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lespring Super Member
Joined: 26 Mar 2005

Last Visit: 17 Oct 2006 Posts: 5558 Location: Twin Cities metro area, MN
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Posted: July 31 2006, 8:41 AM Post subject: Angela med update
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Hang on, let me grab a megaphone....
I LOVE RISPERDAL!!!!!
Honestly, Angela is like a different child! She's still only on 1/2 dose. 1/2 of a .25 mg twice a day. Weds I bump her up to .25 in the morning, then another week and we'll bump up the afternoon dose.
She does occassionally say she's tired, but I can also tell when she's coming due for her next dose. She is making a new noise, that could either be a tic, or a tardive disconesia symptom.
When we were in Atlanta I asked Dr. Capone about the problem with meds only working for a short time. He said it's EXTREMELY common, and gave an explanation why. But he did say if you find something that works, even if for a short time, to keep tabs of it because you can go back to that combination again another time.
He also said if you child is aggressive AND hyperactive, a good combination is Risperdal with guamphacine (Tenex), along with chlonidine. I will never ever ever mess with Angela's chlonidine. She takes that at night for sleeping, and it is a GOD SEND! She falls asleep within about 1/2 hr or 45 min of giving it to her, and she sleeps sound all night long!
So for now, just the Risperdal is ok, but once we get to the full dose we may consider adding in the guamphacine. I guess we'll see how school starts out. I just hope Risperdal lasts longer than the other drugs have!
_________________ ~Leah~
mom to Noah 19, Tyler 17,Angela 10 (DS)
www.downcues.com
www.DandLDoodles.com
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helandy.cop Super Member
Joined: 07 Sep 2003
  
Last Visit: 18 Oct 2006 Posts: 4800 Location: Nottingham, UK
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Posted: July 31 2006, 9:58 AM Post subject:
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So glad you've found something that works for Angela. Here's to getting your happy little girl back.
_________________ Helen
Mum to Rachael Kinza (25/07/01), Matthew Isaac DS (14/06/03) and Hannah Cerys (14/06/05) - my gorgeous children! :p
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Koby'sMommy Super Member
Joined: 04 Feb 2005

Last Visit: 17 Oct 2006 Posts: 2317 Location: South Carolina
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Posted: July 31 2006, 10:06 AM Post subject:
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OH that is great! I know it was working well in Atlanta already!!! She was a sweet heart!!! Glad things are still going well!-Courtney
_________________ Courtney-Wife to Chris- Mommy to Koby (12/16/04)
"I am careful not to confuse Excellence with Perfection.Excellence I can reach for; Perfection is God's Business" -Michael J.Fox
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naomid Super Member
Joined: 21 Apr 2003
  
Last Visit: 17 Oct 2006 Posts: 3728 Location: Santa Monica, CA
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kwisteena1021 Senior Member
Joined: 29 Oct 2005
Last Visit: 18 Oct 2006 Posts: 840 Location: South Florida
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Posted: July 31 2006, 12:59 PM Post subject:
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Hey Leah, what is risperdol for? And why does she need meds for sleeping? I am sure you have told us before but I forget! Glad it's working though and I agree with C she was a sweetheart in Atlanta!
_________________ Christina
Mom to Kallie 7 and Brittany 5
Example is not the main thing in influencing others. It is the only thing.
~Albert Schweitzer~
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lespring Super Member
Joined: 26 Mar 2005

Last Visit: 17 Oct 2006 Posts: 5558 Location: Twin Cities metro area, MN
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Posted: July 31 2006, 1:37 PM Post subject:
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Angela has NEVER been a sleeper. Once she hit about a year old she would take, at best, an hour nap during the day. Nightime she was up and down all night long. She's had several sleep studies over the years to see what's going on...was there a medical problem or something else? We spent years using Melatonin at various dosages, which stopped working a year or so ago. Last fall she had another sleep study done and we discovered that her sleep cycles are all messed up. Without meds it's not uncommon for her to go 3 DAYS without sleeping. So the chlonidine gets her to sleep and keeps her asleep. She wakes up perky and ready to get on with the day. (I was a little worried about her waking up groggy and drugged feeling.)
The Risperdal is an antipsychotic medication. It works by changing the effects of chemicals in the brain. It's commonly used for the treatment of schizophrenia and mania associated with bipolar disorder. In Angela's case it's used to address extremely agressive behavior and mood swings.
Now if only there was a medication to control swearing! LOL
_________________ ~Leah~
mom to Noah 19, Tyler 17,Angela 10 (DS)
www.downcues.com
www.DandLDoodles.com
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kwisteena1021 Senior Member
Joined: 29 Oct 2005
Last Visit: 18 Oct 2006 Posts: 840 Location: South Florida
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Posted: July 31 2006, 1:50 PM Post subject:
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Ah! That all makes some sense...Yeah I was going to ask you about Melatonin cause I use it almost daily cause I suffer from insomnia. I forgot my bottle when I went to Atlanta and kept poor Renee up all night! ROFL....and I was too scared to walk to a store to get some! Thanks for explaining I was just curious. 
_________________ Christina
Mom to Kallie 7 and Brittany 5
Example is not the main thing in influencing others. It is the only thing.
~Albert Schweitzer~
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Ellen Senior Member
Joined: 24 Aug 2005

Last Visit: 18 Oct 2006 Posts: 345 Location: New Jersey
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Posted: July 31 2006, 2:16 PM Post subject:
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Glad it's working. Hope this combo lasts awhile.
_________________ Ellen
Mom to Tom, Kevin, Mary, Anna,
Paul, Michael, Grace (DS, 6/23/05)
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Yailet Senior Member
Joined: 27 Jul 2005

Last Visit: 17 Oct 2006 Posts: 670 Location: Miami, Florida
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Posted: August 01 2006, 3:30 PM Post subject:
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I also have to agree with Christina and Courtney, Angela was a sweetheart, I'm glad that those meds are working for her, I wouldn't want to meet Angela's bad side
I wish we lived closer, I would love for Daniel to spend more with her. 
_________________ Wife to Carlos, mom to Daniel Brandon 6/15/04 DS
We live in Miami, Fl
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momtofourgirls Senior Member
Joined: 04 May 2006
Last Visit: 17 Oct 2006 Posts: 850 Location: Southern California
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Susanshea Senior Member
Joined: 27 Aug 2005

Last Visit: 07 Oct 2006 Posts: 165 Location: Lemont, IL
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Posted: August 13 2006, 8:00 AM Post subject:
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I'm glad to hear this is working. I just read about this on an PDD website.
_________________ Susanshea
Mother of James (12/26/03), Twins David and Kathleen (05/11/05)
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bonniepd Senior Member
Joined: 22 Jan 2006
Last Visit: 17 Oct 2006 Posts: 349 Location: Minneapolis area
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Posted: August 20 2006, 5:44 PM Post subject:
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Just checking up after a busy week. Glad to hear you find something that will work for Angela. Hopefully all the changes will show up in school too. keep us all posted.
_________________ Alexander (8/7/99), Andrew (9/26/02), Anthony (12/29/05 DS)
"You may never know what results come from your action. But if you do nothing, there will be not result." -Mahatma Gandhi
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Daniels Mommy Member
Joined: 04 Nov 2004

Last Visit: 17 Oct 2006 Posts: 71 Location: East London, South Africa
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Posted: August 31 2006, 5:46 AM Post subject:
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Lea, glad to hear that the Risperdal is working. Thought I would share with you Daniel is on .75mg in the morning and .5mg in the evening (he takes in the evening to help with his sleeping as he also sleeps real bad). He has been on the Risperdal for quite a while now and it is very expensive here in South Africa. I pay around R500 a month just for the Risperdal and then he has to have Ritalin as well and that does not even include the day to day meds, vitamins, flue stuff etc. Anyway, after a while (obviously when the meds had kicked in and were working real good), I decided to be clever and thought he did not need it anymore and took him off it!!! Wow, what a mistake!! I could not believe the difference, I lasted about 2 weeks and then phoned the Paed. He actually laughed at me and told me that I had lasted quite a while and he was expecting my call a lot sooner!! Guess I won't be fiddling with that again. Tereza
_________________ Wife to Karl
Mom to Daniel (DS - 6 years)
Mom to Dominique (22 months)
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