DownSyn Forum Forum Index DownSyn Forum
Extra Chromosome... Extra Family
 
shoppingShop   Watched TopicsWatched Topics   FAQFAQ   SearchSearch   MemberlistMemberlist   CalendarCalendar  RegisterRegister 
 ProfileProfile   MapMap   Log in to check your private messagesLog in to check your private messages   Log inLog in 
Forum TourForum Tour 

David!


 
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Prayer Requests
View previous topic :: View next topic  
Author Message
prophetaxxi
New Member


Joined: 01 Feb 2010

Last Visit: 28 Feb 2010
Posts: 6
Location: New Jersey

PostPosted: February 01 2010, 5:28 PM    Post subject:
David!
Reply with quote

Hi, we wanted to share a little bit of our experience with the members on this forums since we can definitely relate to many of you.
Our second child David was born august 10 2009. During my wife's third month of pregnancy we found about the extra chromosome and possibly CHD (TOF) was also going to be something that we we're going to have to deal with. Needless to say how hard the months that followed were to us, God gave us the strength and we kept the faith. David was born on August 10 , 2009, he underwent open heart surgery to fix his TOF 3 weeks after he was born and on October 1st he was finally home.
David is now 6 months and just this past weekend we noticed after waking up from a nap that he was having spasms that lasted for about 5 minutes , we got very concerned and decided we were going to call his doctor first thing Monday morning (today). As I type this my wife is now at the Child's neurologist office so we can have David checked and make sure he gets all the help he needs.
I spent the whole morning researching on the Infantile spams and just spoke to my wife a while ago, she left the doctor's office straight to the hospital, they are admitting David now and sometime tomorrow they will probably start him on ACTH, we are very scared but faithful that God is in control! I ask that whoever reads this, please keeps David in your prayers ! Thanks and God bless.

_________________
"And we know that for those who love God all things work together for good, for those who are called according to his purpose." Romans 8:28

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
~Ben'smum~
Super Member


Joined: 26 May 2009


Last Visit: 27 Sep 2010
Posts: 1238
Location: Northern Ireland

PostPosted: February 01 2010, 5:34 PM    Post subject:
Reply with quote

Hello, welcome to DownSyn. You'll recieve all the prayers and support you want here. Congratulations on the birth of David. I hope all goes well for him in hospital.

_________________
Karen- Mum to the world's cutest baby!! Very Happy Ben



Back to top
View user's profile Send private message  
Tom
Administrator


Joined: 22 Jun 2000


Last Visit: 27 Sep 2010
Posts: 4948
Location: Plainview, NY

PostPosted: February 01 2010, 5:35 PM    Post subject:
Reply with quote

David is in our thoughts and prayers.

And David shares a birthday with my wife!

_________________
Tom

Dad to Beth (17) and Mikey (13 - Ds and PDD-NOS)
My Blog - Random Thinking
Find me on Facebook
Find me on Twitter as tgpaul

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website Visit poster's blog AIM Address
prophetaxxi
New Member


Joined: 01 Feb 2010

Last Visit: 28 Feb 2010
Posts: 6
Location: New Jersey

PostPosted: February 01 2010, 6:06 PM    Post subject:
Reply with quote

Thanks everyone! : )

_________________
"And we know that for those who love God all things work together for good, for those who are called according to his purpose." Romans 8:28

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
logansmom
Senior Member


Joined: 15 Nov 2004


Last Visit: 27 Sep 2010
Posts: 494
Location: Indiana

PostPosted: February 01 2010, 6:40 PM    Post subject:
Reply with quote

Hi and welcome to DownSyn. David will be in our thoughts and prayers. Please keep us posted.

Kim

_________________

Wife of Marvin
Mom to Logan (3/6/03, Ds) and Carson (9/6/05)
Back to top
View user's profile Send private message [ Hidden ]
AliMama
Senior Member


Joined: 08 Aug 2009


Last Visit: 27 Sep 2010
Posts: 950
Location: Illinois

PostPosted: February 01 2010, 8:12 PM    Post subject:
Reply with quote

Welcome to Downsyn! Congratulations on the birth of your son! This is a great place for information and support--it has helped me so much on this journey thus far. Praying that everything goes well at the hospital.

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-09


Back to top
View user's profile Send private message  
maziebaby
Senior Member


Joined: 28 Jan 2008


Last Visit: 25 Sep 2010
Posts: 176
Location: california

PostPosted: February 01 2010, 8:16 PM    Post subject:
Reply with quote

Sending lots of prayers and good thoughts your way!!!

_________________
Lisa Wife to Glenn Mom to Johnathan 24 Allison 21 Chad 15 Greta 14 Sarah 12 Jennifer 9 and Mazie 6 (DS/ vsd repair 8/03)



Back to top
View user's profile Send private message [ Hidden ]
Edensmama
Senior Member


Joined: 15 Sep 2008


Last Visit: 27 Sep 2010
Posts: 624
Location: Chicagoland area

PostPosted: February 01 2010, 10:23 PM    Post subject:
Reply with quote

Lord we are lifting sweet David up to you now. You knit him together Lord and know exactly what is going on. Father please give the doctors wisdom to help him with whatever is happening. Put your hand upon him to heal him and send your spirit of peace to his parents. We place him in your mighty and merciful hands Lord. And I pray these things in the name of your Son Jesus. Amen.

_________________
Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem



Back to top
View user's profile Send private message   Visit poster's website
Googsmom
Super Member


Joined: 24 May 2008


Last Visit: 27 Sep 2010
Posts: 1209
Location: Oregon

PostPosted: February 02 2010, 12:07 AM    Post subject:
Reply with quote

Know that we are praying. {{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}


PS: That's my b-day too Wink

_________________
Jennifer, Momma to The Brookster 4 yrs old


www.specialneedsinmolalla.blogspot.com
www.foundalongthejourneythroughholland.blogspot.com
Back to top
View user's profile Send private message   Visit poster's blog
Ibby
Super Member


Joined: 13 May 2006


Last Visit: 29 Apr 2010
Posts: 3782

PostPosted: February 02 2010, 1:54 AM    Post subject:
Reply with quote

Please know of my prayers for David and your whole family!! Your new extended family here is ready to support you in whatever way we can!! Please give my best to your wife as well and update as you are able.

Ibby

_________________
Ibby
Wife to Tim- 22 years. Mother to Maggie,21; Bridget,19; Kevin,17; Sean,15; Daniel,12; Catherine,11; Robert,8; Emily,7; Maria,5; Hope, 4, AJ (Ds) June 14, 2006

http://www.onetruemedia.com/shared?p=26012b09b29bd00fe629cb&skin_id=0&utm_source=otm&utm_medium=text_url


Back to top
View user's profile Send private message [ Hidden ] Visit poster's blog AIM Address Yahoo Messenger
Momtoseven
Senior Member


Joined: 11 Aug 2008


Last Visit: 27 Sep 2010
Posts: 828
Location: Pennsylvania

PostPosted: February 02 2010, 9:15 AM    Post subject:
Reply with quote

Praying for David! Welcome to downsyn - please keep us posted!

_________________
Maureen - Mom to Daniel(21), Brandon(19), Jordan(13)PDD, Thomas(11), Carrie(7), Samuel(4) and Mark (2 - ds, av canal -repaired 6/10/08, pulmonary hypertension)
https://www.carepages.com/carepages/MarkEdwardC32708
Back to top
View user's profile Send private message [ Hidden ]
Katrina
Senior Member


Joined: 16 Feb 2006


Last Visit: 27 Sep 2010
Posts: 528
Location: Lafayette La

PostPosted: February 02 2010, 10:25 AM    Post subject:
Reply with quote

We will pray for David..

Hugs Katrina and Peyton

_________________

Peyton and Paige
Back to top
View user's profile Send private message [ Hidden ]
DanielsMommy
Super Member


Joined: 18 Sep 2005


Last Visit: 27 Sep 2010
Posts: 4356
Location: Rhode Island

PostPosted: February 02 2010, 3:22 PM    Post subject:
Reply with quote

Hello and welcome. I urge you to contact Amy (Larkinsmom) as she has dealt extensively with Infantile Spasms.

We will pray for David!!

_________________

Lisa - Mommy to Elayna 10-1-02 and Daniel (Ds) 6-7-05
Always have hope....Without rain, there can be no rainbows.






Back to top
View user's profile Send private message  
QuinnsMom
Super Moderator


Joined: 29 Jun 2007


Last Visit: 27 Sep 2010
Posts: 1202
Location: Wisconsin

PostPosted: February 02 2010, 10:30 PM    Post subject:
Reply with quote

Hi - I am so glad that I opened your posting. My daughter Quinn was dx with IS in October and began ACTH. Although the tx is difficult and Quinn was very uncomfortable thoughout the process, she has made GREAT gains after the completion of it! It is tough decision to do ACTH, but we were so right to do it. Please do talk to Larkin's mom, she is a great resource. If you want to ask me any questions, please don't hesitate to PM me. I will be praying for David and all of your family.

_________________
Karyn, Quinn's Mom -
Mother of Riley (age nine), Aidan (age six) and Quinn (October, 2007 - DS, IS, Stereotypical Movement Disorder)
http://quinnscrusaders.blogspot.com/

Back to top
View user's profile Send private message  
LinMac
Super Member


Joined: 27 Oct 2005


Last Visit: 27 Sep 2010
Posts: 3686
Location: Dublin, Ireland

PostPosted: February 03 2010, 7:15 AM    Post subject:
Reply with quote

Welcome to Downsyn.

I will pray for David in Dublin.
He looks so cute in your daughters arms!
This is a diffiuclt time for you all! A lot of unknowns!
Praying you get courage and strength to support your family.

_________________
Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)


First day at school
Back to top
View user's profile Send private message  
hayden's mom
Super Member


Joined: 05 Sep 2005


Last Visit: 21 Sep 2010
Posts: 1444
Location: Round Rock, Texas

PostPosted: February 03 2010, 2:02 PM    Post subject:
Reply with quote

Saying prayers for little David and your family.

_________________
Mommy to:
Holden 10
Hayden 6 (ds)
Jacie 5
Jordyn
And the Angels Danced the day you were born

Back to top
View user's profile Send private message [ Hidden ]
Tigger
Super Member


Joined: 28 Jan 2006


Last Visit: 28 Sep 2010
Posts: 6533
Location: NSW, Australia

PostPosted: February 07 2010, 7:51 PM    Post subject:
Reply with quote

Praying for David. How are things going?

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
Back to top
View user's profile Send private message  
jooniper
Super Member


Joined: 01 May 2006


Last Visit: 25 Sep 2010
Posts: 2421
Location: Chicago, IL

PostPosted: February 07 2010, 9:35 PM    Post subject:
Reply with quote

Oh, sure will be praying. Keep us posted and welcome!

_________________
Gillian
wife to Sergei and mom to Elaina (Cool, Zoya (6) and Polina (2 1/2 DS)
http://lintofpocket.wordpress.com/

Back to top
View user's profile Send private message [ Hidden ] Visit poster's blog Yahoo Messenger
Momof3monkeys
Member


Joined: 21 Jan 2010

Last Visit: 27 Sep 2010
Posts: 54
Location: Canada

PostPosted: February 08 2010, 10:52 AM    Post subject:
Reply with quote

Praying for your little guy and family.
((hugs))


_________________
Lyn - wife of Brian mom of Kris (12-03-97) Mykaela (06-24-99) Nathan DS (05-12-08 )
Back to top
View user's profile Send private message  
prophetaxxi
New Member


Joined: 01 Feb 2010

Last Visit: 28 Feb 2010
Posts: 6
Location: New Jersey

PostPosted: February 28 2010, 2:30 PM    Post subject:
David is home !
Reply with quote

Hi everyone ! I want to thank God in the first place and everyone of you that remembered David in your prayers!

February was a long month indeed! David was admitted into the hospital on Feb 2, started his ACTH treatment on the 10th, by Feb 12th his seizures had completely stopped! He then continued his full dosage treatment for another 2 weeks before being discharged. David went home on a low dosage and is doing great! God is faithful! Very Happy

_________________
"And we know that for those who love God all things work together for good, for those who are called according to his purpose." Romans 8:28

Back to top
View user's profile Send private message [ Hidden ] Visit poster's website
AliMama
Senior Member


Joined: 08 Aug 2009


Last Visit: 27 Sep 2010
Posts: 950
Location: Illinois

PostPosted: February 28 2010, 4:10 PM    Post subject:
Reply with quote

So glad to hear that things went well and that he's home where he should be!

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-09


Back to top
View user's profile Send private message  
Tigger
Super Member


Joined: 28 Jan 2006


Last Visit: 28 Sep 2010
Posts: 6533
Location: NSW, Australia

PostPosted: February 28 2010, 4:26 PM    Post subject:
Reply with quote

Praise God!! That is great news.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14
Back to top
View user's profile Send private message  
Momof6
Super Member


Joined: 30 Sep 2008


Last Visit: 28 Sep 2010
Posts: 1873
Location: Cortland, NY

PostPosted: February 28 2010, 5:25 PM    Post subject:
Reply with quote

Awesome news. Please keep us posted on sweet David.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin



Back to top
View user's profile Send private message [ Hidden ]
Display posts from previous:   
Post new topic   Reply to topic   printer-friendly view       DownSyn Forum Forum Index -> Prayer Requests All times are
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
You cannot post calendar events in this forum
Click above to help support this site
Click below to help support the DSRTF



Down Syndrome: For New Parents

Powered by phpBB © 2001, 2008 phpBB Group