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THESPILS
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PostPosted: December 14 2004, 8:57 PM    Post subject:
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I have been getting myself a little worked up lately. Hunter's first early intervention assessment is next Tuesday (appearently vegas' program is so busy they're behind 2 months -I didn't purposly wait this long) I just keep picturing some person pointing out every little thing he should be doing, but isn't. Can anybody tell me what they do? All I know is their audiologist will spend an hour with him, and then their pediatrician will have an hour, but doing what? Does anyone remember their first visit?

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Shaye
Bri 11, Coda 9, Hunter 23mo(ds), (and hubby Brad)

Ability is what you're capable of doing. Motivation determines what you do. Attitude determines how well you do it. ~Lou Holtz

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southernbelle
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Location: Gray, GA

PostPosted: December 14 2004, 9:33 PM    Post subject:
That's different
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At our early intervention program, a PT with a doctorate, examined Austin. She basically played with him and asked alot of questions. She was looking for certain developmental milestones he should have reached at that age such as: tracking (if you hold an object to the left of your baby and move it over his head to the right side does he follow the movement?); can he roll over; prop up on his hands when he is on his stomach; if you grasp his hands while he is on his back, will he hold his head and back straight when you pull him up to a sitting position; does he react to noise, turn his head to your voice? These were some of the questions they asked. We actually went to the audiologist, they did a hearing test which Austin failed the first time so don't panic if Hunter does too. We had to go back and rock him to sleep and they did a more advanced hearing test which he passed. The pediatrician is probably a developmental pediatrician and will go over the assessment with you, talk to you about the genetic diagnosis and give you a list of other screenings (like thyroid) you have to do. Hunter will be fine! They are trying to see if he needs any therapy yet. If he is not getting therapy, and they don't recommend it yet (in our state the children have to be SIGNIFICATLY behind) I would highly suggest you mention therapy to your regular doctor and let him write you a prescription. The PT said Austin was fine. When I went to see the developmental pediatrician, she was furious with our early intervention program and wrote Austin a prescription for the therapy. I had the early intervention PT come back out and reaccess him and guess what. She said he was developmentaly delayed. Turns out they didn't have any available appointments and were just putting us off. So good luck - ask lots of questions. Don't be worried. They probably won't point out anything that you as his mom haven't already noticed. I really like Austin's OT and PT (at our local hospital and not early intervention)- they are so positive and all about what he can do and will be doing soon. Doctors tend to give you a dispassionate medical opinion or diagnosis but they can't really tell you Hunter's future and all that he will become.
Keep the Faith,
AMY

_________________
"You are an unrepeatable Miracle. No one exactly like you was ever born or ever will be."
Momma to Austin(DS) 05/18/04
Kristin, Jessica, Rebecca, Rachel, Sarah,Hunter
www.caringbridge.org/ga/austinluke
www.xanga.com/fireflysouth

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Jenny
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PostPosted: December 14 2004, 10:02 PM    Post subject:
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Ours was much different. For Max's first all they did was send a case worker to the house and we filled out paperwork and wrote the IFSP. They just asked questions so they knew what all he needed. At the time he only needed OT and she pretty much worked on everything until he got more services. Ours was a breeze. Good luck and don't be too stressed about it. They are there to help him and figure out everything he needs.
Jenny
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marci
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PostPosted: December 30 2004, 4:58 PM    Post subject:
first appointment
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Our first appointment was really easy. They played with her and then wrote down the things that we wanted to work on. Next we told them what we wanted. We wanted a Pt for large motor and Ot for the feeding issues. We also told them to put us on the waiting list for speech. it was no big deal. Think about what you want for him before the visit.In PA they go out of their way to make sure the parents have a lot of input and are willing to do whatever you ask of them if they can. Seems like different states are different.
Good luck and relax he'll be fine.
marci
Mom to Caleb,Cody, Evan,Ethan,Alex Anna and Joni(ds 4/24/03)

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Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

Blowing out someone else's candle doesn't make our shine brighter.
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Barbara
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PostPosted: December 31 2004, 5:54 PM    Post subject:
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I wrote an article that will be printed in a local paper sometime soon (I submitted Christmas week). It's a brag about Henry's Early Interventionist. It's pretty true, but I did exclude a part that only you and I would understand. And I shared it with my EI in person. I think it took her aback momentarily and then I think she understood. We understand and appreciate the benefits of an EI, but at times when we're down on ourselves, it is "hard" to deal with the "intrusion" in our son's and our lives. And every 6 months she "scores" him with the average kid. And most parents get to this point when kids start K4, but I get very protective when she tells me that Henry has x% delay in a skill set. The good greatly outweighs the bad. I just LOVE our EI!!!




Here's the article:

Henry and Berkeley Citizens

I still recall the first time I met Mrs. Faith. Henry was just a couple weeks old. MUSC had referred us to BabyNet, who referred us to the Jump Start Early Intervention Program at Berkeley Citizens. At that time, all I knew about Jump Start was that it was a free service available to families having a child with special needs. Henry qualifies for Jump Start because he has Down Syndrome.

Faith visited us on behalf of Jump Start. When Faith arrived in our home in September 2002, my husband and I had reached a high level of frustration with the overwhelming “intrusion” of so many medical professionals in our life with the birth of our son. Henry’s team changed on a frequent basis. Care and medical opinions changed daily based upon which members of the “a la carte” team were present.

Faith introduced herself and presented us information about Jump Start. I don’t think I even heard anything she said. When she finished and asked if we wanted to continue to receive Jump Start services, I quickly provided a point blank response of “Only if it’s going to be you to be involved with each one of Henry’s visits. We don’t desire to start this program just to watch Henry get passed from person to person, with no consistency in his care.” Faith took a moment to respond and then made us the promise that she would handle Henry’s case throughout. And such was the beginning of a beautiful relationship.

With Faith’s diligent guidance, Henry has accomplished so much. With each visit Faith does an assessment of Henry to determine which new skills are emerging for Henry and which skills he has mastered since her previous visit. Faith then spends about an hour working with Henry on skill sets that should continue to emerge for him or even skill sets that he has yet to start working on. Faith then spends time educating myself and/or my husband on all that she has gathered from her visit and addresses a plan on action items for my husband and I to work on with Henry in the upcoming weeks. Faith has provided me with a fine education about typical skills that Henry has learned and will continue to learn along the way in the areas of gross motor skills, fine motor skills, communication skills, self-help skills, cognitive skills and socialization skills.

I believe what has impressed me the most during her visits is Faith’s keen eye to subtle changes in Henry’s skill sets. At times, she would notice a change in a way that he adapted an old skill to emerge into a new skill; whereas I may not have noticed the change in the skill at all. During her visits, I am always happiest when she reinforces how well Henry is doing. One of my favorite expressions to hear her say that just fills me with pride and joy about Henry is when she states that she can add a check mark for a skill on his chart.

Together, Faith, Roy and I have been a formidable team assisting Henry with his progress. We have been able to follow Faith’s guidance as to when other professionals are introduced along the way to help with Henry’s care. Faith has followed Henry through his well-being care, through his sick days of flu, croup, and colds, through his doctors appointments for ENT, Heart, Hearing, and Speech Therapy, and lastly through his open-heart surgery. Faith has been a great resource to put us in direct contact with any other professional Henry has needed along the way.

With Henry being a part of Jump Start for two years now, I now understand Jump Start. What a wonderful support service! Mrs. Faith has traversed the entire realm of care for Henry from being his therapist to being his cheerleader to being his advocate. He has learned to sit, crawl, stand, walk, climb, pick up tiny things with his fingers, stack blocks, recognize cause and effect, perform problem solving, provide word approximations, engage others to socialize with him, feed himself oatmeal, use sippy cups, among so many other things that he and other children his age have accomplished. Faith has single-handedly reinforced what we already knew: Henry is just a typical boy!
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JulieB
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PostPosted: December 31 2004, 6:54 PM    Post subject:
Cool
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What a wonderful article! You are a very talented writer.

I just have a question, maybe I should post it there, but at what age should I start EI? My ped is thinking in a couple of months, so we can get phoebe gaining weight etc..

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Loving that baby girl, Phobe 12-13-04

Julie
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southernbelle
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PostPosted: December 31 2004, 10:04 PM    Post subject:
Now
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Contact them now so that they can get her entered into the system. Here in Ga it takes awhile to get the different therapists lined up. Also they will help you get a list of the different screenings you should have done. (like hearing, sight, thyroid ect) Now, your pediatrician maybe really on the ball and already doing all those things. But our pediatrician is older and a tad old fashioned. However, he was willing to follow through on anything I asked him to do based on the early intervention caseworker's suggestions.
Saw that Phoebe gained weight _ YAE. How are you two getting along otherwise. Is she waking up and snuggling yet?
AMY

_________________
"You are an unrepeatable Miracle. No one exactly like you was ever born or ever will be."
Momma to Austin(DS) 05/18/04
Kristin, Jessica, Rebecca, Rachel, Sarah,Hunter
www.caringbridge.org/ga/austinluke
www.xanga.com/fireflysouth

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JulieB
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PostPosted: December 31 2004, 11:38 PM    Post subject:
Thanks Amy
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Yes Phoebe seems to be getting more active. Here Daddy is really starting to help me feed her and it is so cute to watch him handle this little creature with his big hands. Tonight our 2 1/2 year old son Nolan was really facinated by the fact that she would kind of grab his finger, and Phoebe seemed to be following him with her eyes. Anyway, she is still very floppy, but seems to be more alert about half of the time!

Thanks for asking.

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Loving that baby girl, Phobe 12-13-04

Julie
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THESPILS
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PostPosted: January 01 2005, 12:16 AM    Post subject:
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That was a beautiful artical. Thank you for sharing it with us. Hunter's "big day" was postponed until the end of March-but my nerves have calmed down alot since my post. He has had a wonderful OT for 2 months now, who is great at coming up with new ways to "play" with him trying to keep on track. I asked our regular ped send us there when I found out how behind our EI is. I'll let everyone know how his appointment goes when it finally gets here.

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Shaye
Bri 11, Coda 9, Hunter 23mo(ds), (and hubby Brad)

Ability is what you're capable of doing. Motivation determines what you do. Attitude determines how well you do it. ~Lou Holtz

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