![]() [Home] [Questions] [To A Parent] [About Us] [Resources] [Pictures] [Reading] [For Relatives] [Stories] [Forum] [Site Map] What are Babies with Down Syndrome Like?
Between 50 and 75 percent of parents who have had a baby with Down syndrome report that once over the initial shock.
they found the experience rewarding and strengthening.
A study asked mothers of young children whether they felt they had coped with their baby and young child. Over two-thirds
said they had coped. Their was no difference in overall response between
mothers whose babies or young children had Down syndrome and mothers whose
children were "normal."
- Cliff Cunningham, Understanding Down Syndrome: An Introduction for Parents
What will my new baby be like?
He will be like a baby. He will
be 100% reliant on you for everything, just like all other babies are reliant
on their parents. He will eat, sleep, and go through lots of diapers. He
may have some medical problems and he may have weak muscles
but he will definitely be cute and adorable and he will be the most beautiful
baby ever born.
You will also notice that your baby
will look like he belongs in your family. He will look like his brothers
and sisters although he will probably have some of the traits associated
with Down syndrome, as well. Remember, your child's chromosomes come from
his parents. My wife and I noticed that our son looks almost identical
to my daughter when she was an infant.
Will my baby learn things?
YES! Your baby will learn to do
all the things that other children learn to do but it will take her a little
longer and it will take a little more patience on your part. She will learn
to walk (usually by age 2), she will learn to dress herself, feed herself,
use the toilet (usually by age 5), hold conversations, make friends, develop
a range of interests, read, and go to school.
By the time she is one years old
she will probably be able to: sit by herself, pick up and play with toys,
roll over, and feed herself a cookie. She will be able to bang objects
together, shake them, visually examine them, and suck on them. She will
play games like "peek-a-boo" and she will laugh and giggle. She will be
saying her first words like "ma-ma" and "da-da".
By the time she is two, she will
be learning to walk and starting to imitate language. She will be starting
to learn to dress and undress herself. She will be scribbling with a crayon
and looking at pictures and turning pages in a book by herself. She will
use a cup by herself and be able to feed herself with a spoon. Like other
children, she will be very imitative of the things that she sees other
people doing.
Once she has learned these skills, she will not forget them.
When will my baby reach his developmental milestones?
Your new baby will be like every
other baby although it may take him longer to reach certain developmental
milestones. Developmental delays are common in children with Down syndrome
although at a young age, the delays are usually a matter of a few months.
With proper early intervention, these developmental delays can be minimized.
Studies have suggested that some children with Down syndrome who are receiving
early intervention may actually achieve developmental milestones sooner
than some children without Down syndrome. For example, the average "normal"
child will be able to complete a 3-piece jigsaw puzzle at around 22 months.
Some children with Down syndrome achieve this goal as early as 20 months
(although the average is 33 months). Early intervention and a stimulating
and loving environment will help your baby.
What kind of help can I get for my baby?
[Note: this section applies to laws within the USA]
By federal law (Individuals with Disabilities Education Act or IDEA) , your baby has the right to a free, appropriate public education that can help her grow and develop. This education must be provided from birth. A child with Down syndrome has a disability under the law and is immediately eligible for all types of services. The law and the courts are on your side although you may have to be willing to fight for your and your baby's rights. The law's purpose is defined as follows:
This means that your child should
be given physical therapy, speech therapy, occupational therapy, and any
other therapies that are appropriate for her. In addition, you have
the right to receive support and advice on early stimulation for your child.
You can also attend special health and development clinics. More information
about your rights under the law can be found by contacting either The
Arc (a national organization on mental retardation) or The
National Down Syndrome Society.
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