
Reply with quote

I am so sorry to hear this news. My thoughts and prayers are with you and your family. Big Hugs and may God Bless your sweet little Eden
XOXOXOX

_________________


Michelle, Fiance to Wyatt, Mom to Shane (20), Aubrey (17) and Baby Cameron DS (02/06/08 )

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." After all today is the tomorrow you worried about yesterday.
Back to top
View user's profile Send private message   AIM Address Yahoo Messenger
JLUNARES
Senior Member


Joined: 12 Jan 2009


Last Visit: 14 Sep 2010
Posts: 380
Location: KANSAS CITY, MO.

PostPosted: January 19 2010, 2:51 PM    Post subject:
praying
Reply with quote

send prayers your way! i can not imagine what you ae going through and i am praying for you and your sweet precious daughter! Crying or Very sad

_________________


Jackie & Ramiro Sr. Parents to Ramiro F. Lunares (with God 99') Angelina - 9 Mia - 5 Ramiro Jr. - 1 (Ds)
Back to top
View user's profile Send private message   Visit poster's website
Stephanie
Super Moderator


Joined: 02 Feb 2004


Last Visit: 26 Jul 2010
Posts: 8470

PostPosted: January 19 2010, 10:37 PM    Post subject:
Reply with quote

I am so sorry to read this, Eden will remain in my prayers.

_________________


Joey 3/8/97
Megan, DS 11/8/03
Olivia 7/6/05
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website AIM Address Yahoo Messenger
QuinnsMom
Super Moderator


Joined: 29 Jun 2007


Last Visit: 27 Sep 2010
Posts: 1202
Location: Wisconsin

PostPosted: January 20 2010, 6:44 AM    Post subject:
Reply with quote

Oh no! Eden and your family are in my prayers.

_________________
Karyn, Quinn's Mom -
Mother of Riley (age nine), Aidan (age six) and Quinn (October, 2007 - DS, IS, Stereotypical Movement Disorder)
http://quinnscrusaders.blogspot.com/

Back to top
View user's profile Send private message  
ImperfectMe
Senior Member


Joined: 01 Nov 2005


Last Visit: 08 Aug 2010
Posts: 479
Location: Appleton, Wisconsin

PostPosted: January 20 2010, 3:56 PM    Post subject:
Reply with quote

I am so sorry. You are in our thoughts and prayers!!

_________________
CJ
Mom to:
B (10/96)
E (06/04: DS)
? (EDD: 11/10)







Little Miss Emmalee
The T21 Traveling Afghan Project
Don't Lick The Ferrets
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website Visit poster's blog
waith
Super Member


Joined: 15 Apr 2004


Last Visit: 11 Aug 2010
Posts: 2465
Location: Manchester UK

PostPosted: January 20 2010, 6:49 PM    Post subject:
Reply with quote

SAYING PRAYERS AND SENDING CYBER HUGS X

_________________
Maxine UK. Mum to Elliott 16 and Dominic 6 DS.
Back to top
View user's profile Send private message [ Hidden ] MSN Messenger
JMMH
Senior Member


Joined: 27 Aug 2007


Last Visit: 18 Sep 2010
Posts: 102
Location: Indiana

PostPosted: January 20 2010, 11:33 PM    Post subject:
Reply with quote

I'm so sorry to hear this. Eden and your family are in my prayers!

_________________
Melissa & Jason
Matthew (DS) and Zachary
Back to top
View user's profile Send private message  
Kasey
Senior Member


Joined: 26 May 2009


Last Visit: 27 Sep 2010
Posts: 342
Location: British Columbia

PostPosted: January 21 2010, 12:21 AM    Post subject:
Reply with quote

So sorry you & your baby girl have to go through this (or anyone for that matter). Keep us updated and I'll be praying for you!

_________________
Kasey, mom to Paige (2!)
Back to top
View user's profile Send private message  
Supernova
Senior Member


Joined: 05 Sep 2009


Last Visit: 15 Sep 2010
Posts: 225
Location: Oakland

PostPosted: January 22 2010, 6:53 PM    Post subject:
Reply with quote

I don't know what to say to you because nothing I say will make this any easier or better....We will keep Eden in our thoughts and prayers sending her love and strength!

_________________
Back to top
View user's profile Send private message  
sarahmsam
Senior Member


Joined: 28 Dec 2007


Last Visit: 27 Sep 2010
Posts: 449
Location: Indiana

PostPosted: January 25 2010, 3:39 PM    Post subject:
Reply with quote

I am so sorry you are experiencing this~ Praying for you, and Eden

_________________
Sarah
Mommy to Our little Rock Star Braeden
Born 4-12-07

Back to top
View user's profile Send private message  
mellysmom
Senior Member


Joined: 06 Jul 2008


Last Visit: 24 Sep 2010
Posts: 610
Location: new england

PostPosted: February 03 2010, 9:05 AM    Post subject:
Reply with quote

I just read this post. I'm so sorry you, Eden and the whole family are having to face this. Hold on to His promises. Praying for you.

Michelle
Back to top
View user's profile Send private message  
JanetG
Super Member


Joined: 19 Sep 2007


Last Visit: 27 Sep 2010
Posts: 1268
Location: KC Metro

PostPosted: February 03 2010, 2:56 PM    Post subject:
Reply with quote

How am I just now seeing this???? I am SOOOO sorry to hear this news... I will keep all of you in my prayers. Keep the faith... HUGS!

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)




Back to top
View user's profile Send private message [ Hidden ] AIM Address
Alicia
Senior Member


Joined: 07 Jul 2006


Last Visit: 26 Sep 2010
Posts: 540
Location: Bothell, Washington

PostPosted: February 04 2010, 9:45 PM    Post subject:
Reply with quote

Stay strong. I can't imagine the anxiety and fear you must be feeling. I will keep you and Eden in my prayers.

_________________
Alicia
Mom to: Christopher - 23 years old
Dex - 21 years old
Lierin - 21 years old
Kayla - 9/6/05 (DS)
Braden- 9/11/07
Back to top
View user's profile Send private message [ Hidden ]
ME's mom
Super Member


Joined: 12 Oct 2005


Last Visit: 30 Jul 2010
Posts: 2736

PostPosted: February 04 2010, 11:43 PM    Post subject:
Reply with quote

Oh sweet Nathalie, I am so sorry to hear this. I will be praying for you and darlin little Eden. I will be praying that God gives you what you need in these times. I will be praying that His hand is gently wrapped around you and sweet Eden in this time. I know that He is holding you in the palm of His hand. Believe that with me sweetie! Believe that with me! My heart breaks that you have to go through this. I am so sorry. I do know this, He promised He would never leave or forsake you. My prayer for you, is that you can feel Him with you, and know that He will never leave you! Please give little Eden a hug from MaryEllen and I. Love, Di
Back to top
View user's profile Send private message  
Tigger
Super Member


Joined: 28 Jan 2006


Last Visit: 27 Sep 2010
Posts: 6532
Location: NSW, Australia

PostPosted: February 05 2010, 2:00 AM    Post subject:
Reply with quote

Continuing to pray for Eden.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
Back to top
View user's profile Send private message  
Annieo
Super Member


NDSC Attendee

Joined: 03 Jan 2003


Last Visit: 27 Sep 2010
Posts: 3980
Location: Minneapolis suburb, MN

PostPosted: February 05 2010, 9:55 AM    Post subject:
Reply with quote

Prayers that this next round knocks out the leukemia completely. And I'm sorry about her hair. When the hair goes it makes it all seem more real somehow. You'll get used to her little bald head in no time.

Someone else has probably already asked you this, but just in case they haven't, have you looked into taking time off from work under the Family and Medical Leave Act (FMLA)? My husband was able to take time off for John's hospitalizations. The restrictions might not apply to you, but it's worth looking into.

http://www.dol.gov/dol/topic/benefits-leave/fmla.htm

_________________


"There's a release in knowing the truth no matter how anguishing it is. You come finally to the irreducible thing, and there's nothing left to do but pick it up and hold it. Then, at least, you can enter the severe mercy of acceptance." Sue Monk Kidd

"Never doubt that a small group of thoughtful people can make a difference, in fact it is the only thing that ever has." Margaret Meade

Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul and Alice

www.caringbridge.org/visit/johnbremer
Back to top
View user's profile Send private message   Visit poster's website
Momof6
Super Member


Joined: 30 Sep 2008


Last Visit: 27 Sep 2010
Posts: 1871
Location: Cortland, NY

PostPosted: February 05 2010, 10:08 AM    Post subject:
Reply with quote

Many, many prayers being said. Hugs, thoughts, and prayers your way.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin



Back to top
View user's profile Send private message [ Hidden ]
Adens mummy
Super Member


Joined: 22 Jan 2006


Last Visit: 27 Sep 2010
Posts: 1996
Location: Australia

PostPosted: February 05 2010, 10:14 AM    Post subject:
Reply with quote

oh no just seeing this now, am so very sorry you are going through this, will be praying and praying....
hugs

_________________
Aden's montage


Back to top
View user's profile Send private message [ Hidden ]
Momtoseven
Senior Member


Joined: 11 Aug 2008


Last Visit: 26 Sep 2010
Posts: 827
Location: Pennsylvania

PostPosted: February 05 2010, 10:15 AM    Post subject:
Reply with quote

I am so sorry Eden has to go through all this! We will continue to pray for her!!

_________________
Maureen - Mom to Daniel(21), Brandon(19), Jordan(13)PDD, Thomas(11), Carrie(7), Samuel(4) and Mark (2 - ds, av canal -repaired 6/10/08, pulmonary hypertension)
https://www.carepages.com/carepages/MarkEdwardC32708
Back to top
View user's profile Send private message [ Hidden ]
mary c
Super Member


Joined: 06 Jan 2005


Last Visit: 27 Sep 2010
Posts: 3427
Location: Westchester County, New York

PostPosted: February 05 2010, 11:03 AM    Post subject:
Reply with quote

So sorry to hear the results are not what you hoped. Know however that you are not alone. People all over the world are praying for Eden and your family. God bless you all.

_________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

Please support the Down Syndrome Research and Treatment Foundation http://i139.photobucket.com/albums/q284/maryc_010/a13-1.jpg[/img]
[img]
[IMG]
Back to top
View user's profile Send private message   Visit poster's website
Edensmama
Senior Member


Joined: 15 Sep 2008


Last Visit: 25 Sep 2010
Posts: 622
Location: Chicagoland area

PostPosted: February 05 2010, 12:50 PM    Post subject:
Reply with quote

Thanks everyone.

Ann- yes, I think you're right about the hair making it seem more real. Before this happened whenever I would hear about kids with leukemia the first image that popped into my head was little bald children. So knowing she is about to be one of those little bald children is surreal. Particularly because her hair has been a hallmark trait of hers since birth..she's always had a ton of it and people have always commented on it. Of course, she has other hallmark traits like her sweet personality and gorgeous smile...and her hair will grow back. Smile

Thanks for mentioning FMLA. Yes, it is available to me here but it is unpaid leave which really isn't an option for us right now - particularly in light of medical bills. Thank goodness we do have excellent insurance but there are still deductibles and copays to cover. I am eligible for 4 weeks of paid vacation so I will use that time first and then if I need additional days I'll start using FMLA days. Luckily I can take them as needed rather than having to take a bunch of time at once so that helps. Plus my boss has been very understanding and has proposed I work from home more often if needed (I already worked from home once a week and now it has gone to twice per week...but I may add another day). This at least puts me closer to the hospital so that I could maybe stop by for breakfast and lunch during the day. Or I would probably work from there...they have wifi. We'll see how it goes.

_________________
Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem



Back to top
View user's profile Send private message   Visit poster's website
EAS1971
Super Member


Joined: 04 Aug 2005


Last Visit: 27 Sep 2010
Posts: 1729
Location: Wichita, KS

PostPosted: February 05 2010, 1:36 PM    Post subject:
Reply with quote

So sorry to hear the results aren't what you'd hoped! Praying this next round knocks out all of the leukemia cells! Continued prayers and hugs to you all.

_________________
--Beth
Mom to Oliver, 5 (DS, ADHD)
and Sebastian, 4
Back to top
View user's profile Send private message  
AMTJmom
Super Member


Joined: 12 Mar 2007


Last Visit: 13 Sep 2010
Posts: 1831
Location: MO

PostPosted: February 05 2010, 3:51 PM    Post subject:
Reply with quote

I'm just seeing this today. So sorry. Sending lots of good thoughts and prayers to you all, and I'll be checking for updates.

_________________
Julie - wife to Allan (5-90),mom to Andrew (6-93), Madelyn (3-96), Tyler (11-98 ), Jackson (ds 10-27-06), and adopting Dashlyn! (ds 3-21-08 )

Back to top
View user's profile Send private message   Visit poster's blog
maziebaby
Senior Member


Joined: 28 Jan 2008


Last Visit: 25 Sep 2010
Posts: 176
Location: california

PostPosted: February 06 2010, 11:29 PM    Post subject:
Reply with quote

I'm so sorry to hear she will have to have another round....Our thoughts and prayers are with you.......

_________________
Lisa Wife to Glenn Mom to Johnathan 24 Allison 21 Chad 15 Greta 14 Sarah 12 Jennifer 9 and Mazie 6 (DS/ vsd repair 8/03)



Back to top
View user's profile Send private message [ Hidden ]
JanetG
Super Member


Joined: 19 Sep 2007


Last Visit: 27 Sep 2010
Posts: 1268
Location: KC Metro

PostPosted: February 10 2010, 9:54 AM    Post subject:
Reply with quote

I am continuing to keep beautiful Eden (and all your family) in my prayers... Many hugs and positive thoughts for strength.

_________________
Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)




Back to top
View user's profile Send private message [ Hidden ] AIM Address
MamaCarrie
Senior Member


Joined: 11 May 2009


Last Visit: 22 Sep 2010
Posts: 185

PostPosted: February 10 2010, 6:38 PM    Post subject:
Reply with quote

Praying praying praying for little Eden.

_________________
Carrie
Mama to:
Bennett (9/96), Merrick (1/99), Giselle (11/04), Calder (4/07), Isaac (7/08 ) and Jotham (4/09)

http://mommypress.com/itllturnup/



Back to top
View user's profile Send private message  
elizasmom
Super Member


NDSC Attendee

Joined: 28 Jul 2005


Last Visit: 14 Sep 2010
Posts: 2559
Location: Marin County, CA

PostPosted: February 11 2010, 7:22 PM    Post subject:
Reply with quote

Continueing our prayers and healing thoughts!!!!! Big hugs to you all!!!!!!!

_________________
Liz - Mom to Walker (3/24/02), Eliza (Ds) (5/6/05), Alden Jane and Noah Henry (5/2/08 )

Back to top
View user's profile Send private message [ Hidden ]
myjackjack
New Member


Joined: 28 Sep 2009

Last Visit: 03 Jul 2010
Posts: 23
Location: folsom

PostPosted: March 04 2010, 3:16 PM    Post subject:
Reply with quote

wow...I have really been of the computer for awhile....all because of my son Leukemia treatment! I am soooooo sorry you are going through this, my prayers are with you! We are in the maintenence phase, Jack has ALL, a bit different. he will be in this phase for 2 years. Stay strong mama.....and know that you are not alone!!! hugs and prayer!!!!

_________________
Back to top
View user's profile Send private message [ Hidden ]
HannahsmomUK
Super Moderator


Joined: 03 Jun 2004


Last Visit: 05 Jul 2010
Posts: 7778

PostPosted: March 29 2010, 8:16 PM    Post subject:
Reply with quote

so sorry to hear of Eden's journey, sending prayers your way

_________________







Please visit Hannah's webpage read all about her journey
Hannah's Video
Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
Mary Beth
Super Member


Joined: 30 May 2005


Last Visit: 06 Sep 2010
Posts: 5311
Location: Ohio

PostPosted: April 03 2010, 6:33 PM    Post subject:
Reply with quote

I'll be praying for Eden.
How is she handling the treatment now?
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)
Back to top
View user's profile Send private message  
Edensmama
Senior Member


Joined: 15 Sep 2008


Last Visit: 25 Sep 2010
Posts: 622
Location: Chicagoland area

PostPosted: April 03 2010, 10:55 PM    Post subject:
Reply with quote

She is doing really well...she is in remission and has finished 3 of the 6 rounds of chemotherapy that are planned. She starts round 4 on Monday. Feel free to check out her caringbridge site (see address in my siggy)

_________________
Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem



Back to top
View user's profile Send private message   Visit poster's website
earlyam
Senior Member


Joined: 13 Sep 2008


Last Visit: 27 Sep 2010
Posts: 774
Location: Wiltshire, UK

PostPosted: April 04 2010, 3:15 AM    Post subject:
Reply with quote

Great to hear Eden is doing so well! Continued thoughts and prayers x

_________________
Jo, Mum to Georgia 11/11/03 ( BIG High School Musical fan) and Ethan 16/12/07 (DS)







Back to top
View user's profile Send private message  
mellysmom
Senior Member


Joined: 06 Jul 2008


Last Visit: 24 Sep 2010
Posts: 610
Location: new england

PostPosted: April 04 2010, 8:50 AM    Post subject:
Reply with quote

Adorable photo of Eden.

We'll keep her in prayer. You, too!

Michelle
Back to top
View user's profile Send private message  
Tigger
Super Member


Joined: 28 Jan 2006


Last Visit: 27 Sep 2010
Posts: 6532
Location: NSW, Australia

PostPosted: April 05 2010, 10:50 PM    Post subject:
Reply with quote

So glad to hear she is in remission. Still praying.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
Back to top
View user's profile Send private message  
Display posts from previous:   
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Prayer Requests All times are
Goto page Previous  1, 2
Page 2 of 2

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
You cannot post calendar events in this forum
Click above to help support this site
Click below to help support the DSRTF



Down Syndrome: For New Parents

Powered by phpBB © 2001, 2008 phpBB Group