DownSyn Forum

sunbonnetsioux · Posted: July 21 2006, 12:10 AM Post subject: Here's Kepler

Kepler is almost 7 months old. Although our older children were born in a hospital, we were blessed to have a lovely waterbirth at home with Kepler. We did not have prenatal testing which indicated DS and we weren't immediately sure about his condition. We spent the first night at home, but went to the doctor the second day as Kepler's color wasn't right due to lower oxygen saturation, and then on to the NICU for 8 days. His heart is fine and he is overall very healthy.

We have learned a great deal in the past months, and although we see that DS is not a tragedy like we initially thought, it is still a big adjustment to having a child with special needs. Kepler has already taught us alot about love. His big sisters and brothers love to spend time with him and he is a very social boy who LOVES to be face to face with people.

I'm looking forward to getting to know the wonderful people here.

Susan

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_________________
Mom to Valerie (1/93), Joel (4/94), Eli (10/95), Anna-Jessie (11/9 Cool

and Kepler (DS 1/2/06)

momtofourgirls · Posted: July 21 2006, 1:19 AM Post subject:

Oh, he's sooo beautiful!! What a smile- Welcome Very Happy

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Kari
Mom to..
Kiersten 12 yrs.
Madison 10 yrs.
Hannah 7 1/2 yrs.
& Sadie(DS) 2 yrs. (6/17/04)

keri · Posted: July 21 2006, 1:51 AM Post subject:

Welcome Susan, Keplar is adorable

_________________
Keri Mom to:
Sydney 9-25-01
Jack 2-10-03
Kaitlyn DS 7-30-05 Brave Heart 2-24-06

Tigger · Posted: July 21 2006, 7:25 AM Post subject:

Welcome!! Keplar is very handsome. I would love to hear more about him.

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Karyn
Mum to Nikki (19 Jul 89), Stefanie (3 Sep 96), Joel [18 June 98] and Talitha (DS) (18 Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

rhonda · Posted: July 21 2006, 8:07 AM Post subject:

Hello and welcome!!! Kepler is beautiful. I look forward to learning more about you and your family.

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Rhonda

Taylor 13, Jordan 12, Dylan 3

marlene · Posted: July 21 2006, 8:17 AM Post subject:

Oh-my-goodness! My mouth fell open when I saw him! He is sooo precious!!! I'd LOVE to squeeze him! Welcome, I'm glad you found us!!

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Marlene, mommy to my precious Aleena (1/30/04)

waith · Posted: July 21 2006, 8:59 AM Post subject:

Welcome to Downsyn. Kelper is sooooooo cute, I've never heard the name before is it used often in the states?

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Maxine UK. Mum to Elliott 12, Dominic 2 DS.

JenBrock'sMom · Posted: July 21 2006, 10:00 AM Post subject:

What a sweetie pie Kepler is. I'm Jen mom to Brock who is almost 1 - July 28th! I look forward to hearing more about your family.

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JenBrock'sMom & wife to Jay
Brock 7/28/05

hannah · Posted: July 21 2006, 1:58 PM Post subject:

Welcome! WOW! kepler is so adorable!

_________________
Beth
Hannah(ds)1.19.05

Josiesmom · Posted: July 21 2006, 4:20 PM Post subject:

Oh my... He is soooo handsome!! What a cutie and I LOVE his name!!!

_________________
Brigitte
Wife to Wonderful Husband -- Joe
Mommy to Josie (DS) 10/27/04
and Katie 11/30/05
"Most People Only Dream of Angels..... I Get to Hold Both of Mine!"

Cameron · Posted: July 21 2006, 4:23 PM Post subject:

Welcome! I'm new here too! Kepler is a cutie!!!!

_________________
Rae

Brooke 4/1/03 and Cameron (ds) 4/8/05

sunbonnetsioux · Posted: July 21 2006, 4:43 PM Post subject:

I meant to mention where we got Kepler's name. He is named after the astronomer, Johannes Kepler. My DH mentioned it one day out of the blue and I liked the name although I was not familiar with the scientist.

One thing that Johannes Kepler said was this: "I was merely thinking God's thoughts after him. Since we astronomers are priests of the highest God in regard to the book of nature, it benefits us to be thoughtful, not of the glory of our minds, but rather, above all else, of the glory of God."

Kepler's middle name is Able, which was also chosen before he was born.

When we found out that Kepler has DS, this quote was affirmation that he has the right name.

We also love the stars. Greg (DH) has a telescope that he loves to use. One of our fondest memories is of seeing the Northern Lights in Wisconsin.

It is not a name I have ever heard as a first name before, and we figured it might lead to some confusion since our last name is a common first name (Taylor). Indeed it has, and it took me awhile to remember to tell people to look under "Kepler" if they couldn't find him under "Taylor." Smile

Maybe when he is older he will go by Kep, but for now, he goes by Kepler.

Susan

_________________
Mom to Valerie (1/93), Joel (4/94), Eli (10/95), Anna-Jessie (11/9 Cool

and Kepler (DS 1/2/06)

naomid · Posted: July 21 2006, 4:49 PM Post subject:

He's gorgeous, welcome Smile

_________________
Naomi
Mum to Callum (DS) 3/03 and Kieran 8/04
Read all about us
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LinMac · Posted: July 21 2006, 6:34 PM Post subject:

Susan

A big welcome to the forum!
Kepler is so cute. I love that picture of him.

We have a few things in comon......
I too have been blessed to bring my son Robert into the world in a birthing pool in our sitting room with the assistance of John and a home birth midwife.
And what a wonderful experience!

Secondly my hubbie is a star gazer as well. It's his passion but unfortunately we don't have a scope. We ordered one a few years ago but it never arrived.... long story!. He is also a member of the Planetary Society.
Never heard Johannes Kepler but I like his thinking.

I'm Linda. Robert was 2 in April. He has an older sister Hannah Kate. She is almost 8. We live in Ireland.
Nice to meet you..... look forward to hearing all about Kepler

_________________
Linda & John
mom to Hannah Kate (Age Cool

, Robert (04/16/2004, DS)

Ava · Posted: July 21 2006, 6:57 PM Post subject:

Welcome! Keplar is such a beautiful baby, what eyes! Welcome, you will come to love everyone here, as I have. My son Daniel is a little over 20 mo. and I have 3 girls too!

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Ava & John
Alexandra 7/22/92, Samantha 3/05/94, Olivia 9/05/00, Daniel (Ds) 11/06/04

sunbonnetsioux · Posted: July 21 2006, 8:38 PM Post subject:

Linda,

Did you know of Robert's DS ahead of time? I have told myself that had we known no one would have "let" us have the homebirth. I was actually planning to have a waterbirth in a hospital, but it is against all the rules here. My doctor said he thought it could happen , that he would rather ask forgiveness than get permission, but after touring the hospital, I knew it wasn't going to work. My sister had a waterbirth in September of last year, and after my brother-in-law told me about it, I knew for sure I wanted a waterbirth. We ended up with a wonderful midwife, and the whole experience was very special. I especially appreciated the fact that our DC got to meet Kepler, hold him, bond with him, before we were off to the NICU for 8 very long days, separated from our other DC for almost the entire time.

I've never been to Ireland but would love to visit. Have only read about it, seen it in movies, and of course, loved U2 for the past 20 years. Smile

Thanks for the warm welcome!

Susan

_________________
Mom to Valerie (1/93), Joel (4/94), Eli (10/95), Anna-Jessie (11/9 Cool

and Kepler (DS 1/2/06)

jacknbellasmama · Posted: July 22 2006, 12:08 AM Post subject:

Welcome! Your son is just beautiful!!! Very Happy

_________________

Wife to John
Mommy to Keeley 9/22/01, Bella 2/19/04, Jack Ryan 4/7/06 (DS)
http://www.carepages.com/ServeCarePage?cpn=JackRyanClark&extrefid=tlcinvite

Ibby · Posted: July 22 2006, 12:49 AM Post subject:

Susan,

Welcome! You've found a great place for support and friendship!! Keplar looks fabulous! What a cutie!

I've also had a waterbirth....four of them actually!! There is really nothing quite to wonderful!

I'm looking forward to getting to know you and learn more about your family!

Ibby

_________________

Wife to Tim. Mother to Maggie,17; Bridget,15; Kevin,13; Sean,12; Daniel,9; Catherine,7; Robert,6; Emily,4; Maria,2; Hope,14 months, AJ (Ds) June 14, 2006

Maysonsmama · Posted: July 22 2006, 9:42 AM Post subject:

Oh he is a doll!! thanks for sharing!

_________________
Amy mama to:
Jayden-7/94
Rylee-10/97
Mayson-2/06 DS

huskies9798 · Posted: July 22 2006, 11:59 AM Post subject:

hello & welcome to the family!!! I just emailed you Smile

we live in batavia. he is just too cute. you have found a wonderful place. Brooke will be 2 next month & is just a little fireball & the light of my life.

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chris
mommy to brooke ds 8-30-04 BOY edd 1-24-07
my precious little angel & peanut on the way!

NattysMommy603 · Posted: July 23 2006, 12:06 AM Post subject:

Welcome to downsyn. Keplar is sooo handsome! What beautiful eyes he has! Can't wait to hear more about him.

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Tracy
Proud momma of
Natalie Marie 6/8/03,
Tyler Slayton 4/15/05
Baby 3 EDD 1/3/07

Carson's Mom · Posted: July 23 2006, 9:05 AM Post subject:

Hello and welcome! I love the name and the smile. He is sooo cute! I am looking forward to learning more about Kepler and your family.

Kayla

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,
Kayla, Callan(5), Kenna (3), Carson 1 yr,

kazpa · Posted: July 24 2006, 9:15 AM Post subject: Cute Kepler

ohh he is really cute, sounds adorable, this is a great place, heaps of info and answers to most questions...
Welcome from Kaz mum to wee Abbey

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Karen, Paul and Kelsey(25.10.95)Declan(08.04.99)& Little Abbey(ds 01.04.2004)

LinMac · Posted: July 24 2006, 5:57 PM Post subject:

Susan
No I didn't know in advance that Robert had DS. I got quite a few hospital scan but nothing showed.

I asked specifically to check for DS cos my sister had a daughter born two years previously with DS. Who ever said lightening doesn't strike twice!

Like you said having the water birth helped me bond with Robert before his 21 day stay in SCBU. Other than low birth weight (3lbs 13ozs) he had had no other medical complications.

He is a wonderful child knee deep in the terrible two at the moment! LOL!

From the first moment I held Robert in the water I felt he is and would be supported by the universe. Hard to put that feeling into words!

_________________
Linda & John
mom to Hannah Kate (Age Cool

, Robert (04/16/2004, DS)

kellyrimmer · Posted: July 24 2006, 9:18 PM Post subject:

What a doll!!!! he is so cute!!!!!!!!!!! Im so glad you found this site. It is the best!!! Just wanted to say welcome and cant wait to get to know you and your family better.

_________________
Kelly Rimmer
Mom to
Paige 11-12-92
Aaron 06-16-99
Alexis 08-19-05 (DS)
Baby #4 11-04-06