DownSyn Forum

JanetG · Last edited by JanetG on April 26 2009, 11:35 AM; edited 3 times in total

Jacey has RSV and pneumonia. We have been here since Tuesday. She is gradually being weaned off oxygen and we may get to go home tomorrow or Sunday. Thanks in advance for any prayers you can spare. Its so hard to see your baby so sick and in pain. Sad

Update - jacey is still struggling to get off o2. Just when I think we are making progress she takes a step backward. I don't know when we'll get to come home. I hope soon.

4/22 - Thank you all SOOO much for your positive thoughts and prayers. We are STILL in the hospital - day 8 now. I am happy to report that Jacey is SOOOOO much better today. Still on O2, but they are finally able to decrease it some. I am hopeful that we are able to go home by Friday or so. I am SOOOO ready to get back to "normal" life....

Today is Sunday, I think. We are finally home, after 10 days in the hospital. Thank goodness. That was the longest 10 days of my life... Jacey is doing better, although we came home on O2. I finally had to put my foot down as they weren't doing anything for her that I couldn't do at home. Since getting home, she's improved greatly. Is only on O2 when she sleeps now.... Thank you all so much for your prayers and positive thoughts. There are some dark days when your baby is so sick, and all your prayers got me through.... Love you all.....

Mary Beth · Posted: April 17 2009, 11:48 AM Post subject:

Praying Jacey recovers quickly and that you are out of the hospital really soon. (((HUGS)))
Mary Beth

_________________
Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

EAS1971 · Posted: April 17 2009, 12:11 PM Post subject:

Prayers for Jacey!! I'm hoping she recovers and gets out of the hospital very soon!

_________________
--Beth
Mom to Oliver, 5 (DS, ADHD)
and Sebastian, 4

teddyjoe · Posted: April 17 2009, 12:11 PM Post subject:

Prayers.

_________________
Jennifer
Teddy Joe's very proud mommy.

Googsmom · Posted: April 17 2009, 12:14 PM Post subject:

Prayers!!!!

_________________
Jennifer, Momma to The Brookster 4 yrs old

www.specialneedsinmolalla.blogspot.com
www.foundalongthejourneythroughholland.blogspot.com

kzmom · Posted: April 17 2009, 12:44 PM Post subject:

Hope she feels better soon!

_________________
______
Kristen
Mom to Zach (Jan 2005) and Katelyn (Feb 2008 DS)

ajbest · Posted: April 17 2009, 2:11 PM Post subject:

so sorry to hear that Jacey is fighting those 2 and in the hospital. praying that she bounces back well and can get back home soon, aj & Janna

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

Me-Shell · Posted: April 17 2009, 2:40 PM Post subject:

Oh My... I hope she getters better soon. Thoughts, prayers and big big HUGS..

_________________

Michelle, Fiance to Wyatt, Mom to Shane (20), Aubrey (17) and Baby Cameron DS (02/06/08 )

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." After all today is the tomorrow you worried about yesterday.

QuinnsMom · Posted: April 17 2009, 5:04 PM Post subject:

Praying for Jacey.

_________________
Karyn, Quinn's Mom -
Mother of Riley (age nine), Aidan (age six) and Quinn (October, 2007 - DS, IS, Stereotypical Movement Disorder)
http://quinnscrusaders.blogspot.com/

Tigger · Posted: April 17 2009, 6:17 PM Post subject:

Praying for Jacey.

_________________
Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

ajbest · Posted: April 19 2009, 1:06 PM Post subject:

continued prayers for Jacey to get well and get home soon! aj & Janna

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

EAS1971 · Posted: April 19 2009, 1:44 PM Post subject:

Oh no!!! I'm so sorry to hear this. More prayers for Jacey. I hope she gets out of that hospital and back home very soon!

_________________
--Beth
Mom to Oliver, 5 (DS, ADHD)
and Sebastian, 4

ellenstumbo · Posted: April 19 2009, 2:26 PM Post subject:

Oh janet I just saw this! We will be praying for sweet Jacey. I will be checking here to see how she is doing.

_________________
Ellen, honored to be married to Andy since Feb 2003 and mom to Ellie (08/21/05) Nina (05/01/06 CP) and Nichole (10/02/07 DS)
www.elliestumbo.blogspot.com

"For you created my inmost being, you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made, your works are wonderful, I know that full well." Psalm 139:13-14
God does not make mistakes

Me-Shell · Posted: April 19 2009, 6:15 PM Post subject:

Still praying for Jacey.

_________________

Michelle, Fiance to Wyatt, Mom to Shane (20), Aubrey (17) and Baby Cameron DS (02/06/08 )

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." After all today is the tomorrow you worried about yesterday.

My girl Sam · Posted: April 19 2009, 6:25 PM Post subject:

We're praying. My 4 yr old was just hospitalized last month with RSV and other respiratory problems. I understand how slow the weening process can seem.

_________________
Angie - Mom to
Samantha 8yrs (DS)
Gerry 7yrs
Abera 6yrs
Brandon 5yrs

Helen · Posted: April 20 2009, 6:15 AM Post subject:

Praying for Jacey that she gets better soon, and for you guys as you just have to wait and be there for her. God bless, x

_________________
Helen

Mum to ...
Rachael Kinza (25/07/01), Matthew Isaac - DS & Autism - (14/06/03) and Hannah Cerys (14/06/05) - my gorgeous kids!

Alicia · Posted: April 20 2009, 5:33 PM Post subject:

Sending prayers. Oh, the long hospital stays are so hard. Hope she recovers quickly.

_________________
Alicia
Mom to: Christopher - 23 years old
Dex - 21 years old
Lierin - 21 years old
Kayla - 9/6/05 (DS)
Braden- 9/11/07

ajbest · Posted: April 24 2009, 12:33 PM Post subject:

praying that Jacey did/does make it home today. hope she is feeling better - update when you can, aj & Janna

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

EAS1971 · Posted: April 25 2009, 7:07 PM Post subject:

Poor Jacey! That's a long time to be in the hospital! Continued prayers.

_________________
--Beth
Mom to Oliver, 5 (DS, ADHD)
and Sebastian, 4

ajbest · Posted: April 26 2009, 2:43 PM Post subject:

SO glad that Jacey has made it home - she'll get well fast now! glad they let her go w/ O2. praying that she is completely well real soon, aj & Janna

_________________
Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)

"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

Googsmom · Posted: April 27 2009, 12:06 AM Post subject:

I'm glad your home Smile

_________________
Jennifer, Momma to The Brookster 4 yrs old

www.specialneedsinmolalla.blogspot.com
www.foundalongthejourneythroughholland.blogspot.com