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Feeding ???


 
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Dan and Lucie
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Last Visit: 06 Oct 2010
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Location: Cornwall

PostPosted: September 10 2010, 7:29 AM    Post subject:
Feeding ???
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Hi all iv been meaning to give an update and upload some more pic's but i have been so busy the last week as Maddi is still in hospital and iv been traveling 86 miles every day to visit and luckely this week we have been given a double room so i have been able to stay as well. But to the question. The only reason we have not been sent home yet is because we have had trouble with feeding she had to have a feeding tube till yesterday to get a full meal each time as she didant want to/ couldant take from the breast and 2 days a ago we started to bottle feed wich is working but very slowly and as she is so sleepy she falls asleep befor she has finished but with loads of percictace we manage to get it all/most down. So i was wondering if anyone else went thro this and had any tips

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grantsmom1
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PostPosted: September 10 2010, 7:44 AM    Post subject:
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Your situation sounds so familiar! That was the last thing Grant did before heading home from the hospital, too. We had a feeding therapist come to help us. She taught us to massage his jaw to help him to eat. We would hold the bottle and put a couple of fingers under his jaw and basically move it for him the way he should be. We also would take clothes off/ tickle feet etc to try to keep him awake. He got it eventually, but it was pretty frustrating. We also had to drive quite a ways to the hospital, but we had the option of moving him to the hospital closest to us when the only thing left was feeding. We did not do that b/c he was in the best place, but maybe something that could be an option for you. I know somebody now that was able to take their child home with the removable feeding tube after they were trained on it. That wasn't an option for us. They told us he had to eat on his own or have the G-tube. Sounds like she is going the right direction if she is eating most of it. She probably just needs to work up her stamina. Good luck!

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earlyam
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PostPosted: September 10 2010, 10:54 AM    Post subject:
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You both sound like your doing a great job already with Maddi and her feeding......Have you been given different teats to use with Maddi's bottle? Sometimes using a premmie teat or one with a different flow may help. Also there is a bottle called a haberman feeder that helps if babies have sucking problems/tire easily.

I agree with grantsmom...maybe ask if you could transfer to your local hospital if the feeding is the only thing Maddi is in for now?

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feverfam
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PostPosted: September 10 2010, 11:00 AM    Post subject:
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I think it's common with lower tone babies. I was working on breastfeeding - had great lactation consultant at the hospital but the hostpital NICU would not let him go until they could verify that he could drink X(can't remember exactly) amount of ounces from a bottle. I was tired of the hospital - was there about 2 weeks - and wanted to take him home so I said go ahead and bottle feed him and of course he didn't want to breatfeed after that. He also had AV canal defect which was repaired at 2 1/2 months so that contibuted to him tiring easily besides being very low tone. We also had a visiting nurse come out to when he needed extra milk to teach us to use a NG (nasal gastric) tube. He was a slow weight gainer. As he got older he had trouble eating food because of low tone - slow chewing and low feeling in the mouth so I know that was a reason as an infant too.

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Zachary(12/21/98
Christopher DS(5/18/05)
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4littlelambs
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PostPosted: September 10 2010, 11:35 AM    Post subject:
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Your situation sounds very similar to ours as well... except Josh never fed at the breast because he wasn't strong enough. I pumped (and pumped and pumped and pumped!!!).

What 'saved' us was something called the Haberman feeder. It was designed for babies with cleft palate but it worked well for Josh because he not only had a weak suck, but he would always fall asleep. The Haberman allowed us to move the setting from slow, to medium and fast. He was able to take more in, obviously, on the fast setting so he'd get more before he fell asleep. But also, sometimes that was too strong for him because he'd choke, so we'd go to medium or slow... all in the same suck. It really was a life saver for us. We also thickened almost from the get go because of choking issues.

http://www.selfexpressions.com/habermanfeeder.html

Susan & Josh
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AliMama
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PostPosted: September 10 2010, 9:09 PM    Post subject:
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You've gotten some great recommendations so far, and I just wanted to say I've been there, too. It's frustrating and time-consuming, but hopefully you'll find the right combination for her!

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Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-09

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McKaylasmom
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PostPosted: September 11 2010, 9:55 PM    Post subject:
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I have to agree also been there. Kayla would fall asleep every time I was breast feeding her. we would undress, and tickle her the whole time. I finally ended up pumping and bottle feeding her. Because she had problems putting on weight (she also had complete Av canal defect) we also added human milk fortifier. We also had to use the preemie slow flow nipples for her b/c the regular nipples came out too fast. I hope you are able to bring your little one home soon.

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SherryinWI
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PostPosted: September 12 2010, 9:21 AM    Post subject:
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I had to support Nate's chin for years when he was taking his bottle.

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Momof6
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PostPosted: September 12 2010, 1:16 PM    Post subject:
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I reamember those days. Austin would fall asleep within 3 minutes of starting to eat. I'd have to tickle his feet and make him as uncomfortable as possible just to have him continue. He also had a hard time latching on to me, so I had to stop nursing and give him the bottle. I pumped my milk for 6 months and gave it to him in the bottle. I also had to hold under his chin for him to get the good suck.

Sounds like you both are doing a wonderful job. Keep it up and I'll pray the little beauty gets the hang of feeding soon so you all can get home where you all belong.

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Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
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